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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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  1. Did I set a one day posting record? I didn't know my topic would elicit such a response! Before I ask about statistics let me first say that I completely sympathize with everyone who has had serious problems as a result of this disease and that my asking about statistics in no way is trying to diminish that. For those of you who have problems and staying gluten-free fixes it, that is great and I am glad that it is controllable. Now, about statistics... like someone (I forgot who) mentioned that if 1 in 133 people in the US have Celiac disease, that would mean over 2 million people have it. Most, I assume from the info on this board would be interested in a gluten-free diet, but you never hear about it. I know, I know, many do not know they have it, but that just leads me to the question of WHAT PERCENTAGE OF CELIACS DEVELOP SOME MAJOR PROBLEM OTHER THAN DIARRHEA OR SLIGHT DISCOMFORT?? What percent for lymphoma? alopecia? diabetes? etc. I know the risks and I also know the risks of driving a car. I drive everyday knowing that it is a convenience and that I could quite possibly be killed any day. People die every single day in car accidents but the solution isn't staying at home not driving. I am not trying to offend here as those of you WITH symptoms obviously benefit from a gluten-free diet. I am a chemist and as a scientist approach this from a statistical point of view and just want to know probabilities. As a chemist, I am exposed (minimally) to several toxic chemicals like hexavalent chromium, benzene, mercury, carbon disulfide, isocyanates, etc but realize the PROBABILITY is so small that the HIGH RISK doesn't matter. (Like the car example or the sun exposure going to get the mail or being outdoors in general.) In conclusion, does anyone know about these statistics or if they exist? Again, I know about the POSSIBLE risks. I don't have a problem with the diet if I have to. I have been vegetarian before just to see if I could (and to lose weight) and I did for years. I just don't want to if I don't have to or if the probablility is only slight. For those of you who would reply that it doesn't matter the probablility, any probability is bad, don't ever drive your cars again. Thank you.
  2. WOW! I didn't expect so many responses. I am truly impressed by the breadth of the discussions taking place about this topic. I have to admit that I am a little scared now after hearing so much and also admit that my problem with the diet mainly has to do with pizza and cereal, my 2 favorite foods. I guess I can find gluten-free versions, though. I guess I wrote this because this past week has been particularly bad in terms of diarrhea. I will try to be gluten-free like mmm...gluten to see what happens.Now for a few other questions: Do you guys go to restaurants at all, knowing that even gluten-free foods could be cross-contaminated? Has anyone tried Atkins diet (gluten-free of course) and it work? Does anyone have "cheating holidays" like going all year gluten-free but eating whatever at thanksgiving, christmas, etc? Is a little bit of gluten the same as a lot? (is it worse to eat 2 sandwiches (4 pieces of bread) or just a little soy sauce?) Thanks for the replies!
  3. I was diagnosed with celiac spue by blood test/endoscopy this past year. I went to the doctor because I had been having diarrhea on and off for 6 years. I went to other gastro's several times before, but they never could find anything. I have gotten used to taking loperamide or lomotil and it keeps it under control. I have no problems with weight loss/gain, no other symptoms and what I have read about potential risks is that I am at a slight increased risk of lymphoma, but not greatly so. My doctor before doing my endoscopy said to eat as I usually do so that my intestines don't heal and he can see the damage. If he was concerned that 2 weeks of being gluten-free would heal 6 years of disease, how bad can it really be? I realize some people have different levels of disease and symptoms and I'm not diminishing your pain or suffering, I am just saying for me, I would rather take an occasional imodium and enjoy life not constantly worried and stressed over every single piece of food, soap, toothpaste, drink, etc that comes near me to avoid a slight risk of illness. My doctor admitted he was not an expert in this area and referred me to a specialist who wasn't on my insurance and wanted $500 just to have an office visit. I can't afford that which is one reason I am posting this. From my research, the risk seems minimal. It is like a dermatologist telling everyone that they should always wear sunscreen if outside for any length of time, but how many people really do that? I don't know anyone who hasn't been sunburned at some point or tan knowing there is a slight risk of skin cancer. Even if people don't tan, according to dermatologists, being in the sun AT ALL can cause cancer. Now drinking soda can cause esophageal cancer. Stomach cancer is common in diets high in rice and fish. Second hand smoke causes cancer. For me at least, I feel that my quality of life would be less giving up my favorite foods, being a pain to all family and friends about every food, etc when all I have is diarrhea 2 or 3 times a week. I guess the reason for my post is I would like to know what the true RISKS are in the future and not just some hypothetical some doctor has told you. (like the dermatologist) I have looked up some JAMA articles and they seem to support my conclusion that the risk is slight if malabsorption problems are not present. Considering I've eaten gluten for almost 7 years now with celiac disease and have virtually no pain and just occasional diarhea, other than a slight increased risk of lymphoma, what do I really have to worry about? (I am sorry for the length of this post)