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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About Carolann444

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  • Birthday November 12

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  1. Work Becoming A Challenge

    That's good that they work with you like that.  I guess I just need to work that out where I am at.
  2. Anyone else have trouble with work because of symptoms with celiac?  I have had a bad week of getting gluten by accident and I have been so tired all week.  I just started working full-time about 6 months ago and it seems like it is taking a lot out of me.  I was working 30 hours a week and went to 40 hours now.  I'm coming home at 6 pm and taking naps.  Anyone else having this to deal with?  
  3. I have those symptoms also, ataxia, double vision, dizzy, confused, can't think, drop things, etc.  I guess I should call my doctor and find out exactly what they tested.  But my allergist told me that both the antibodies were highly elevated and I tested positive in both areas.  So I guess I should find out what that means!  He diagnosed me as celiac and said there is no doubt.  I am gluten free now and the only time I have those neurological symptoms is usually 30 mins after I have eaten and I can track what went wrong and how I was accidently glutenized!
  4. Neuro Symptoms?

    Yes, I can relate to all of that!   Ataxia fully describes what I go through.  I can't walk or move my arms without an extreme amount of concentration.  I'm dizzy, foggy headed, can't think straight and get confused.  Alot of times a reaction starts with tingling, either feet and legs or lips and face.  Then I notice I am dropping things and running into things.  Then it progresses to where I can't walk.  I have slurred speech and it is difficul,t if I can get anything out, for anyone to understand me.  Then my vision, my eyes cross sometimes so bad that it hurts. My husband says he can always tell when I start having a reaction from my eyes.  They look "freaky" as he calls it and they dilate. Once the reaction is full blown, all I can do is lay down and wait for it to pass.  Usually I can start to somewhat function after a couple of hours but the full effects can last for a few days.  I must be a very sensitive celiac because if I eat out and they don't cook it separately, different utensils, etc, then I will have a reaction.  Anyone else have that many symptoms?  I didn't used to get the neurological symptoms until about 1 1/2 years ago, (I have been sick for the past 6 years and just recently got diagnosed with celiac) and they did all kinds of testing in the hospital to make sure everything was okay neurological and it was.  I also get bad abdominal pains.  I have all of these same reactions when I eat dairy too, so I am now gluten and dairy free. 
  5. Is there anyone here who has neurological symptoms when eating gluten? 
  6. Oh wow, I have had similiar things happen to me.  I was afraid to eat for awhile and lost weight and my doctor really got onto me about it!  I think that snapped me out of it some but I still think food is evil lol.  I had wondered if anyone else goes through this too.  I really need to be able to talk with others with celiac since no one around me seems to understand the severity of it.  And it seems I explain over and over and people don't get it.  I don't blame them though since I didn't understand it when I first learned about it.  I told someone the other day, you don't know what its like to go to a restaurant and see people pick up a menu and order whatever they want!  I know its healthier but it does make me feel like a freak or something.
  7. I know how you are feeling.  I have been on the diet again now for a few months.  After being told I don't have celiac to now finding a good doctor who has diagnosed me with celiac.  I feel great when I am on the diet.  But it gets old when people bring food into work, or everyone wants to go out to eat, or you go to a wedding and there is everything you can't eat, etc, etc.  I feel like I don't want to do anything either because I have very severe reactions and I can't afford, not like any of us can, a mistake with food.  It is difficult and I guess it gets easier but sometimes I feel like I just don't know what to do and I"m not prepared.
  8. Wow, I have had the same exact reactions and have been on the diet for a week also.
  9. Hey granolagal, I am new to all this too and had blood work done and all that was told to me was that my antibodies were highly elevated. My regular doctor's office called me and told me to go on a gluten free diet and that's all that was said from the nurse! I asked many questions but she said she wasn't able to tell me much other than that. After I read online I saw that going on the diet wouldn't help if I had an endoscopy done. Then the surgical center called and wanted $1200 before they would do the procedure since it goes towards my deductible. So I have put that off till January when I will get more money on my HSA card to pay for it but I am not sure what to do about the diet. I have done the diet for a week and feel changes already, but now I'm not sure if I will do the endoscopy or not. I do have an appointment Nov. 8th with a GI specialist, he is supposed to be the best, they say since he is head of the department. I think I will talk to him more then about what I can do. Any thoughts on this anyone? I have been having worse symptoms this year and kept going back to my regular doctor and she finally ran the celiac blood work but thought more than likely I had IBS until the celiac came back positive. Just a little history, I have been having symptoms since 5 years ago and was mis-diagnosed by another GI specialist as having IBS. So yea, I am feeling overwhelmed by all this too and not sure which direction to go.
  10. Yes I will get to the doctor about that. I have never had that happen before so I thought maybe it was a result of the diet or a symptom of celiac. I'm not sure what it was, whether it was a seizure or not but I will call my doctor tomorrow. I will see the GI specialist in November so I will see what can be done about the endoscopy. Thanks for your help!
  11. Hi Everyone, I have been doing the gluten free diet for a week now and have some questions, maybe you can help me! I had blood work done and it showed my antibioties were highly elevated so my doctor is sure I have celiac disease. He wants to do an endoscopy but I have to wait until January because of insurance since I don't have the money to pay for it and the surgical center wants the money up front. So I started the diet and have been doing good on it, would you go ahead and get the endoscopy? I would have to go off the diet for a few weeks to get accurate results. Also, I must have ate something that wasn't gluten free even tho it was on a list I was using because I had stomach pains and diarrhea last night and this morning. I had something strange happen earlier today. I had my lunch and went to sit down and hit my elbow on my laptop and caught it on the funny bone. It hurt really bad and I felt tingly all over and slumped over on the couch. I blacked out and when I opened my eyes, I couldn't remember where I was or how I got in a laying down position and my lunch was on the floor. My son was there and kneeling in front of me and I asked him what happened. He said that I fell over and was jerking for a few seconds. Sounds like maybe a seizure? Is that common to have happen with celiac disease or has anyone experienced this before? I didn't go to the doctor and I'm 45 years old and just finding out about this disease. Any input would be great! thanks, Carolann