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Familytradition

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About Familytradition

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  1. The only problem I can see is that certain foods trigger him to have bulky, mushy stools, horrible mood (pain?), leg pains, restless sleep, etc. His 'issues' disappear when on a particular 'free' diet. I guess the only thing I would consider would be to let them order the Kimbell Genetic test on him to show that he at least has one of my genes for gluten sensitivity and/or celiac. It is very upsetting when you seem to know more than your doctor about certain things. I have a vested interest in this though since it is my son. To the doctor, he is probably just another patient.
  2. So I took my son (3 yo) into the doctor's office 2 weeks ago today. I explained my concerns and the doctor decided to order this test: https://www.labcorp.com/wps/portal/!ut/p/c1/04_SB8K8xLLM9MSSzPy8xBz9CP0os_hACzO_QCM_IwMLXyM3AyNjMycDU2dXQwN3M6B8JG55AwMCuv088nNT9SP1o8zjQ11Ngg09LY0N_N2DjQw8g439TfyM_MzMLAz0Q_QjnYCKIvEqKsiNKDfUDVQEAOrk-dE!/dl2/d1/L0lJWmltbUEhL3dQRUJGUUFoTlFBaERhQUVBWEtHL1lJNXlsdyEhLzdfVUU0UzFJOTMwT0dTMjBJUzNPNE4yTjY2ODAvdmlld1Rlc3Q!/?testId=3017399#7_UE4S1I930OGS20IS3O4N2N6680 Test Includes: IgA and IgG antibodies to deamidated gliadin peptide and tissue transglutaminase (tTG/DGP screen), IgG antibodies to gliadin (AGA), wheat allergen-specific IgE (wheat IgE). Profile starts with tTG/DGP screen test. If positive, testing stops. If negative, testing reflexes to the AGA test. If positive, testing stops. If negative, it reflexes to the wheat IgE test. -------------------- Well I informed the doctor of my gluten intolerance/possible celiac (have celiac gene) and that we have been gluten free for 8 months now. He was still convinced that we should run this test and that it 'should' still pick up as positive if he really is gluten sensitive. (I tried to tell him that you have to be eating gluten for it to be showing antibodies to no avail.) My son is only three and has had limited gluten in those short years to begin with. Still the doctor insisted on testing him. Well we finally (2 weeks later) got the results and SURPRISE they all came back NEGATIVE. I once again said that I wasn't surprised since the limitations listed with the test information plainly state that if you are on a gluten free diet, you may not get an accurate result. So they offered to refer to us to whoever we needed/wanted to go to. But what would you do? I am not sure a GI is going to be much help since we are already gluten free and not willing to go on a gluten challenge at this point. This son also has autism and with this has language difficulties. Since restricting his diet, I have seen a completely different little boy emerge (this is why I refuse to do a gluten challenge with him). I can't put him back in pain without a way to tell anyone what is wrong. So does anyone have any input? I would really appreciate something.
  3. Thank you for the replies. When I got my results from Enterolab, they only had 5 foods (gluten, dairy, egg, soy & yeast) to test for. I am positive for all. Now they can test for 11 more foods so I may have to just go with that first. It is funny that you mention that about the chicken's feed affecting it's egg. I suspect the same is true for chicken meat & beef. I have stopped eating beef & chicken for the last week and it has made a huge impact on me & my son with autism. He is sleeping so much better and actually talking TO US instead of just echoing everything we would say. I suspect it may be CORN that the animals are eating, that is causing us so much trouble. I have only been to an allergist one time (before children) and didn't test positive to any foods at all. I am curious if that would be different now after having children (which I believe was the trigger for my gluten/celiac issues to go into full swing)?
  4. So I know it is generally recommended to do an elimination diet and food journal to determine other foods that may be causing problems BUT I was wondering if anyone has used EnteroLab for their new antigen food panel OR gotten an IgG blood test? (runon sentence anyone?) I have my hands full with 3 small children with various other issues of their own and I just wish there was a quick answer to figure out my further food intolerances. Does anyone have any input???
  5. Nightshades?

    I am starting to suspect an intolerance to nightshades as well. I haven't had any in nearly a week and tonight I boiled some red potatoes and ate it like soup. Within a short time I was bloated up so big I looked 6 months pregnant. Now I have gas, frequent urination and I am wondering if I will be able to rest tonight. :/
  6. Nail Problems

    I actually just had (a few months ago) my thyroid checked and it was all normal.
  7. Unfortunately I live in the middle of nowhere and there is no local support groups that I know of. I can order labs myself through DirectLabs at a reduced rate but just would like some input on exactly what to order. I guess I could just order the general vitamin panel. I appreciate your response.
  8. Is there any particular vitamins or minerals that it would be wise to test for deficiencies? I have had severe malabsorption for a long time and not sure where to start with making things right. I don't have medical insurance and don't qualify for any sort of medical assistance either. Everything I do will be out of pocket for now.
  9. Just Wondering

