TeganGF posted a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsHello everyone, I need some advice, as I do not know anyone with celiac... I have always had what I thought was a sensitive stomach. I never knew what would trigger it, but I knew one thing was dairy. When I was about 11, I had a flu shot and I had a reaction for almost a year. I would get hives all over my body and get swollen. I had an allergy test done and they said I was allergic to dairy, eggs, and wheat. My parents said I had always been able to eat those things and they took me to a new doctor who put me on an allergy med to stop the reaction. Since then, I am now 27, I have always gotten swollen hands and random hives on my body and face. When I was 20, I was hospitalized for 3 days for a stomach infection (more specifically my cecum) and they said they didn't know what caused it. Then about 6 months ago, I had bad pains and started throwing up. I went to the hospital and they said I had ovarian cysts and colitis. THey gave me medicine for it and I followed up with my OBGYN. Then about 2 weeks later after I finished the medicine, my stomach got swollen again and I was having shooting pains. I was sent to a GI doc. By this point, I had basically stopped eating because I felt so bad. I lost 15 pounds in 4 weeks. From my past he suspected Chrohns. I had an endoscopy and colonoscopy. I was told I had inflammation of my small intestine and a small hiatal hernia. They also took a biopsy of my small intestine to test for celiac. I did not hear about my results for 2 more weeks because my doc when on vacation. I had still not been eating anything. When he came back, he said the results came back inconclusive and he would do a blood test. Another 2 weeks passed before that and I still hadn't been eating much of anything. My test results came back fine. He said I had IBS and wanted to put me on a medication that I take 4 times a day and causes weight gain. I said I would prefer to fix it with diet and he said it wouldn't help. I refused and left. I went gluten free and the shooting pains stopped. I was still swollen though and I also cut out dairy. SInce I have done this, I feel great. I also have not had any hives or swollen hands. My ovarian cysts I was getting monthly and have subsided (although I was put on new birth control pills). After reading more about celiac and some of the related symptons that I have had (teeth enamel problems, ovarian problems, lactose, arthritus, etc.), I feel I may have celiac. I am already doing a gluten free diet, so I wasn't sure if it was important for me to get diagnosed? What do you think??? Please help!