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nikiluna

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About nikiluna

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    USA
  1. Thanks:) it's good to know I am not the only one:/
  2. Thanks, I will definitely ask for a copy of the biopsy and test. I say I feel a little better because I am constantly not running to the bathroom over 10 times a day maybe running only like 5-6. To me that's huge:) Do any of you suffer from left upper quadrant pain sometimes it is so sharp it bows me over in pain. It seems to be right under my left rib and sometimes goes around to the back. Thanks for all the info:)
  3. I am not sure if this is the correct place to ask this? I went to my GP for a sprained back and he asked my if I had seen my GI yet about my results and told him no that I was not due to see him for another two weeks. (Even though I had talked with the GI's office but I wanted to see what he said and he sat there reviewing my results) and his response was well it appears that your endoscope test and biopsy showed evidence of sprue. You should start a Gluten free diet and make sure to keep your appt. My GP and I had already discussed the chance of me having celiac due to that fact that prior test results showed I was having a malabsorption problem and my stools had changed to a very light tan color and the fact that i constantly had diarrhea. (sorry if to graphic) I also for the past 15 years have been dealing with a chronic rash first it started on my throat and the outer edges of my arms and now its not on my neck, but still on my arms and bilaterally on my stomach and back for years doctors have said its contact dermatitis. I believe it is DH. The crazy thing is that the GI doctors office called a week after my test and told me that all tests came out negative... I trust my GP and don't believe that he would give me a wrong diagnosis as something as serious as this, (He was reading it off of the results) knowing how many times i come to see him because of GI issues. My question is there such a thing where it just shows a little not enough to be considered Celiac? Why else would the GI office tell me there was nothing found and to keep my appt.? So now this Thursday I am going to see GI and am going to hear what he has to say! Either way I have now been Gluten Free for exactly one week and believe I will stay that way!!! I am starting to feel better... Has anyone had this happen to them?
  4. OMG! your rash looks just how my rash started out about 15 years ago, I would get it on my neck and the outer edges of my arms spreading like wild fire. Dr's always said it was contact dermatitis and give me some cream! itching like crazy I was constantly applying cream and covering my arms and neck in mid summer. fast forward to today I haven't got it on my neck in a while but still get it on my arms and now its bilateral on my stomach and back and it is extremely itchy and uncomfortable.
  5. Hi!

    Congratulations on your new diagnosis :P. Hopefully you will be feeling much better soon! I was reading your post under Family and Friends (I think...?) about labour day festivities, and I'm glad someone else experiences the same frustrations! Well, not glad, per-say, but now I don't feel like the only one...

  6. OMG!!! I have went through the exact same thing this weekend for a family birthday party and Labor day party!!! It is so exhausting! They just don't understand what we have been going through:( Hopefully it gets better, when dealing with friends and family