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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About amyfeistel

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  1. Richard, Thanks. I think I found the culprit: my yogurt. I also did not have yogurt until today (typical work-day breakfast fare of yogurt and coffee). I eat Stonyfield Farm yogurt. I emailed them. Their flavored yogurts may contain trace amounts of gluten because a grain alcohol is used to extract flavors from spices for the "natural flavors." Only the plain yogurt is gluten-free. I'm going to test this by still drinking the coffee and changing the yogurt. Wish me luck. -Amy
  2. Here's a quote I found on this website: " Another surprise hidden gluten is citric acid. When citric acid is made in the United States, it is made from sugar cane, sugar beets or corn; however, when it is produced in China, it may be made from wheat. " Anyone else heard of this? AUGH... I didn't realize that maltodextrin production isn't regulated either.... Now I have to scour my kitchen for more gluten. Ugh.
  3. Several months ago, I decided to cut caffeine from my diet. Since decaf coffees usually taste terrible, I decided that my "reward" would be to consume some really lovely whole-bean decaf coffee. I've enjoyed this option up until the past few weeks. Over the past 5 weeks, I've had repeated un-explainable bouts of diahrrea. I've been going crazy trying to pin-point the culprit. (I'm incredibly careful about my diet.) For the past 4 days, I have not consumed any of my coffee. I was feeling sick and was drinking a gluten-free herbal tea. I also did not have any diahrrea. This morning, I woke up and made a cup of coffee. 30 min. later, at the office, I'm sick again. Is it possible for decaf whole-bean coffee to contain gluten? If so, are there any gluten-free options that taste good?
  4. The Medical Community Are Clueless

    Last June I became sick with a sinus infection and required antibiotics. The dr. prescribed penicillin to which I had a reaction. So, he called in a "Z-pack" (zithromax). I questioned the pharmacist on the z-pack, asking for her to specifically check for gluten-containing starches. I even named them for her and gave her a list to cross-check. She insisted the meds were gluten-free. Three days later, I'm sick with non-stop diahrrea. I was so weak I could barely walk. I went back to the pharmacy. I demanded to see the drug insert. There, the 3rd ingredient listed was "starch" -- unspecified and, as it turns out, made from wheat. I was so angry!! I quietly explained to the pharmacist the exact nature of celiac disease and the impact ingesting gluten can have on my well-being. I threatened to file a complaint against her license since she lied to me (she couldn't have read the insert!) I also spoke with the pharmacy manager and made sure they understood a law suit would be on them if she ever violated the warning on my records and gave me contraindicated drugs again. Needless to say, they've been very careful since.
  5. Hi! Sounds like lunch is the culprit. I usually react with diahrrea within 30 minutes of ingesting even trace amounts of gluten. Hope you feel better soon! -Amy
  6. Julie, You can also invest in buying gluten-free frozen lunches for on the run at work/school. I do this because I often eat at my desk during the workday. Each week I grocery shop for the lunches I want to eat. Amy's Frozen Foods are gluten-free, healthy, organic, and absolutely delicious. You can read more here: You have to keep your kitchen gluten-free. My partner does want gluten stuff sometimes so he celebrates (in a way) by going out to eat with his friends. Otherwise, he eats gluten-free with me. It's nearly impossible to have restraint if there are gluten-foods sitting around the house tempting you all the time. You have to plan but you can do it. I know, because I travel a lot and I take my gluten-free food with me, too. Here are some planning/time-management tips: 1. make a list of what you want to eat that week. 2. from your list of what you want to eat, write another list of all the ingredients--this is your shopping list 3. plan to grocery shop one night each week and dedicate that time to shopping (it will take a while to read labels, etc.) I usually cook 4 nights out of the week and eat leftovers the other 3 nights. Plan to cook on your least busy nights (mine are Tues, Thurs, Sat, Sun). If you don't have storage containers on hand, buy some so you can store the leftovers. You can do it! cheers, Amy
  7. Ate Gluten By Mistake

    Hi! I have discovered that the longer I am gluten-free, the more sensitive I am when gluten does enter my diet accidentally. I usually respond with sickness within a 1/2 hour. My physician believes this is tied to the auto-immune part of celiac disease, meaning that the antibodies are not present because I have been on a gluten-free diet. This means a more severe response by my immune system when gluten is presented in the body. To answer your other question, I take charcoal for the diarrhea. It is much less constipating than Immodium or other OTC stuff. Anyway, I am religious about my gluten-free diet. However, I have had a very busy 5 weeks with travel (for work) and other stuff. I have inadvertently eaten something with gluten in it for 5 weeks straight. I can only assume that I'm being given misinformation when I ask questions, etc. I'm so bummed by this. I'm exhausted and I ache all over. And, I'm really pissed right now for even having celiac disease! (It's been 30 years since my diagnosis.) AUGH!! Thanks for letting me vent!