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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About baggotlane

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  1. Monica, If you do not feel well fter glutenthen celiac disease may indeed be the cause. For me it is a little different. I get the bloating, diarrhea etc. no matter whether it is gluten or non-gluten food that I eat. Yes, as I said, I ate gluten foods for all those seven months and the 'good' news (if you can call it that) is that I felt no different than when I was gluten-free earlier last year. So, it is still searching time. Right now, I am on a course to eliminate H.pylori bacteria in the stomach following the recent endoscopy. We still don't know if getting rid of that will cure the problem but it is at least worth a try. Andrew
  2. It's OK. Statements made over this medium can sometimes give false impressions. Regarding your question I do suffer from bloating. On its own it's not too bad but, as is sometimes the case, the bloating occurs in the evening time. The temporary non-diegestion of food makes the blood glucose level fall (in a diabetic, I mean) because the food anticipated by the insulin taken is not there. This then makes you compensate by taking carbohydrate to prevent the blood glucose from falling to far. The trouble then arises during the night when the vagus nerve finally releases food stored in the stomach (protein and fats). When broken down into carbs the blood glucose may skyrocket while you are asleep. I have seen this occur but it is too early yet to say wheter it is the cause of the problems I am having. The good news (I am told is that there are now drugs available to handle gastroparesis. Anyhow, keep looking around. I see from your record you have been writing quite a few messages during the past two months. So, I'm sure you'll keep us udated. Andrew
  3. Yes, I was thinking about Lapps who, I had heard used to have diet og fish, reindeer mwet, berries in summer. I other words, no gluten. I'm sure that has all changed in recent years but the cited article was for 16 years ago for a patient for whom the data would have been collected years prior to that. Tanks for your comments. Andrew
  4. Where do you see hostility? I think you might need to review the messages - all of them to get the background. Anyhow, I 'm sorry to hear you're having difficulties. It sounds like a possible sensitivity you may have. There are tests to isolate a variety of foods but it is a lengthy business. But you may be lucky. At least it's worth a try. If you believe you have celiac disease and have been gluten-free for some time then I think you might have to take the challenge. However, I warn you, after you've taken it people here will tell you it is not conclusve either, unless you wait five years! There are a lot of 'experts' out there but the lack of consistency between them is scary. Of course, it is a difficult condition to diagnose correctly so that divergences of opinions are only to be expected. If you had endoscopy and coloscopy did you not get a biopsy to see whether the stomach walls had been damaged? And why gastroparesis - are you diabetic? If not, then that ailment is not so bad. But, if, like me ( a lifelong Type 1 diabetic) it is a very big deal. To answer your question, tests do not show any food sensitivities. I can eat anything, within reason, without any direct sympoms. The effects of eating - anything, ends up the same way. One other thing you might think of in your condition. See if you have H. pylori bacteria in your stomach. This is not at all uncommon (far more so than celiac disease) and can give rise to a variety of digestive problems. If you have it then then you can get it eradicted.
  5. Alberto Scam

