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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About Sheely

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    Sheely's Activity

    1. Sheely added a post in a topic Glucose In Urine   

      Yes I know I'm not supposed to cheat, but you know what they workers are the worst patients, lol. No, seriously, I've been having a hard time accepting that I have celiac disease. My doctor told me that my blood work was "suspicious" for Celiac, and told me to see a GI doc. My Antigliadin AB IGA was 27, but all the the other blood work was negative for Celiac, thats' why my doc said "suspicious."

      Anyway, I went to see the GI doc, who wanted to do both an endoscopy and colonoscopy. I got so bent out of shape about the tests, that I decided to cancel them. I figured I'd just stay gluten free and be done with it. But now the questions are popping up in my head - what if I don't really have celiac disease? Yeah some blood work was positive, but some was negative, so how do I really know? This makes it easy to cheat, I guess. I guess if I had a more definitive diagnosis, I'd be more strict with my diet. Now I'm wishing that I had gone through with the endoscopy.

      I don't have any symptoms of diabetes at all. My blood sugar has always been in the normal range. And no, there were no ketones showing up on the dipstick. So, I don't understand it. I brought the urine dipsticks home with me so I can check it again. Maybe it was just one of those flukey (is that a word?) things.


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    2. Sheely added a topic in Celiac Disease - Related Disorders & Research   

      Glucose In Urine
      I have been having frequent urination recently, so today I decided to do a urine dipstick on myself to see if I could have a urinary tract infection. I work in the medical field so I have access to various testing supplies.

      When I did the dipstick, it showed no blood or white blood cells, but I was very surprised to see that my urine glucose level was high. I've never had diabetes, and don't have any of the risk factors, so this really confused me. I decided to check my blood glucose level via fingerstick, but it was totally normal at 96.

      I admit, I have been cheating alot lately (I know I'm so bad). I'm wondering if this high glucose level in the urine could be related to Celiac, and not following a gluten-free diet.

      Does anyone have any information?


      • 3 replies
    3. Sheely added a post in a topic Stomach Virus Or Cd?   

      Oh gosh, that's horrible, you've been through so much! I'm glad things seem to be stable now. I hope it stays that way!

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    4. Sheely added a post in a topic Stomach Virus Or Cd?   

      Mel, I hope you're feeling better today! If you don't mind my asking, I saw in your signature that you were misdiagnosed with endometriosis. How did they misdiagnose you? Didn't they do an abdominal lap? Did you have the total hysterectomy because of that?

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    5. Sheely added a topic in Gluten-Free Foods, Products, Shopping & Medications   

      In my quest for bread that doesn't taste like my shoe, I was reading about bread made from spelt. In a nutshell, I learned that spelt does contain gluten, but the protein is different than that of regular wheat gluten, and is easier to digest and can be tolerated by some Celiacs. So I went to Whole Foods and got some spelt bread, and a loaf of tapioca bread. (I'm so done with white rice bread). The spelt bread looks, feels, and tastes just like regular bread. I only ate a very small piece, because I didn't want to risk getting sick. But so far, I'm fine, no problems at all.

      Has anyone else ever tried bread made from spelt and had success with it?

      • 4 replies
    6. Sheely added a post in a topic Adventures In Celiac World   

      When my son was in high school and not driving yet, I had to drop him off at school every morning (About a 20 minute drive). Having the intestinal problems that I did, I knew where all the bathrooms were along the route.

      Well, this one particular day, the abdominal cramps hit me suddenly, but I was already on the beltway and nowhere near a bathroom. I was sweating and nauseous, but determined that I would make it home. I was trying to concentrate on something else, like the song on the radio, and I even did some breathing exercises I remembered from Lamaze class, lol.

      The closer I got to home, the worse it got! I was about 1/2 mile from home, and realized that I might not make it. To turn the tables in my favor, I got on my cell phone and prayed that my husband hadn't left for work yet. Yes! He was home! I asked him to please get up, unlock the front door, and hold the door open for me, because every second counts in this situation! When I pulled up in front of the house, there he was standing on the porch holding the door open for me.

      I didn't bother to park my car all the way, I just threw it in park, turned the engine off, and tore into the house and up the stairs. As they say on "The Family Guy," it was a photo finish, lol!

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    7. Sheely added a post in a topic Glutened By Fritos Corn Chips?   

