Get email alerts Get E-mail Alerts  

  • Articles  ||  Forum Home  ||  Gluten-Free Mall  ||  Store  ||  Journal of Gluten Sensitivity

  • Ads by Google:

    • Announcements

      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


    Advanced Members
    • Content count

    • Joined

    • Last visited

    Community Reputation

    0 Neutral

    About Alex163

    • Rank
      New Community Member

    Alex163's Activity

    1. Alex163 added a post in a topic Sometimes It's Hard ...   

      I will. Thank you.
      • 0
    2. Alex163 added a post in a topic Sometimes It's Hard ...   

      LOL! That cracked me up! Yesterday we had a fabulous day and he was lamenting to me the fact that he wished he could be a "normal" person. I really felt bad for him. He's getting better and better about realizing how this effects him. He's able to stop probably more than 3/4 of them, but it seems when he's glutened over a longer period of time, it really gets to him and he's unable to control it as well.
      • 0
    3. Alex163 added a post in a topic Sometimes It's Hard ...   

      I've never seen them - do you know where I can get them? Great idea!
      • 0
    4. Alex163 added a post in a topic Sometimes It's Hard ...   

      My Son is 17 yrs. old., but we met when he was 5 and married when he was 9. We didn't live together, so none of this was an issue because we weren't together every minute. Once we married it erupted. I wasn't really scared, just horrified at the thought that this new marriage might end badly. I certainly couldn't raise my child in this atmosphere. We definitely had some serious issues and seeeerious fights because I wasn't really the kind of person that would take that kind of stuff. We weren't a couple who ever really fought either, so these fights always kind of took me by surprise. Once he didn't speak to me for 3 days because he said I bought hamburger that wasn't lean enough and if I loved him I would know this. I'm making him sound awful and I don't mean to - he's a wonderful, amazing man, I'm just relating to what some of you have said about feeling so irrational and angry over things that normally wouldn't matter.

      Anyway - as the fights escalated, I actually started to calm down and just sit back and watch. I noticed that when he got this way, he wouldn't even look in my eyes. He would pace and rant, and follow me from room to room. Odd behavior. When we were in a "real" argument - one of us would mention what was bothering us, we'd talk about it and move on. Period. Maybe an hour of debate at best and then it was over and we would hug. It finally escalated when he threw my parents out of our house over Thanksgiving for feeding our dog a piece of turkey. I threatened to leave. Instead I researched. I told him that I thought it was a gluten allergy and made him an appointment. He went, and three years ago was diagnosed. Now we only have issues when he gets a serious hit of gluten - once it was in medication. We were still new at it, and didn't realize. But he had 10 days of this medication! Yikes.

      I've always wanted to join some sort of forum where I could talk about this stuff, because it's certainly not something you want to tell your neighbors ... but it's nice to hear that some of you can relate, because even though you think you're strong enough to handle it, it still rears it's ugly head periodically and it's wonderful to be able to talk about it and not just stew all day be yourself and think your world's at an end.
      • 0
    5. Alex163 added a post in a topic Sometimes It's Hard ...   

      Rage is a good word for it. Sometimes I would swear that he hates us! Funny thing is, our Son has been living with it forever (he's 17 now), but I think he's a much better person than I am. He just calmy says, "Mom - we know what this is, he doesn't mean any of it. Just ride it out, don't fight back and it'll be over soon." Then he points out that it only happens a few times a year now, so it's so much better .... What an angel he is.
      • 0
    6. Alex163 added a post in a topic Sometimes It's Hard ...   

      That's a good idea - he usually starts a vitamin regimen but then travels, forgets them and stops. I'm going to look into this.
      • 0
    7. Alex163 added a post in a topic Sometimes It's Hard ...   

      Our business requires a lot of travel. We just got back from Germany and it's sometimes difficult to explain gluten free. We've learned as many words as we can in as many languages as we can, but - man - sometimes it hard here in America to explain gluten free, let alone a different Country. When we're home, it's easy - when we go out, we frequent the same restaurants, all of whom understand his diet and will make sure his dishes are gluten free. Asia is especially difficult because of the soy sauce issue.

      He tries to order basic, safe dishes, but, as I'm sure you're all aware, you still occasionally get the salad where you can see that they simply picked off the croutons and thought that was enough. When I'm there I make sure he gets fresh stuff and doesn't eat the contaminated stuff, but when he's with clients he'll go out of his way not make a fuss. This happens a few times a year - it's definitely not as common as when he was first diagnosed.

      I'm just feeling a little sensitive today, I guess and this last episode really got to me, because it seems to be lasting a lot longer than usual. It's been almost a week, and usually the emotional part only lasts a day or two for him.
      • 0
    8. Alex163 added a topic in Celiac Disease - Friends and Loved Ones of Celiacs   

      Sometimes It's Hard ...
      Hi! I'm a new user with a question. I'm the spouse of a person with Celiac and since he's been diagnosed, life has been easier for us. Occasionally, he be "glutened" and he becomes a different person. I know there's an emotional effect as well as physical, and usually I'm good with it. He's also become more aware of it and is getting a little better at dealing with it. He'll mentioned in advance that his mood is changing and he's going to take a little alone time to deal with it, etc. Unfortunately, when he's hit hard (for lack of a better word), he's becomes almost cruel. Well - no - he is cruel. He'll deliberately search for the most awful things to say to me, something that will shake me to the core. It usually doesn't stop until I'm in tears or have to leave the house. Then he'll walk away for a while and come back seriously apologetic, sometimes even tearing up himself because he feels so bad. I'm a strong person and 9.9 times out of 10 it never gets to that point, but it seems to hit him even harder during Holidays or birthdays, which (emotionally) makes it even worse. I'm sure it's because there's so many events during these periods and it's difficult to stay gluten free since so many people don't understand what exactly gluten free is.

      My question is do any of you feel this same way? I mean, does this happen between you and your loved ones occasionally, too? It sometimes happens in front of friends and family which makes it worse, because I know he can't help it, so I don't make a fuss about it. It's hard to explain to people what's going on, so they just think he's abusive (which is SO far from the truth), and that I'm must be weak (which is SO far from the truth!). I guess I'm just searching for some support from people who go through this sometimes, too. My husband is a wonderful guy and there's no danger of our relationship ending over this - it's just sometimes difficult to get "beaten up" every so often when every other day is so fabulous!
      • 23 replies

    Ads by Google: