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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About Rachel85

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    New Community Member
  • Birthday 12/19/1985

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  • Gender Female
  • Location London, England
  1. Things People Say To Celiacs

    "So if you can't eat anything, why aren't you like, really slim?"
  2. Irritability?

    Yup. I had mega bad withdrawals when I went gluten-free. For me they kicked in after 4 or 5 days or so, and carried on for a couple of weeks. The only way I can describe it is that it was like having a big black cloud over my head. I was emotional, had the worst cravings, headache, slept all the time and had no idea what I was doing when I was awake. My poor boyfriend had no idea which 'me' he'd get from one minute to the next. At times you may wonder why you've bothered going gluten-free, and it may seem like you've just replaced one set of symptoms for a whole bunch of others, but it does get better. Following the advice of others I found my 'crutch' which majorly helped. And stick with it, it will most definitely be worth it in the long run.
  3. Awkward Meals Out

    Thanks for all your responses, it's really great to hear about the ways everyone else deals with this. I sometimes feel like I'm torn between not wanting people to make a fuss and treat me like I'm different, but at the same time wanting them to understand and appreciate it can be quite difficult at times. I guess as time goes on these things will become easier to deal with. I think I'm going to go. But following the advice of many of you I'm going to eat a yummy meal before I go. I'm going to make my own pizza with all my favourite toppings and enjoy every last bite of it. I'm looking forward to it already I love this, I'm definitely going to use this in future!!
  4. Actually yes, I noticed a slight change in my symptoms. I got glutened recently and although still had the typical bowel and bloating problems, I suffered terribly with exhaustion, headaches and my emotions - well I was just a blubbering wreck. In fact, it started almost a week ago and the exhaustion has stuck around (or that may just be from being in a class of 28 9 year olds!!).
  5. So my friends are planning a catch up this weekend as we haven't seen each other for a few weeks (we usually see each other every day at uni) and they want to go out for a meal. I've been gluten-free since December and so far have only been for meals out with my boyfriend, which has been difficult enough as it is. My friends aren't as understanding as I'd like them to be about Coeliac, they think I'm over exaggerating most of the time. So this weekend they've planned to either go to a chinese restaurant or to Pizza Express (there's no possibility of going anywhere else). Both places I know that I pretty much can't eat anything (and if there is anything I can eat, I don't like it and refuse to pay out money for a dish just because I can eat it). I'm not sure what to do really. My friends have suggested I come along anyway and just don't eat anything. Which would be fine, if I wasn't desperately craving everything they're going to eat, and am struggling with the whole gluten-free diet a little at the moment. So sitting there watching tuck into delicious pizza or deep fried chilli beef isn't my idea of a fun Saturday night!! What do you guys do in this situation?
  6. I noticed a while ago (pre coeliac diagnosis) that certain drinks make me really, really thirsty and make me wee a lot, like every 5 minutes. Coeliac diagnosis came along and when I was checking labels, I noticed that these products all say "contains sulphites". I'm keen to know if anyone els ehas ever noticed a similar thing with sulphites. I'm obviously going to stop drinking the drinks, but was wondering how easy it is to cut sulphites out of my diet completely. And what should I even look for on labels?
  7. Confused

    I too noticed something similar when I first went gluten-free. If it continues you might find it useful to keep a food diary. I kept one and it helped me to work out that I'm sensitive to onions, which bring on similar symptoms as I get from gluten (although not as bad).
  8. Things People Say To Celiacs

    Sadly no. While my boyfriend has been wonderfully supportive and understanding, my friends all think I'm over-reacting "with this whole thing". Also, a friend's partner has celiac and is so relaxed about it (gluten evidently doesn't make him feel like he's dying), eating gluten whenever he fancies it, so that doesn't help!!
  9. Things People Say To Celiacs

    I think my best one to date has to be when I went to my friend's house, she was cooking dinner for a group of us and they all know I can't eat gluten. The dinner was lovely (I helped her work out what I could and couldn't have, and prepared it with her to be on the safe side) but when it came to dessert...that was another matter. She'd asked us what our favourite desserts were and had made mine, but as she was bringing it out said "oh yeah so I was going to make a gluten free version for you...but then I couldn't be bothered, so you can just watch us eat ours!!"
  10. I was diagnosed with celiac just before christmas and was told to go gluten-free immediately. My doctor didn't mention anything about withdrawals but said he thought I'm highly addicted to gluten, given how much I ate it and the fact that I would regularly crave gluten products. I tried my hardest to go gluten-free but being very new to this and being over the Christmas period I found it really difficult mistakenly ate the wrong things quite a few times. I've been gluten-free for about 6 days now and have been really careful, checking everything. Anyway yesterday I started feeling full on exhausted and a bit irritable and the indigestion and bloating came back with a vengeance. Today, all of the above plus shakes and just awful anger. I feel like I want to rip someone's head off and then cry. Or maybe rip someone's head off while crying. And eating a sausage roll and loaf of bread. And I feel really panicky, like I'm on the verge of a major panic attack. I'm getting heart palpitations too which I usually get when I'm stressed through college work. And my mind is all over the place, I can't concentrate on anything, So two questions really: 1) Has anyone got any ideas of how to shift the indigestion? I already take Omeprazole 40mg a day, but need something a little more fast acting today. 2) Am I experiencing withdrawal from gluten? Is this normal? Have you experienced this? Thanks
  11. This is my first post here, and my first exploration into the unknown world of celiac. I started getting symptoms a year ago...bloating, diarrhea, vomiting, cramps etc. But the real killer has been extreme indigestion and acid reflux, to the point where it even hurts to drink water. When I went to the doctor they gave me some tablets to help the indigestion and sent me away. Their attitude was "you're a 25 year old female therefore you can't be having the symptoms you say you're having". Fortunately, after much insistence on my behalf, I've been referred to the hospital. I saw my specialist 2 week ago and celiac was mentioned for the first time. They put me on a waiting list for a gastroscopy which I was told was a minimum of 6 weeks...but they contacted me recently and said they put me to the top of the list due to the severity of my case. I'm due to go in on Friday. The problem is...I have very little idea about...well anything. My doctor simply mentioned celiac and sent me on my way. What if it is? What's the impact? I'm a 25 year old female currently studying a year intensive course to be a primary school teacher. Is it likely to impact my future job? Right now I'm struggling to make it to uni lessons as I'm either too tired from yet another painful night, or too busy vomiting or occupying the bathroom. I'm so fed up with the pain but so scared about the future. Where do I even begin to deal with it?