This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
Hi, I was finally diagnosed by Dr. Leila Zachrison in Fairfax after visiting untold numbers of gastroenterologists and told I had IBS. Finally someone who understood and tested me for Celiac. She got to the bottom of all my problems where no other doctor could. She is a traditional M.D. (rheumatologist, internist) but trained in integrative medicine. She and her staff are amazing and can really help you if you have more going on than just celiac. I got to a point where I could no longer work and needed a doctor that took insurance. I found a Dr. Robert Ducati in N. VA not for from Tysons Corner in Merrifield. He is a Functional Medicine doctor, chiropractor and nutritionist! We like him a lot. Not the same as Dr. Z but also very good! I would recommend them both. They will help you get better through diet, supplements, and getting to the root of the problem instead of just writing a prescription. Your visits with them are frequently an hour long, not 10 minutes.
I was pleased to hear you no longer need the ativan! I begged and my doctor finally gave it to me. I was cautioned to only use it every now and then as it is addicting and the more I used it the sooner my body would build up a tolerance to it. I've been taking it only every third night or so but after last night I am about to go nuts. I have been lying awake until about 3 and then finally sleeping, unable to get up until 10-11. Last night all I did was toss and turn the ENTIRE night. I am 53 and have had insomnia for over 30 years. I used to take Elavil for both pain and insomnia until it stopped working. Now that I have RA pain that isn't responding to the appropriate meds it is keeping me up more and more.
I only have .25 mg tablets which I quarter!!It is enough to make me sleep within 20 minutes and for the whole night.
Hi emmysweet, giving up soy for me was very easy, one because I was now allergic to it and two, I learned that 90% of the soy produced in this country is GMO. That did it for me. No way was I ingesting that stuff. My doc has me on totally organic, non-gmo food. No plastics and no microwaving. She asks me to not be near car exhaust or smokers, things I did already.....
Learning how to eat was very stressful until I figured it out. I substitute the flour I get at Whole Foods....Jules gluten-free Flour mix. It really works great and I don't notice any difference in taste. As long as I stay with UNprocessed foods, wheat and soy, I'm good.
Now I am trying to tackle the gluten-free drugs thing. Not easy when the ingredients list doesn't specify wheat....
Hang in there.....
FYI, 90% of the soy produced in this country is GMO (genetically modified and considered "round-up ready"). This is totally not a good thing to be ingesting, especially in children. For more information go to Mercola.com
Try going to www.glutenfreedrugs.com
It is run by a pharmacist and he even lists within a specific drug which manufacturer is gluten-free and which isn't!
It's a good place to start. I have written to him about this issue but he is away at a conference so haven't had a response yet.
Most pharmacists are too busy to look beyond the insert that comes with the drugs.
ALL the biologics have the "possible" component of gluten but there is no way of knowing which lot could be gluten-free!!
I'm going to check with the company that sends me my Enbrel to see if they could ask for the lot that was made with gluten-free ingredients. I'll probably have to ask the doctor to write it into the prescription.
Hi~ I'm new here to this forum. I'm so glad I found it as there doesn't seem to be much information out there for people with RA and food allergies. I have RA/Reiters and Celiac (positive for 2 out of four genes). I'm 53 and female.
If you go over the alphabetical list you will see lots of medications that are ok to take. Plaquinel is OK as is leflunemide. But, entirely missing from the list is ALL of the biologics and methotrexate. I have called and spoken to either an RN or a pharmacist with both Enbrel and Humira. The Enbrel RPH told me that they could not guarantee that the enbrel was made with ingredients without wheat. It all depended on the batch and where the ingredients came from.
The Humira RN told me that yes, one of their ingredients used probably has a wheat basis depending on the supplier at the time.
This explained to me why the Humira made me feel worse! Originally the Enbrel worked at the 25 mg dose but I got freaked out reading all the possible side effects and I abruptly stopped it not knowing that doing so could throw you into a flare and that it did!
That is when I went back to Enbrel but bumped up to 50mg. Mtx was added along with Lefleunomide. I've been on Plaquinel now for about 1 yr with no problems noted.
But, ever since starting the Humira I got strange symptoms. Back to feeling glutenized plus nausea, dizziness, insomnia, early flu-like headache/fever, unable to wake up in the morning. These symptoms persist even after I changed to the Enbrel so I am thinking they are being aggravated by the other drugs with a gluten component.
I was diagnosed celiac first and then RA later so obviously the diet didn't prevent the RA symptoms for me. I'm not sure what to do now that I know all the drugs available except for plaquinel and the steroids have a gluten component in them. Where to from here?
I eat all organic/non-GMO gluten-free foods. No plastics are to be used and no microwaves. Doctors orders. I rarely eat out as notihing on their menus matches my requirements. It is the occasional meal at families homes that carries the risk even though they are mindful. I don't think they really understand just how careful I need to be.
BTW, my youngest daughter has Lupus and fibromyalgia. She was really sick there for a time and spent most of it in her bed. Still, she managed to finish college. I was so proud of her. She has now found out that she carries the same two genes for celiac that I do. Her symptoms were just different than mine. She also found out that eating gluten when you are celiac can screw up your fertility.
Thank you all for being here in this forum and talking about this issue. There doesn't seem to be much research into this, only that a gluten-free diet helps with inflammation, not about them being concurrent. I'm glad to have found you!
I don't think you are. Throughout my 20's, 30's, 40's I was told I had IBS. I suffered from many other things as well. Chronic sore throats, Migraines, insomnia, chronic fatigue. Then I started to have pain everywhere. I was told it was fibromyalgia. Then a doctor tested me for Lyme and said I had the antigens for it so I must have had it at some point many years prior. Then a new doctor I found for the Lyme tested me for food allergens. Turns out I have two of the genes for Celiac and test positive for soy as well.
First things she did besides having me remove the allergens was to have me go organic and get away from all pesticide residues. She also said not to use plastic for anything and no microwaves for cooking, etc. I have done that. Going gluten-free made such a huge difference for my digestion. The migraines are gone. I wish I could say all the symptoms are gone, but they aren't. She says it is because I spent so many years eating gluten and soy that I have damaged my intestines.
Now, about 1 1/2 years ago she diagnosed me with RA/Reiters Syndrome. Reiters is an RA like syndrome where it appears after a major infection.
The sad part about having both RA and Celiac is that the biologics (injectible auto-immune drugs) are ALL "possibly" contaminated by materials that Might have come from Wheat sources. They cannot guarantee them to be gluten-free. That wipes out a complete group of drugs used to treat RA. Amazingly, not a one of these drugs lists the possibility of wheat in their ingredients list. I have complained to the FDA but got no response. I've called the drug companies and complained to their pharmaceutical customer service people.
I'm not finding much information so far on RA/Celiac disease. I'd love to hear about it if you do~