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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store.


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About squirmingitch

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  1. If he is celiac, & I'm sure he will be, he will have to avoid gluten at all costs!!!! There is no allowance for "a little bit" or any cross contamination. Anytime he gets gluten, even a small amount, it will damage his villi & kick off the immune response. I think the same holds true for NCGS as well. There is not a ton of research on that yet so it's better to be safe than sorry. NCGS does not damage the villi but they don't know yet if it doesn't damage something else in the body. It will likely be years before we can know the answer to that one.
  2. Newbie: mother to coeliac kids

    All I can do right now is cry. Cry for the pain your son is going through and cry for the pain you, as his mom, are going through. What a travesty!!!! I can't imagine how you kept yourself from tearing theplace apart with your bare hands in anger & frustration. Monumental hugs to you & your son both. {{{{{{{{{{{{{{{{{{{{{{{{{{{{{{HUGS}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}
  3. It sounds like he's quite immature. Well, we already knew that didn't we?
  4. It's beginning to look a lot like DH...

    No, no, no, no, no! Do NOT go gluten free!!!!!!! You have to get back on the gluten ASAP!!!! And you're going to need to STAY on it until all testing is done. That includes a dh biopsy or an endoscopy or the celiac blood tests. NO steroids!!!!!!! They can screw up the dh biopsy and the blood work & maybe the endoscopy. DH does not immediately go away when you go gluten free. The antibodies are deposited under the skin & it takes time for them to get out from there. In the meantime, the rash can come & go at will -- either on gluten or off gluten. A dh biopsy is taken on a CLEAR spot ADJACENT to an active lesion. The patterning the pathology will be looking for is easily destroyed by scratching and by the trauma of the lesion itself. It can take years on a strict gluten-free diet for the rash to resolve completely. 60% of us test negative on the blood panel -- that's because the antibodies are concentrated under the skin. We still get the damage to the villi though but it tends to be patchier. If you get a dh biopsy done & it's positive then you have a dx of dh. A dx of dh is a dx of celiac and no further testing is needed.
  5. He's really a loser isn't he? I wonder if he will ever realize what a jerk he truly is. Go Lacey!
  6. I didn't have pain in my eye. I did have floaters which I made no connection to celiac but I seldom have any floaters these days. However, my right lower eyelid kept having spasms that nearly drove me up a wall! All I can say is that's gone now. You can't go by the length of time it takes others symptoms to resolve. We are all individuals. I think a lot depends on how long you've been undiagnosed, how bad the damage got and a million other factors that have to do with each persons individuality. I can't give you an exact timeline on resolution of symptoms. I had SO many! They resolved at different times. some things I didn't even notice were gone until I had been gluten-free for 2 or 3 years because I had so many bigger fish to fry in the symptom resolution department. I'm going to say that by about a year & 1/2 almost all my symptoms had pretty well resolved or were well on their way except the celiac rash. Symptoms ramped down gradually. The migraines became less frequent and milder gradually. It's not like a symptom goes away overnight. They slowly get better. But your mileage may vary. Some people have resolution pretty quickly.
  7. I experienced 5 of the 6. My headaches were full blown migraines which thankfully did not occur every day but were occurring on an increasing basis. My "D" was not all the time but I have the celiac rash & we often have milder, less frequent episodes of "D". Everything resolved for me after going gluten free BUT it didn't happen immediately -- it takes time.
  8. Possible DH after night of pizza and beer?

    Have you been diagnosed with celiac disease? Your statement, "I had been feeling a bit exhausted and wasnt completley gluten free" implies that you were supposed to be gluten free????? If you have not been dx'd with celiac, then I fail to understand why you're suddenly thinking you have the dh rash. Ditto what Karen said.
  9. Newbie: mother to coeliac kids

    Get them into raw veggies as soon as their guts have healed enough to handle raw veggies. Snow peas, carrots, celery, heck I love raw green peppers. Cauliflower, broccoli, zucchini, yellow squash. Some Ranch dressing for dipping. YUM! and don't even get me started on fresh fruits! Or dried fruits. Or nuts.
  10. Newbie: mother to coeliac kids

    Everyone who is not celiac gets tested every 2 years UNLESS symptoms present sooner & then you test right away. Remember, they will need to be eating gluten for testing. Wow, it sounds like you have your hands full & then some! However, you have the answer for the 12 & 17 yr. olds. YAY!!! Hang in there mom! {{{{{{HUGS}}}}}
  11. You are a member, never doubt that! It doesn't matter if people have an official dx or not. So many people have gone through stories like yours and stories of years upon years upon years of seeking a dx only to be thwarted by incompetent doctors. There comes a time when they just have to say they will not kill themselves any longer pursuing an official dx and just go strict gluten free on their own. The really super news for you is that your hubby has your back and supports you fully. There is no replacement for that! Give him some extra attention for being such a great guy.
  12. DH, Dapsone, anemia and dermatologist?

    You're welcome! Yes, the oil could very well get you if it's not pure. Plus any cutting boards that are used there.
  13. DH, Dapsone, anemia and dermatologist?

    If you're gluten free then a biopsy of the rash will not come back positive unless you're getting some serious cross contamination. Take it from me & a few hundred others who have posted here that steroids are not the way to go. Oh they work as long as you're on them but the minute you quit, POW! you get a rash backlash that you do notevenwant to experience! I too have heard of the topical Dapsone called Aczone gel: You can read the warnings there. I have never used it. There is also Gabapentin but it won't stop the rash, just make the itch less as I understand it. I've never used it myself but have read what people who did have said about it on this forum. Otherwise there are some "other" antibiotics but they don't work as well as Dapsone and I might add that you risk the longer you stay on an antibiotic. Be pristine in your diet. You couldn't PAY me to eat out!!!!!!! Russian roulette anyone? You probably ought to have celiac serum panel done to make sure you are diet compliant & that should tell you if you're getting cc'd somewhere.