      I was so disappointed when I realized that BBQ Fritos have gluten in them. I have always loved them! But I found a good replacement - UtZ BBQ corn chips have no gluten in them. For some reason, UTZ BBQ corn chips aren't as easy to find, though.

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    8. Sheely added a topic in Celiac Disease - Coping With   

      Stomach Virus Or Cd?
      Ugh do I feel horrible. I had to take off from work today, I feel so bad. All day yesterday, I was really, really tired, and could barely function at work. Last night I started to feel really bloated, and even more tired. I woke up in the middle of the night with sharp, stabbing pains in the pit of my stomach, and kept feeling like I was going to throw up. This lasted through the night, then this morning came the diarrhea. The stomach pain is still there, and I still feel very nauseous. I tried to eat a gluten-free cookie, but as soon as I did, my stomach started to hurt even worse.

      I don't know if I accidentally ate gluten, or if this is a stomach virus. I know my father wasn't feeling well on Sunday, and he had symptoms of a stomach virus. I guess you don't really know for sure, you just treat them both the same way.

      • 20 replies
    9. Sheely added a post in a topic Grieving For Food   

      I am not a great cook either, it's just something that I never got deeply into. I don't have a clue how to use a bread maker, but I am considering getting one, since this disease is going to be with me forever. Are they hard to use? Any brands that you would recommend? Will the process be different since you have to use gluten-free flour?


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    10. Sheely added a post in a topic Grieving For Food   

      I've never heard of them, but I will definitely check them out. Thanks!

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    11. Sheely added a post in a topic Grieving For Food   

      I haven't found a gluten-free bread that I like yet. I tried to make a hamburger the other day with Ener-G white rice bread, and it was so godawful, I had to spit it out. Gross, but true. I have had gluten-free spaghetti, it was okay, but kinda mushy. I tried gluten-free elbow macaroni, and it was terrible. I put it in my dog's dish, and even she wouldn't eat it! My son thought that was pretty hysterical.

      I know I have to keep looking for the good stuff, but all of this trial and error is frustrating and expensive.

      I know I have to deal with it, I'm just venting. As my boss would say, "it is what it is!"

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    12. Sheely added a post in a topic Grieving For Food   

      I will definitely check them out. I miss my onion rolls!


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    13. Sheely added a topic in Celiac Disease - Coping With   

      Grieving For Food
      I'm going through this stage where I am having alot of trouble accepting the fact that I have Celiac and can't eat my favorite foods. Not to mention the fact that gluten-free foods taste horrible.

      I just read the ingredients on barbecued Fritos. It has wheat glutens in it. Do you know how much I love barbecued Fritos?? I used to make a ham sandwich on an onion roll, and smash the barbecued Fritos between the bread. Now I can only eat plain old ham.

      Twizzlers, they have wheat in them. Who did that to me?? I am dying for a pizza right now. This place down the street from me is famous for their pepperoni pizzas. They are soooooooo good. Can't have them anymore. Yeah I know, I can make my own pizza with gluten free pizza crust, but it's not the same.

      I'm just really sad/angry/depressed right now.

      On a positive note, I did find a liquor store not too far from me that sells Bard's Tale beer. Haven't bought it yet, though.

      How do you cope? How do you deal with the cravings? What do you do when you are pms'ing and just want a greasy cheese steak sub?

      I've been good though, I haven't given in at all, because I know I have to be strong. If I give in once, I'll give in again, then I'll just give in altogether. Can't let that happen.

      • 50 replies
    14. Sheely added a post in a topic How Cool Is This?!   

      That's really neat! I need this in real life, lol!

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    15. Sheely added a topic in Gluten-Free Restaurants   

      Dinner Meeting - Help!
      I just found out that I have an Advisory Board meeting on Thursday night at a restaurant. It's either going to be at the Olive Tree or Olive Garden, I can't remember which one (left the directions at work). My work requires that I be there, since I am the Program Coordinator for which the board is advising. We used to just have these meetings at work, but somebody decided to get fancy and have a dinner meeting at a restaurant.

      Here I am, a lactose intolerant celiac, going to an Italian restaurant. I really don't want to draw attention to myself and take a long time ordering food. So how do I go about this? Bring my own peanut butter and jelly sandwich on gluten free bread? ACK!

      • 4 replies

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