This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
Raven, I had been gluten free for 4 days when the tests were run. But my doctor said that you needed to be off gluten for 2 weeks before test results were affected?
I guess that's the good thing about being affected by gluten - you don't need a doctor's opinion or approval to stay off it!
Well nothing else will happen until after my allergy testing, and the specialist for that has a waiting list of a couple of months. So I'm still gluten free I feel better this morning, less discouraged and glad I'm not still poisoning myself with gluten.
Thanks. I had a good cry and feel a bit better. I really didn't want to her the letters IBS come out of her mouth. My doctor was going to refer me to a GI regardless of my results, but she said according to my test results there is no medical reason to send me to a GI.
So I'm seeing an allergist
I might wait until my GP gets back from holidays then go back to see him. I rang the Coeliac society here and they said they aren't allowed to recommend doctors. *sigh*
Thanks for the reminder I will definitely ask for copies. I see no reason why they wouldn't give them to me.
And I think I glutened myself on the weekend again. What is it with me and weekends?? We went out for ice-cream to a place that told us all their ice cream except for Cookies and Cream were gluten free. They actually know what gluten free means! I've eaten there a couple of times now and had no problems, but I had liquorice flavoured ice cream yesterday and I got that burning sharp pain in my chest after eating it! Now today I have typical symptoms and just feel awful.
I love how I feel when I'm off gluten, it makes it so obvious it isn't good for me.
I have my doctor's appt this morning to get my test results. I've been waiting for this appointment for 2 weeks. But I couldn't remember exactly what time to go in. So I rang them. THERE IS NO APPOINTMENT BOOKED!
The receptionist mustn't have put it in the computer. And to make things even better (total sarcasm) my doctor is now on holidays for 3 weeks.
So they managed to get me an appointment with someone else to get my results. So it's good I still get them. But she doesn't know the long conversation I had with my GP, so now I'll have to go through it all again.
I am so, so tired of this. Tired of explaining all the time how I feel and sounding like a total lunatic. The appointment might go great, and I hope it does, but right now I'm just so damn weary.
I've learned to get by, lol! I've only been gluten free for a couple of weeks so I'll let you know if I see an improvement.
I wear flat shoes now because I was notorious for falling off my shoes when I wear heels or anything with a wedge. I've rolled my ankle so many times doing that.
I used to cut myself often with knives when I was cooking. I still do it occasionally so am really careful in the kitchen. My hubby watches me like a hawk
But oddly enough sometimes I'm okay and my balance and coordination is quite good. Then I get a reality check and realise it was a temporary reprieve, lol!
It's kinda embarrassing to play catch with my kids and have trouble catching the ball though
I wonder if I was ever healthy. Milk allergy and excema as a baby, asthma diagnosed at age two, mouth ulcers for as long as I can remember, coordination issues, anxiety. I remember always wishing I was a sporty kid, I had the inclination mentally, but could never follow through because I was so uncoordinated and got tired easily. I thought I was just unfit.
I also had recurrent nightmares and growing pains which left me sobbing.
I've had severe anaemia since I was 15. And it goes on...
I wonder now whether all the times I felt healthy (and I felt healthy most of the time) whether I was. Maybe how I feel everyday is just my 'normal' and I don't know any different. It's a sad thought. I had a good childhood. It was happy. Maybe it could have been amazing.
Yes, definitely get your kids tested. Some people never show any symptoms of celiac, but there is still damage being done inside.
It's hard work navigating this path in the beginning. I've only been gluten free a couple of weeks. Everyone here understands what it's like and what you're going through, that's what makes this forum so terrific. We're all here with you.