atzmmommy replied to atzmmommy's topic in Celiac Disease - Friends and Loved Ones of CeliacsThank you for all the advice. I will make these suggestions to her, especially taking her own bread. What kind of lawyer would help here?? I'm not sure we could get an accurate diagnosis at this point since it has been 2.5 years since she has eaten much gluten. Does anyone have ideas on how she can put on pounds?
atzmmommy posted a topic in Celiac Disease - Friends and Loved Ones of CeliacsI need advice. My daughter has been following a gluten free diet for more than 2 years. She has suffered from bowel pain since birth, but it took 15 years of trials of diet change and different medications/supplements before she did a gluten free trial. Within a week of going gluten free, her moods had lightened and the pain had almost vanished. She has never been formally diagnosed with celiac disease because her pediatrician took the stand that we could do a biopsy to confirm our self-diagnosis, or, if not eating gluten alleviated her symptoms and made her feel better, she should simply not eat gluten. I thought that was a better choice than an invasive biopsy. She just started college, at a very un-supportive campus. She has found that the dining hall staff is uneducated about gluten -- they can't tell her if something is made with it because they don't know what it is -- and most entrees are made with sauce and/or breading. She is eating fresh fruit, salads with beans and cheese, peanuts and peanut butter, yogurt, etc. She does well at breakfast where there are eggs, grits, and a few other gluten free dishes. There is a place on campus that is serving gluten free products, but it is not available with the meal plan swipes and is not in a convenient location for daily visits. She has tried to get gluten free bread from the dining hall, but it takes them too long to get it for her. By the time they have retrieved it, her friends have finished their meal and are ready to leave. All that being said, she is having a hard time keeping weight on. She lost some weight over the summer after working at a church camp where the food options were limited also. She is 5'8" and is down to around 115. She is an athlete -- loves working out, running, etc. She grew up as a competitive figure skater, has a black belt in karate, and dances. She has joined the ultimate frisbee team and loves it. The problem is that she jammed her finger during move-in weekend. When she sought help from the health center, they said there was something terribly wrong with her, drew a lot of blood -- found nothing wrong, of course. Now they are forcing her to seek help for her "eating disorder." They have told her that if she doesn't comply with gaining weight, they will remove her from the school. She is maintaining that she has no eating disorder. She has not seen a doctor to give that diagnosis, but has been sent to nutritionists and counselors at a local eating disorder clinic. She is being forced to make these appointments even when they conflict with classes and yesterday missed a test and is having to take a zero. Any advice???