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cy7878

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About cy7878

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  1. Have yo thought about asking your doctor to check all your vitamin levels? The problem is that there is current no standards in terms of blood work to follow people once they are diagnosed with celiac disease as I'm sure you are aware. Some people will order every test under the sun while others will wave their hands and say good luck. The problem with celiac disease is that malaborption is so prevalent, you may not have much symptoms of digestion, yet show signs of vitamin and mineral deficiency. There are ample evidence now that vitamin supplemention is a good idea in anyone with gut problems. The usefulness in "healthy" individuals may still be debated, but more and more nutrition oriented docs are recommending it to their patients and taking Vits themselves. Sometimes it isn't just Vit A E D K, but minerals like zinc, copper, iron, mb and iron. Good luck
  2. I would bring a copy of the latest Nation Institutes of Health Consensus http://consensus.nih.gov/2004/2004CeliacDisease118html.htm to your appointment. No where in the article will say a stool test is diagnostic for celiac disease, and it offers the lastest scientific recommendation to test for celiac disease. Believe me, an informed patient is impossible to argue against for your doctors. As for the enterolab stuff..... do you really believe that a lab that "opens" to public without doctor's oders can really reasonably be that useful? I would suggest sticking to the current guidelines and ask, like others said, nicely but firmly to have the proper tests done. If not, it's time for a new doctor. Regards
  3. The endomysial is the better test to get. The reason tTG is done more often is because the lab charges twice as much for EMA than tTG ($135 vs $70 as priced by Prometheus Labs). The EMA is also more "operator dependent" meanig the results intrepretation is dependent on the lab that does them and is more difficult to do it right. As with all serological based tests, a negative may not be definitive. In general, to be completely sure of one's condition, the "panel" of tests that should be done are: serum total IgA serum tTG and/or EMA IgA some doctors will also order the genetics test to look for HLA-DQ2 and DQ8 to see if the person even have the genetic predisposition to get celiac disease which is about 99.9%. and if any of the above tests are abnormal, to get the biopsy done by experienced endoscopist who knows what they are looking for. Regards
  4. 6 pieces is usually what is recommended in looking for celiac disease.