    I have recived the same message. It showed up in a different format here, overriding all other messages. Can junk mail software not cull out these items? Andrew
  6. Thank you for suggesting me to read this article. I had seen it already. It did not sway my conclusions on the subject. Sure, a Finn boy sixteen years ago, after returning to a glutenous diet provided a negative biopsy up to five years later. I don't think that proves anything. There are plenty of people who live in countries (including Finland) where consmption of gluten is low or even near zero (Lapps, for instance or Esquimaux - al least until very recently) who may inadvertently have not consumed gluten for a period. To make the case that they needed to be on a western-style diet of gluten consumption for five years in order to prove the celiac disease was behind it all is really pushing a rather weak premise. The second paragraph of the article you cite is more reasonable "Some people with celiac disease will experience a return of intestinal damage within a few weeks of consuming relatively small amounts of gluten. Such brief challenges are valuable for these individuals. However, many people with celiac disease or dermatitis herpetiformis will require much larger doses of gluten, over much longer periods, to induce characteristic lesions on the intestinal wall." I can subscribe to these statements. However, for me as I have pointed out in prior messages in this thread, a full-blown gluten ingestion for seven months caused no worse a condition than the gluten-free diet did. This makes me feel that the celiac disease hypothesis is weak, at least in cases like mine. Instead, investing time by seeking alternative causes seems to be far more practical. Unlike many people who seem wedded to celiac disease as a lifestyle I cannot spend five years twiddling my thumbs and hoping the odds will favor non-celiac disease. There are a number of other non-celiac disease possibilities that can be addressed more rapidly. Incidentally, fecal tests were also all negative. Andrew
  7. \ Yes, I have been tested (two weeks ago) for colitis (including the types indicated). This was also done 8 monthsago. Absolutely no signs. Chron's disease has not yet been tested for. Of much higher probabilities are bacteria (one type was found that might be contributory but we shall see) or a long-term diabetic condition known as Gastroparesis - nasty if you are diabetic and trying to maintain stable BG levels. Thanks for the suggestions.
  8. Thank you, MaryAnn for a pleasant reply. I fully ascribe to what you are saying. Most people here do try to be helpful to each other but avoidance of reality checks is not being helpful. I recall being told here before I decided I had to get off gluten-free to get endoscopy done that one month to wait would be OK. Then it was 2 months, then 3. So, I gritted my teeth and went for 7. I daresay there will be some who think it might take a lifetime. There is a definite need in this group to face the reality that there are wide differences and that not everyone has gluten sensitivity or celiac disease. Bye for now, Andrew
  9. Thank you all for the replies. They were not what I had expected. You seem to think that just because of genetic factor and chemical tests (full battery of them by two doctors), little to no improvemennt under a gluten-free diet, followed by 7 months of a full gluten diet, followed by recent surgical biopsies, that I may still have celiac disease or, as a minimum, be sensitive to gluten. How much more evidence do you need?! Let's be practical. There is no point in pursuing the celiac disease suspect, let's move on to another one - and there are several, one of which did appear in the biopsies. I do have to find the cause to relieve my discomfort. Nearly a year on the celiac disease track has not been fruitful. My point is that many people seem content to sit around with celiac disease as the only candidate. Even if there were sensitivity to gluten it does not manifest itself in much difference. In fact, in talking to people at various groups it seems a lot of people are content to hold on to the celiac disease picture even when the evidence is murky. I don't feel better without gluten: I have forced myself to a 7 month challenge and all evidence says celiac disease is not present. Now the time has come to find a better explanation. You cannot stay stuck in one track, particularly one that is going nowhere. Andrew
  10. It is good to be back here again! Last time, June last year, it was all gloom and doom. In May tests for celiac disease were all negative even though genetic indicators and Type 1 diabetes since a teenager made me highly disposed. There was nothing else for it but to go back to a full gluten diet. I did this for over 7 months to make sure the results of endoscopic biopsies would not be compromised. Today I got the results. They were flat out NEGATIVE. So, despite genetic predisposition to and classic symptoms of celiac disease I do not have celiac disease. I give these results because I have seen here so many people saying celiac disease is an underdiagnosed disease. It may well be but that does not mean that everyone with the various symptoms actually suffers from it. So, there is hope. Let me hear no more moaning and groaning that it has to be celiac disease and that there is no point in undergoing the daunting gluten challenge. This does not mean I am well. I still suffer and now I have to find another cause. One may be bacterial (e.g. H.pylori) and another may be a long term (50 years) diabetic problem called gastroparesis. But, the point is, there are other possibilities. I am not saying they are better than celiac disease; the latter of them is likely worse. And it is going to take a fair amount of work to get to the pit of all this. So, let me not hear more complaints that even slightlly negative TTG tests mean that you have it. You may not. Get the surgical biopsy don and make sure you wait plenty of time. Andrew
  11. Test Results Lost

    Well, The problem is worse than getting things lost. Getting things lost is just when the problems are seen. But, what percentage of cases are mishandled or mixed up internally? We will never know. I have had another experience of late with this lab. They had to do special tests, not commonly done for my blood analysis (nothing to do with all the typical Celiac tests). Several weeks after it was done I was called back in to get it redone because the staff had not been told that for this case the blood had to be keep chilled after withdrawing it. I am glad that they found out in time on this occasion. But, together with all the cases I hear about people getting billed for the wrong tests or tests not being done I fear we are using a very expensive and unreliable resaource. In my case I asked for second tests to be done - and yes there were real differences! In future I may seek a second lab for each test. My message is - it is important to investgate the accuracy and reliability of the testing lab before one goes ahead, as I see here so often, to balme or question the doctor. Andrew
  12. Dear All, The lab that did my initial stool testing now says 10 weeks later that they lost the results! The lab is a well-known nationwide corporation - LabCorp. I have called for the results every week after the first and they said they were still working on it. Now they admit that they lost them. The trouble is not simply redoing them - I was on gluten then and went gluten-free a day later. It may take months to recover that initial condition. If they lose things like stool samples, not simple small items in this case, what else can they lose? Can we trust them? I have told my doctor I will not be tested by them again, even though they have their offices in the hospital I attend. And if they can make mistakes like this how many more do they make that we do not hear about? Or how many are not really the results of a particular patient? This is serious stuff, affecting the lives of patients. I think we should raise our voices to congress to investigate. I have read revcent reports of overcharging or mis-charging. Andrew San Diego
  13. Testing Is Finished

    You may indeed not be celiac. There are other ways that similar (intestinal and neural) symptoms can occur. You mentioned the vertebra. I'd suggest you look there. Having problems in the upper vertebra (cervical section) is well-known to be a cause of pain in the arms, shoulders adnd hands. But it also affects the neural system in the stomach, leading to similar problems that celiacs suffer from. I'd suggest you see a neurologist and have him talk too your gastroenterologist. They may suggest an MRI for the cervical area. There is a much talk in these posts by people who make the assuption that everyone here is celiac. Most are, but that does not mean everyone. Before drawing false conclusions about what you thought was a celiac condition and getting upset because the tests did not support that hypthesis I'd earnestly suggest you have your doctor look for causes that are not celiac related. Good luck, and let us know. Andrew
  14. Blood Panel

    I think you made the better choice Steve, even if it's not an open and shut case. As long as the reactions are not violent, which they do not seem to have been, it is worth taking gluten for several days. From what I understand a short time gluten-free for blood tests does not much much difference but you will at least have helped remove a cause of a possible negative result. Good luck with the tests. Andrew