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Spartan89 added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsHave I Been Diagnosed?I'm starting a very rigorous 12 month nursing program in a few weeks and I want to be able to register with my school's disability support center to make sure that I can bring my own food everywhere, have frequent bathroom breaks if I'm accidentally glutened, etc. To register, you need evidence of an official diagnosis.
When my doctor told me I have Celiac back in August, he was basing this off of a high level of anti-gliadin IgA antibodies. He is more of a holistic doctor, so he told me to begin the gluten-free diet without mentioning a biopsy. I was also uninsured at the time, so I likely would not have been able to afford one. So, my question is, can a doctor officially diagnose celiac based on one test? My school requires "a diagnostic statement written using the diagnostic taxonomies utilized in the International Statistical Classification of Diseases and Related Health Problems of the World Health Organization (ICD), the State Department of Rehabilitative Services or other State agencies, or the Department of Education". They also require "a description of the diagnostic tests, methods, and/or criteria used".
I hope that I qualify...I really want to do this nursing program, but without accommodations I am horribly nervous about getting glutened and being late for clinicals or something because I'm stuck in the bathroom throwing up (you are docked half a letter grade for being late even once!)
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Spartan89 added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsCeliac And Lyme-So Confused About What's Causing My Symptoms!Ok, I apologize ahead of time if this gets long or confusing! I was so excited to find this forum, because I have been sick for so long.
Basically, I was diagnosed with Lyme disease in July after being sick for 2 years. My symptoms include:
-An episode of fainting in the shower after eating 3 pieces of pizza. After fainting I had diarrhea, panic, and sweating. This was the first symptom I had, I felt normal prior. I went to the hospital and was told I had mono. After that episode I haven't felt normal since
-Shortness of breath
-Burping, up to 75 times/day. Sometimes acid comes up, and burping will relieve the shortness of breathe
-A stomachache every 1 to 3 days with diarrhea and constipation in between. Frequent nausea
-A "surge" feeling that suddenly shoots through my body and makes me gasp for breath
-Vision feeling off, like depth perception isn't right. Sensitivity to light
-Panic, anxiety and depression completely uncharacteristic of me. Would often onset after eating. The depression would strike suddenly and go away quickly
-Trouble sleeping; often wake up an hour after falling asleep in a panic
-Feeling like it's hard to talk/form words; feeling out of it
-Hunger pains/gnawing in stomach after eating
-Feeling like my body is exhausted while my mind is wide awake. I often feel like my eyes want to close even though I'm not sleepy. This makes it almost impossible to drive
-Freezing cold hands and feet, especially after eating
-Sudden extreme fatigue, like I can't even move. It comes on without warning and then will usually disappear suddenly several hours later
-A vague sense of hopelessness that strikes suddenly and goes away quickly
-Trouble keeping weight on: 5' tall and 92lbs
-An active mono infection that lasted two years
I've had other symptoms on occasion too, but I don't want this to turn into a novel
After I tested positive for Lyme, I went on antibiotics for a month and a half. I didn't feel any better though; if anything I felt worse. I was off them for a month and continued to feel worse than before. At my most recent doctor appt, I was told I have Celiac based on a saliva test. I'm not sure how reliable that is....I had never heard of a saliva test for Celiac. On my lab results it looks like this:
Gliadin Ab, SIgA (Saliva)- 16 (Positive = >15)
Also, I had occult blood in my stool sample, and my Total Intestinal SIgA was 39 (Low = <400)
i really have no idea what these tests mean, but my doctor says that I have celiac based on them. If I really do have it, I'm wondering how many of my symptoms were caused by it rather than the Lyme. I never had classic Lyme symptoms- no joint pain, swelling, or swollen lymph nodes. I'm kind of wondering if maybe I was just carrying the bacteria (which a lot of people do without getting sick) and actually suffering from celiac all along. I have had severe gassy stomachaches with alternating diarrhea/constipation since about 10 years old.
I'm just so torn about what to do! I don't want to kill my stomach anymore with strong antibiotics if I don't need them. But, I also don't want to not take them if it is Lyme causing my symptoms. I just started a gluten free diet 3 days ago, so it's a bit soon to know if that will help. I'm also finishing up my current prescription of Flagyl just to be safe. Any thoughts? Can celiac cause my symptoms, and did I actually have reliable tests done? Thanks for reading through all that, I know it was long!
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