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thegirlsmom added a topic in Celiac Disease - Parents of Kids or Babies With Celiac DiseaseWhite PooHi I have a question for you all regarding my daughters stool.
This past week we left my kids at their grandmothers house for a few days, where I am pretty confident they got glutened. My daughter who is suspected celiac but not confirmed, has had belly aches since she got home on Wednesday. She is now pooing this lovely stool that resembles white playdoh. I have never seen anything like this before! It sinks, doesn't float, and I don't see any oil droplets anywhere.
When I google white poo, I get all sorts of liver diseases and gallbladder issues.
I know pale stool can be a symptom of celiac, could anyone tell me if they have had this experience before, or if I should be concerned about bile duct blockage?? And how white is indicative of celiac??
Thanks, I am trying not to freak out here.
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thegirlsmom added a topic in Celiac Disease - Coping WithNot Sure What To DoHi,
I have been experiencing some symptoms, which I know can be due to so many different things and I was hoping you all could lead me in a direction to persue.
2 1/2 years ago I was led to a celiac diagnosis because my Alopecia Areata was getting stronger and lasting longer. Going gluten free not only stabilized my hairloss, but it also regulated my hormones(I was told a few years earlier- at 33 - that I was perimenopausal). At the time I had my thyroid checked because I do have a family history of thyroid disease - it was negitive.
Since being gluten free I have felt like a different person and none of those issues have been the least bit of concern until recently. I had even convinced myself that the perimenopausal diagnosis was wrong and it was all part of the celiac.
It seems like overnight everything has changed. I fear what my hair is doing because it feels like it is just falling out all over. I have stiff joints, muscle pain, headaches, fatigue, anxiety, mood swings, and last month my period was about 2 1/2 weeks late, which I know are all symptoms of menopause and knowing that the Dr used the perimenopausal word 5 years ago......I am 38. This month I am 3 days late but waiting, which is why I am here for help.
Generally my biggest glutening symptom is fatigue and grumpies which ends in a couple weeks. Otherwise I am asymptomatic.
I have been under a lot of stress.
I am not sure if I should persue thyroid testing, go see my gyno, relax and assume it's stress, or try to figure if I am getting contaminated somehow.
I know stress can cause flare ups in a lot of autoimmune diseases, can it cause flare ups in celiac?
Any thoughts would be appreciated.
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thegirlsmom added a topic in Celiac Disease - Parents of Kids or Babies With Celiac DiseaseTeeth ProblemsHi my daughter is getting her 6 year molars in and I just looked at them and they are coming in soft and a brown grey color. Now when I say soft, I mean if I take a fork and rub it on the tooth seems to disintigrate.
Has anyone here seen anything like that? My daugther does not have an official diagnosis of celiac, but I have enough suspicions that she is strickly gluten free and dairy free right now. She has only been Gluten free for the last year though and I know these molars have been in the making for a lot longer than a year.
I am taking her to the dentist as soon as I can get in - they are closed today.
I am a little freaked out about this knowing these are her first permenant teeth. Is this confirmation of Celiac? and is there anything I need to be doing for her now or is too late for her teeth?
FYI - my kids rarely get juice and she always brushes her teeth well ( or I do ).
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thegirlsmom added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)Do I Need To Be Dairy Free?Last January I gave up gluten to see if it would help my Alopecia Areata. Looking back I had a LOT of Cross contamination during the first 6 months but I still felt so much better. The only digestive issues I have ever had (which I have had my whole life) was constipation. I was basically constipated all the time with the exception of right before I ovulated and right before my period - when I would get so sick I would vomit. When I went gluten free, I became miraculously regular and had no cycle related stomach issues.
In July, I went to a naturalistic doctor to see about my Alopecia - I was still losing hair. She ran some tests and said I was likely celiac and needed to go dairy free as well. I have been dairy free ever since. I am still regular but twice a month again I get diareah!! I feel like I drank a glass of magnesium sulfate water for a whole day and then the next day I am all messed up. It seems like the same cycle as before I was gluten free but to the other extreme!!
Is there something I am missing here? Maybe a vitamin or mineral?? The last few days I have tested myself with a little dairy and at first I felt a little gassy, but other than that I feel great! And my stool is well formed again!
I almost feel like my body needs the dairy to balance something out.
Oh and 60% of my hair has grown back since August.
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thegirlsmom added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsBest Method Of TestingMy husband has been having some digestion issues over the last 3 months and we are planning on doing some testing come the first of the year. Over Thanksgiving I talked to his family and found there to be a family history of colon problems including: His Aunt just had some of her colon removed, his cousin recently went to the er with a ruptured colon due to diverticulitis, his mom won't admit to anything but has always struggled with c and hemmies, and his brother is currently having issues and going in for test the first of the year also(I found this out through his wife-he won't admit to it.)
So back to my hubby, he feels very inflamed in his colon and get fever blisters any time he gets contaminated. I have celiacs and so our house is mostly gluten free but when we say eat steak at a friends house, I will react and he reacts stronger!
So I guess I have 2 questions:
Does anyone have "inflamation" in their colon when they get contaminated? Or do you think it sounds more like colitus (he has no D but many of the other very typical celiac symptoms of fatigue, excessive foul smelling gas, anxiety, brain fog, anemia, etc. that last's about 2 weeks from contamination and then goes away)?
And: what tests should I request from my DR? Or should I just go to enterolab myself? The expense will be out of pocket one way or the other.
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