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Jenni121 added a topic in Super Sensitive Celiacs & Gluten SensitiveCan This Happen?Hi all
Something strange has happened this week and I'm wondering whether it could be related to coeliac disease.
I was diagnosed about 6 weeks ago (after biopsy). My only symptom prior to being diagnosed was low iron. I've never experienced any GI symptoms or anything like that.
Have been gluten free since diagnosis.
For 3 days now I have had the worst pain in my upper abdomen, that goes through to my back. I can't bend over or lift my legs, it hurts too much. I also feel constantly nauseous and have to force myself to eat at mealtimes (I've never had this, I'm a big eater).
I went to a dr who said it could be a mild case of gastro. But I'm not vomiting and don't have diarrhea.
Could it be that by eliminating gluten I've now become super sensitive to it? Could this be how my body is going to react now to being glutened? I can't remember eating anything dodgy but I guess I could have.
Just hoping to find an explanation for this awful pain.
Thanks for reading if you made it this far!
- 6 replies
- 825 views
Jenni121 added a topic in Celiac Disease - Coping WithScared To Eat OutI've read so much about the dangers of cross-contamination, and how important it is to use separate cutting boards, preparation surfaces in kitchens, utensils, etc.
How do you all eat anywhere other than at home? If I go out for dinner, there's no way I can know whether the chef used a separate cutting board/toaster/etc for my meal or not. And what about eating at friends' houses? They wont know to (and I would never expect them to) prepare my food completely separate to everyone elses.
Surely I dont have to eat every meal at home for the rest of my life...?
- 19 replies
- 1,517 views
Jenni121 added a topic in Gluten-Free Sports and FitnessWeak And FatiguedHi all,
Prior to my coeliac diagnosis I ran (usually 10km, up to 25km on weekends) or worked out at the gym almost everyday.
Since going gluten free my diet hasn't changed all that much. The biggest change has been bread - I used to eat 6 pieces a day, now I eat 2 pieces of gluten-free bread every second day.
Since that minor change to my diet, I've struggled through my workouts. I feel so weak and fatigued after 15 minutes or so. It's very frustrating, as I used to run for up to 2.5hrs at a time.
Is it possible that eliminating gluten (even though I never ate a lot of it - mostly just the bread) could cause this?
- 6 replies
- 2,686 views
Jenni121 added a topic in Celiac Disease - Coping WithHorror StoriesHi all,
So I've read a few topics on here now about other people not taking coeliac disease seriously. In the past week, I've had so many people comment on how lucky I am that it's not something more serious. I've also had people tell me I'm going a bit "crazy" and "obsessive" by buying a new toaster, etc. Apparently, the CC thing isn't widely understood. Nor are the possible consequences of continuing to eat gluten post-diagnosis.
So what I'm after are a few horror stories to scare the pants off my friends and family and have them take me seriously. I read in another thread something about MS and a couple of other really terrible things that have happened as a result of continuing to eat gluten.
Does anyone have any others? Basically I need to make the point that YES, even a TINY bit of gluten is harmful, even though they may not see the effects of it externally (I dont get rashes or anything like that).
- 0 replies
- 556 views
Jenni121 added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)Newly DiagnosedHi all,
What an informative bunch you are! This site is proving to be a wealth of information. Unfortunately to the point where I'm feeling a little overwhelmed.
I was diagnosed with coeliac disease yesterday and I'm a bit unsure what to do now. I thought I just had to avoid breads, cereals and pastas but it seems there are a thousand other nasties I need to steer clear of. Foods and additives I've never even heard of, but have probably been eating.
What does a typical day's eating look like for you? I will copy what I can until I start to get my head around this...
- 7 replies
- 677 views
Jenni121 added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms"probable Coeliac Disease"Hi all,
I think my life is about to change dramatically in the next few days.
A couple of weeks ago I had a blood test to exclude coeliac disease, and the results came back overwhelmingly positive.
I had my endoscopy yesterday, and the report says "probable coeliac disease". I am awaiting the results of the biopsy which should be back in a few days.
Seems there's a good chance I have this.
The only symptom I had that led me to get tested is anaemia. But after reading a bit about "brain fog", I realised I have been suffering from this too. I just thought I was losing the plot. I'm only 26, so that's a scary thought. On the one hand I'm hoping its not celiac disease, just because the change is so dramatic and lifelong. But on the other hand, it would explain (and hopefully fix) alot.
It all feels a bit surreal right now.
Is living gluten free really as difficult as it sounds?
- 3 replies
- 624 views