    In my opinion (based on tons of research and personal experience), it is all related. I believe I have Asperger Syndrome (never officially diagnosed) and I have one son who was just diagnosed with Autism (and the other 2 sons are suspect as well). I was always skinny growing up and really I still am. My sister has hypothyroidism and I always suspected I have hyperthyroidism (all the signs). I also have all of the indicators of celiac disease (genes included). I know I am not of much help but I do believe it would benefit her to continue a gluten free diet as strictly as possible. I wish I had a mother who would have helped me figure all of these things out many years ago. Unfortunately, my mother STILL doesn't see the link or doesn't care.
  10. Nail Problems

    Interesting thread. I just keep finding more and more links to the crazy chain of celiac/gluten intolerance. I have NEVER been able to grow nails. EVER. I have the ugliest, shortest (but I do bite them some - anxiety) nails of all time. I have the ridges and all. You know how you hear about prenatal vitamins and/or being pregnant causing nails to grow? I have 3 wonderful little guys and took some of the best prenatal vitamins available and NO GROWTH FOR ME. I guess it is all relative. Do any of you have the same issue with hair growth? My hair grows slow too and has been falling out for a year now.
  11. So I am new here but I have been reading off and on here for a very long time. I figured I would throw out my Entero Lab test results to see what you all might think. Does it seem to be Celiac or just Gluten Intolerance? (The Million Dollar Question - you couldn't pay me that much to go back on gluten now for 'official diagnosis'!) A little history... I have been back & forth with gluten free (elimination diet) since approximately September 2007 (has it really been 4 years??). I actually eliminated gluten, dairy, soy, sugar, corn and probably more. I was only on this diet for about a month before I got pregnant and stopped because I was starving and tired of being limited in my diet. Fast forward to when that baby was born... He had reflux and barely slept at all during the day. He seemed miserable all the time and I suspected it was food related (my oldest son has multiple life-threatening food allergies but this son wasn't having any reactions like those) all along but never took the plunge back to gluten free until the end 2009/beginning 2010. Lo & behold, I was pregnant again within a month (seeing a trend here yet?). I initially stayed gluten free for a while during my pregnancy but then again saw the convenience of eating 'regular' so I dropped it again. After giving birth to my third son, I immediately starting seeing the same miserable, reflux baby I had seen before and slowly started eliminating gluten and dairy again. It quickly changed the way we all felt (my sons & I). I also ordered the Entero Lab in Feb 2011 and have had the following results since March 2011. Fecal Anti-gliadin IgA 87 Units (Normal Range is less than 10 Units) Fecal Anti-tissue Transglutaminase IgA 12 Units (Normal Range is less than 10 Units) Quantitative Microscopic Fecal Fat Score 1400 Units (Normal Range is less than 300 Units) Fecal Anti-casein (cow
  12. I can relate to the family thinking it is no big deal. Like a previous poster said, it is SO much easier for some people to be in denial than it is to recognize an issue and take action like you have. Stick to your guns! It is tough going 'against the grain'!
  13. Just wanted to jump in and share in the misery. I have been gluten, dairy, egg, soy, yeast free for almost 8 months ( minus a few mistakes ). One of your first posts reminds me of when I ingest MSG on accident. It causes me all sorts of hell. Anxiety, irritability, rage, migraines, racing heart, etc. Might be something else to be mindful of. I hope you get to feeling better soon!
  14. So I am new here but I have been reading off and on here for a very long time. I figured I would throw out my Entero Lab test results to see what you all might think. Does it seem to be Celiac or just Gluten Intolerance? (The Million Dollar Question - you couldn't pay me that much to go back on gluten now for 'official diagnosis'!) A little history... I have been back & forth with gluten free (elimination diet) since approximately September 2007 (has it really been 4 years??). I actually eliminated gluten, dairy, soy, sugar, corn and probably more. I was only on this diet for about a month before I got pregnant and stopped because I was starving and tired of being limited in my diet. Fast forward to when that baby was born... He had reflux and barely slept at all during the day. He seemed miserable all the time and I suspected it was food related (my oldest son has multiple life-threatening food allergies but this son wasn't having any reactions like those) all along but never took the plunge back to gluten free until the end 2009/beginning 2010. Lo & behold, I was pregnant again within a month (seeing a trend here yet?). I initially stayed gluten free for a while during my pregnancy but then again saw the convenience of eating 'regular' so I dropped it again. After giving birth to my third son, I immediately starting seeing the same miserable, reflux baby I had seen before and slowly started eliminating gluten and dairy again. It quickly changed the way we all felt (my sons & I). I also ordered the Entero Lab in Feb 2011 and have had the following results since March 2011. Fecal Anti-gliadin IgA 87 Units (Normal Range is less than 10 Units) Fecal Anti-tissue Transglutaminase IgA 12 Units (Normal Range is less than 10 Units) Quantitative Microscopic Fecal Fat Score 1400 Units (Normal Range is less than 300 Units) Fecal Anti-casein (cow
  15. Same boat here too! I need to post my numbers for my known food intolerances. I DO suspect tha I have others but havent been able to distinguish between them yet. It will be a long road. Does anyone else recommend igG testing to help identify food intolerances?