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4angels added a topic in Celiac Disease - Parents of Kids or Babies With Celiac DiseaseThe Doctor Just Called This Moring. Lots Of ?sI'm new here and confused! My just turned 7 year old son tested positve on his first blood test two weeks ago. The results from the second test when they tested for more antibodies came back today negative. I'm not real clear on what this all means!
Here's some background info. When Luke was 1 he was on antibiotics for a year. Even in utero I knew he was a very, very active child! We refuse to have him tested for ADD because we don't want that on his record. And we homeschool anyway so we won't give him the drugs. For the past 6 months or so he has been complaining of a tummy ache. And it keeps getting worse. And that his bones hurt. I started journaling things and it always happens after meals. We already know he is sensitive to dairy, red dye #40 and white refined sugar. He is tall for his age and very, very, very skinny! The doctor did not want to test him because he is 50% for weight and she insisted that Celiacs are always below the charts and not even on them. And he's too old to be tested! I insisted and she finally gave in. I could hear the shock in her voice when she called me with the positive results!
Anyway, now we have the first test as positive and then he tested negative for the next 2 antibodies. This doctor is not our regular doctor and she didn't explain things well at all. I KNOW there is something not right with my son. She suggested doing a gluten elimination test with him and see if he improves. Can he be gluten or wheat sensitive and not Celiac? If I make him gluten free should we see results relatively soon? I welcome any advice you have!!!
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