This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
Although I have not monitored it, I also get really cold when I am glutened. I also have an autoimmune condition (or two...). I have fibromyalgia and have been suffering from autoimmune hives since early December. Interesting... Next time I am unfortunate enough to be glutened I will take my temp.
I hope you feel better soon. So tired of "just take a Tylenol" type reactions. With my doc it's "take as much pepto and gas x as you need". Too bad I can't pour it over the DH I get on my face!! Ugh!
You guys are awesome! Thank you all for the great advice and humor! I loved it all!
I've been ok actually. A lot better than I expected. Not sure what curbed the effects, but I definitely wasn't slammed as hard as I expected with a reaction. Of course things are a little "off", but I guess I'm sort of used to that.
How interesting about the l-glutamine and charcoal! I will have to pick those up "to add to my arsenal" as my mom says. Also interesting idea about scotch! Mom did suggest a hot toddy... ( warm water or tea with lemon and scotch) and I laughed at her. Now thinking about it, that might be a great idea!
Thank you again, and I'm so glad that others seem to have found this useful to start their own "arsenals" for combating a reaction!
I have been gluten-free for around 18 months, and it is now to the point where I don't think about it 100% of the time anymore. I have gotten in a decent routine, and am pretty comfortable with it.
That being said, I was glutened today with an amount larger than ever before and got scared and felt really alone. It was awful.
I had gotten away from the site, and this made me realize how much we need each other in this community. Also, I found two gluten-free women in my local whole foods market who put me on the right path.
It's not always easy, but I promise you, it's worth it. Hang in there!
Thanks so much! They were a goldfish type cracker. I am usually so good about checking labels and things, but they were in a boxed lunch type thing, and I thought the outside of the box said it was gluten free. It turns out a different "flavor" lunch was the gluten free one, and only some items in this one were gluten-free. Oh well...
The most frustrating thing was that my doctor had no advice. I also wa at a hospital when it happened so I walked into a "celiac clinic" and asked for some advice as a favor. They also had nothing to tell me. Same from a pharmacist when I went to get some pepto and gas x.
Then I went into a whole foods. I talked to two people, both of which had gluten issues! Finally I wasn't alone. I picked up some probiotics and some gluten-ease 2. Not convinced the gluten ease will work, but I figure it's worth a shot. They also suggested a neem cream since I have an issue with breakouts/dh? when glutened.
I will spend the rest if the day relaxing and drinking lots and lots of water. If I wasn't having some pain/ stomach upset the ice cream would hit the spot! For now I think I'll avoid food.
Although my body is still unhappy, my mind is eased. Thank you all for your support! *hugs* =)
I will keep you up to date. I also have just read that you can buy the microorganisms seperately and add them to your own medium which often times is wheat bran, but you can also use sawdust, or rice hulls. Not sure where I would get these things, but might be worth looking into in the future. I am sure it would end up being cheaper too!
That is exactally what I was thinking, but thought I'd see if anyone else had some insight into it. I figure that the compost process will break down the wheat as well as everything else, so it shouldn't be an issue as long as I am careful handling it. My laundry room is right off of my kitchen, and seems like the perfect place for this sort of thing. They say its odorless, but I still don't want to risk it in the kitchen because of the potential smell as well as the wheat issue.
Ok, so first I apologize if this has too much to do with being gluten-free for this area of the forum, but I wasn't sure where would be most appropriate. I am looking to start a bokashi composting system in my kitchen for fertilizing my garden. The composter is ordered, and I can't wait for it to be delivered. Unfortunately I just realized that the anaerobic micro-organisms that you add to the compost is mixed with wheat germ. Yikes! My kitchen is not 100% gluten-free, and I am not super-sensitive, but this makes me nervous. Anyone have experiance with this type of composting and use of this type of compost in the garden?
So, day 3 gluten free.. and I swear I feel lighter. Not like I've lost weight, just not as foggy and heavy. Pathology results came in today- negative. I don't care, I'm going to continue gluten free. I have to admit I'm a little disappointed at the results, but even the gastroenterologist said that it was possible for me to be negative for celiac but healthier without gluten in my diet. So that's the plan.
Good luck to you guys! It's nice to know that others are going through similar things. *hugs*
...Waiting for the results. The doc said that he didn't see any clear evidence of Celiac, but we will see what the pathology results look like. Interesting that they also found a medium sized hiatal hernia. I'm now on day 2 gluten-free and intend on staying that way regardless of the pathology results. =)
What is it about the report that makes you think that it's already progressed to Lymphoma?
I have yet to have my biopsy, but I am a medical professional (not a doctor). I am used to reading reports, and based on the overall diagnosis listed, it sounds like inflammed bowel with signs of celiac to me. "Lymphocytic enteritis" is an inflammation of the bowel, and from what I understand the damage to the villi is a sign of Celiac.
There is alot of verbage there that discribes in detail what is seen, and most of it is just a standard form of text that is used to make writing reports easier. The important things are typically listed in the diagnosis or impression sections of a report, in my experiance.
It will be interesting to see what the Mayo guys say. Good luck!
I have started using the proactive refining lotion only since the whole line is too harsh for my skin. I have also started using hydrocortisone lotion a few times a day.
It already looks better, and is definately alot easier to put up with.
I also realized that most lotions and cosmetics have the ingrediants on the packaging, not on the bottle or tube itself. What a pain! I guess I'll either have to go to the store with a list, or see if the websites have the info on them.
I am currently undergoing testing for Celiac, and have a endoscopy/biopsy scheduled in 12 days. I have continued to eat gluten, and have been making a point to eat some at each meal.
For the last 3 months, my face has been breaking out (only on the right side) and I assumed it was acne even though I haven't had a breakout like this in years (I am 31). I am now noticing that no acne-like stuff came out of any of the bumps, the breakout started in August and is not getting any better, and now I have an itchy rash extending onto my neck and around my ear. I am starting to question if it is DH instead.
I have been putting Garnier's new dark spot corrector on it, which has a high level of vitamin C in it. It seems to be healing better with the cream, but the rash on the neck is new since using it, although I used it for about 3 weeks prior to the neck rash starting.
I know that there may be gluten in skin products, but where is a list of ingredients I should look for? I have looked through a list of food, but can't find a list for skin products.
Should I just use some cortisone cream on it to cut the itch? What do you suggest? It's getting to the point that people can't stop looking at it, and constantly asking "what's up with your face?" since it's so unusual for me to have such a breakout. I just don't know what to do, since I have at least 2 weeks before I can go gluten free.
So the big day is tomorrow! I am finally going to see the Gastroenterologist. Any advice? Should I prepare a list of symptoms? Any questions I should be sure to ask? I'm not sure what to expect, but I'm excited to get this over with! =)
That much I do know.. but thanks anyway nora_n! I was on it about a year ago for a few months and it stopped working, so they took me off of it, but now they want to try again. It's a bigger dose this time, and although I am good about taking it every night, the fatigue doesn't seem to be going away like it did before. It's been about a month...