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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity

    Lisa Kaye

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    About Lisa Kaye

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    1. Lisa Kaye added a topic in Celiac Disease - Doctors   

      Phila - Jefferson Univ Hospital Celiac Center
      I was dx'd two years ago with Celiac and have been followed by a very good GI doc, although she doesn't specialize in Celiac.
      I read about Jefferson Univ's Celiac Center in the newspaper. Made an appt and here's a summary of what they did on visit one:

      1. History & very brief exam, weight, height
      2. Extensive questionairre completed for their research database
      3. Blood work: They drew 20 vials of blood for various tests (to check for vitamin & mineral deficiencies). Thankfully I'm insured!
      4. Prescription for nutritionist consult
      5. Prescription for a bone density scan
      6. Follow-up appt made to review lab findings

      The specialist said their main purpose at the Center is to make sure every Celiac patient sees a nutritionist, gets a bone density scan, has bloodwork to find any vitamin/mineral deficiencies so patients can be supplemented properly. And finally, he said the most important thing I can do is get all of my 1st degree relatives to be tested. He recommends celiac patients be seen in the center annually.

      I'm glad I went and am looking forward to getting the lab results. However, going to Philly is such a pain --no parking, traffic, etc.
      And this Celiac Center is located inside the hospital and the center is under construction. Plus, they were understaffed in the receptionist area and borderline rude. The nurses and doc were very nice though. I was shocked how many people were waiting in the waiting room -- kinda comforting on some level (misery loves company?).
      • 0 replies
    2. Lisa Kaye added a post in a topic Biopsy Confirmed Celiac Waiting On Blood Work-Overwhelmed   

      I've recently been to the Celiac Center at Jefferson Univ Hospital in Philly and the specialist
      said some celiacs have difficulty with swallowing. In fact, my cousin's only symptom was difficulty with
      swallowing --which lead her to a GI doc to investigate and ultimately she was diagnosed with Celiac.
      • 0
    3. Lisa Kaye added a post in a topic Gallbladder Gone! But....   

      Sandrad - thanks for your reply. That brightened my day, as I've been imaging all these horrible diseases.
      Or, wasn't sure if it's Celiac rearing its ugly head, in spite of trying to
      stick to a strict gluten-free diet. This is all such a pain in the butt (pun intended).
      Thanks & have a nice weekend!
      • 0
    4. Lisa Kaye added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)   

      Gallbladder Gone! But....
      Two weeks ago I had my gallbladder out for the following reasons: low ejection fraction (8%), Upper Rt Quad pain, loose stools --all for about 3 months.
      I have to say --the surgery itself was easy; laproscopic --home 3 hours after surgery and recovered at home. Felt great 1 week post op; week two --
      I am having cramping and pain in the upper rt quad again. Now I'm wondering if I made a mistake in having the surgery. The good news though --
      stools are back to normal.

      Has anyone had a Lap Choly and still had pain in that area afterwards? I'm hoping it will go away after a few weeks of healing time.
      Keeping my fingers crossed.
      • 3 replies

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