This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
I'm in my early 20's and diagnosed with celiac in 2011. In 2013, I noticed I was having some urinary leakage. I was deceived into thinking it was normal and think that when I was more healed with my celiac the leakage would go away. I still have symptoms of celiac even with gluten free diet. (mainly urgency after eating, irritable bowel gas). Finally, I decided to get the urinary symptom checked out by a doctor. It seems to just be getting worse. I don't always know when I have leakage, but if I don't wear a pad/change it out, then I notice it when using the restroom. Doctor put me on two medications but they don't seem to be helping. Next time I go to the doctor, next month, she'll probably recommend botox injections or surgery.
Anybody have any ideas? Similar experiences? Suggestions? Is this even celiac related?
Have you heard of the specific carbohydrate diet? It's used to help heal digestive disease. I got on it and after 2 day I could notice a difference. I have a mild form of C and I'm in my 20's and I'm afraid it will get worse if I don't get it under control. I ran across this website http://pecanbread.com/p/how/coprotocol.htm . The diet she is referring to is based on Elaine Gottschall's book Breaking the Vicious Cycle and there is more information on scdlifestyle.com. I wish I knew more of what to tell you but sometimes it helps me to read people's testimonies of what worked for them and maybe it can work for someone else, too.
When eating at restaurants, I ask for the manager and ask questions about how exactly they cook it (what kind of seasonings, is it made with the same grease that something has been fried in, separate utensils from gluten food...). Sometimes you can feel them out and see if they have any clue with what you are talking about. If I don't think they have a clue what is or isn't 'gluten free,' I prefer to just get a salad (no croutons!). Whole foods, such as chicken, vegetables, and fruit, is always the safest way to go.
I know the gluten-free lifestyle can be overwhelming at first. We've all been there, and at times it still is. When you get back, I would recommend doing some research. Gluten can be in 'hidden ingredients,' such as natural flavorings and food starch even. If you have an iPhone, that has been a tremendous help to look things up when at chain restaurants. Don't hesitate to ask questions. This forum is a great support. Congrats on the new job! Hope all goes well so you can enjoy your retreat!
I ran across a gluten free camp for kids that is held every summer in Gilmer, TX. All the meals and snacks are gluten free. (There's a sample menu on the site.) Can't think of a better camp to send kids who eat gluten free...no worrying about what to eat!!
It sounds like you may be overexerting yourself. I'm in college with a rigorous courseload, too. Very stressful. I always find that I do SO much better at home on breaks - even though I eat the same gluten-free things as in college. I've learned the amount of stress (knowingly or unknowingly) I have directly affects how I'm feeling. I kept hearing that stress affects us, but now I know it's so very true! :/
From one college student to another, here's what I'll say in regards to coping with celiac... (We all know it's not easy and being in college makes it even harder.) What's gotten me through is my faith in God. He's the one who has all control, and I control nothing. Find those people who support you, encourage you, and be patient with you and hang tight to them. Take it day by day. Take care of YOU right now the best you know how, so you can get better and live a long, healthy life. Everything else will fall into place. Find things you enjoy doing. And stay away from stress!
So sorry you are not feeling well. Keep your head up and hang in there! <3
Doesn't sound like they are digesting. Nuts are hard to digest. I've learned we have to 'listen to our body,' since no one person is the same. If something doesn't suit us well, it's best to stay away from it. Otherwise, we keep our intestines inflamed and prevent healing from occurring.
Ali, I just wanted to say that I was told the same thing when I was first diagnosed- "lay off on sugar, starches, dairy, processed foods etc." and I didn't listen... If it's gluten free, isn't that enough?! And...I wish I would have listened to that advice sooner! I believe it would have sped up the healing process. I was told I would feel better in 4 weeks, too, but I didn't! So frustrating and very misleading thing. I eat a gluten free diet and am better than I was at first since going gluten free. So, there is some improvement. It makes sense, though...Since our intestines are so inflamed at first, we need foods that are easy on our stomachs, even if that means cutting out to just the basics. Tea and coffee both affect lots of people, including me, so might want to think about cutting that out for a bit? Just a thought. Remember "Nothing tastes better than being healthy feels." I'm still not where I want to be, but after 19 months I am better than when I first started gluten-free. You'll get there. It takes time and discipline. Keep you head up and hang in there!! You WILL get through it. It gets easier with time.
So sorry I am just now seeing your post! I'm sorry to hear about your son. You can't eat any better foods than the whole foods. That's really encouraging that he has no symptoms. Actually, the yogurt is really easy to make. I ordered my yogurt maker from http://www.lucyskitchenshop.com/ . Make sure you ask for the SCD yogurt starter. They send the directions and everything. I make mine with 1/2 and 1/2 and it is delicious with sweetened with honey and even some fruit.
I hope it goes well! It's encouraging that he has no symptoms on just the gluten-free diet. It can't do anything but help. It definitely won't hurt.
I'm planning on starting the specific carbohydrate diet soon....The SCD diet is based off of Elaine Gottschall's book Breaking the Vicious Cycle. It cuts out grains, sugars, processed foods and many other foods that cause problems. It is a very strict diet and needs 100% adherence, but I've heard testimonies of so many people healing their intestines because they followed it so closely.
Perhaps you were thinking about starting the SCD diet, too, because the gluten free diet just isn't cutting it. If so, I would love to have an accountability partner to keep each other accountable (and who knows, there may be others!). This is my second time around and I want to follow it 100% right this time. I'm making a committment to try it for 90 days. If that's you too, let me know, and let's get healthy together!!
I'm committed to seeing huge results after 90 days. It's going to be hard but worth it.