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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store.


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About squirmingitch

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  1. Here's another good link:
  2. Okay, first off, we don't know if your PCP did the full celiac panel on you. You said, "She told me today that it was "positive for serological markers for celiac" and something about GPDs, and referred me to a GI specialist.  " I'm thinking she said DGP's not GPD's & IF she said that then you most likely got the full panel but we just don't know that. If you had a copy of your tests then posted it here along with the ref. ranges we could tell you if you them all or not & we have people who are really good at interpreting the tests.  BTW, this is the full panel: Anti-Gliadin (AGA) IgA Anti-Gliadin (AGA) IgG Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase (tTG) IgA Deamidated Gliadin Peptide (DGP) IgA and IgG Total Serum IgA  Also can be termed this way: Endomysial Antibody IgA Tissue Transglutaminase IgA  GLIADIN IgG GLIADIN IgA Total Serum IgA  Deamidated Gliadin Peptide (DGP) IgA and IgG This link explains the biopsy procedure: You MUST be eating gluten up until the time of the endoscopic biopsy. See also:
  3. Oh, I forgot another biggie.... 3) If you are officially dx'd then all your first degree relatives should be tested (again back to the every 2 years if not sooner if symptoms present). This means your siblings as well as your parents. I can't tell you how many people we've had on here who don't have an official dx & their 1st degree relatives refuse to get tested because THEY don't take the self diagnosis seriously & think the person is either wrong or "over reacting" thinking they have celiac disease. This can cause no end of grief as some people are certain their mom or dad or a sibling has celiac but the relative is sloughing it off as hysteria. PLUS if they go to get tested then having a 1st degree relative with an official dx will make the doctors take them seriously.
  4. Here are the reasons: 1) You are 24 yrs. old. I'm assuming you might want/have kids sometime in your life. You could pass the celiac gene on to them. They could present with celiac at some time in their life. If YOU are dx'd then it is sooooooooooo much easier to get testing for your kid(s) who should be tested every 2 years unless they present symptoms & then they should be tested right away. Otherwise you can play hell getting them tested. 2) If you have an official dx, then you will be taken much more seriously by not only people but by the medical profession. This means you can get testing for vitamin deficiencies as well as other auto immune diseases associated with celiac disease. Otherwise you can play hell getting those tests.  
  5. VERY good point cyclinglady, very good point!!!!
  6. It's okay if you have more than 1 cracker a day; the challenge is saying you must have at least 1 cracker a day so if you want to have more that's absolutely fine. In fact, if you want to gorge on all your favorite gluten goodies from now until the endoscopy then have at it because it looks like you'll be saying goodbye to it all after the endoscopy. You say it's about a month till you see the GI doc..... it will be longer until an endoscopy because the GI will have to order it & it will have to get scheduled.
  7. I just went back & checked the ingredients in those gluten-free MRE's. It says modified food starch & doesn't specify from what so if I were you I would certainly check with the company & have them clarify that to your satisfaction.
  8. This is not going to be easy for you. You're going to have to change the foods in the pack out from time to time rather than just packing it & leaving it for years. I'm thinking weight is a factor too. I have a few suggestions.....      Tuna in pouches. Powdered milk Nuts & dried fruits Instant oatmeal,_rice_cereal_oats,_grits_hot_cereal_a3_other:na:na:na:na:na:2&code=PLA15&k_clickid=00396dda-02b2-63e9-5200-000028bca9be&abkId=403-171581&gclid=CjwKEAiArdG1BRCLvs_q-IObwxMSJACXbLtzyw9QEXipSuCld5x1nxjMxV9PL-PM3ISAGik8XU2LphoCRuLw_wcB   I did find a company that does gluten free MRE's:
  9. What does this all mean?

    It's terrible that you are left hanging like this! I'm so sorry. Can you get to the doctors office & get a copy of the of the test results? If you can, then you could post them here & we have people who can interpret them for you.  
  10. You're very welcome! If you were eating like normal prior to the test then you were fine. I was just saying that going gluten free NOW, prior to the endoscopy can be a problem. Just so you're aware of that. As to the question about the healing process with celiac vs NCGS, I can't help you. But that would be a very good thread for you to start. One has to consider that we are all individuals & our reactions & recovery can vary greatly form person to person. I would be interested in reading the responses on a thread asking about recovery from NCGS.
  11. xcalibr, There is a certain danger in going gluten free before you've had all the celiac testing. Now granted, maybe celiac isn't your problem but you should be thoroughly tested for it in light of what's going on with you. So here's the rundown..... 1) Your pcp may not have done the FULL, current celiac panel & you will need to retest to pick up the missing pieces. 2) Especially if the celiac serum panel comes back positive, the GI will want to do an endoscopy with biopsies 3) For any & all of the above you must have been eating a full gluten diet for some time. See: 4) Celiacs who go off gluten prior to having all testing done tend to react much more strongly when gluten is reintroduced for a gluten challenge. Many get so sick they are unable to complete the challenge which results in no dx. That's a big problem!  5) If you are celiac, it takes time on the gluten-free diet to heal so pain can still be a factor for as much as 6 to 8 months, even a year or more. Granted, things should get better but symptoms will not magically disappear overnight. 6) You are likely getting cross contaminated even though you think you are gluten free right now. There is a steep learning curve to the diet. Read the Newbie 101 pinned to the top of the coping section & follow all the links contained therein. THAT is how you eat gluten free if you are a celiac. 7) While there is testing for celiac disease, there is not yet a test for gluten sensitivity (NCGS). Celiac damages the villi. NCGS has the same symptoms but there is no GI damage --- however, that does not mean that NCGS doesn't do damage somewhere. NCGS is still being researched to figure out the answers to these questions.  8) A wheat allergy is a completely different reaction. Think ALLERGY. Throat swelling, face swelling, hives, trouble breathing, etc.... You don't say you have any of those symptoms. Celiac is an autoimmune reaction -- totally different from allergic reactions. I hope this has answered a lot of your questions.
  12. First off, my sympathies on your loss of your dad. 24 is pretty young to lose a parent.  Cyclinglady told you right in her post above. WHEN the time comes for you to go gluten free then you will need to be absolutely gluten free. Likely on your Whole 30 diet, you were getting a lot of cross contamination. Read this in preparation for going gluten free:   Follow all the links contained in the threads.   
  13. I stand behind this statement as well. 
  14. A colonoscopy can not dx celiac disease nor will a stool sample. You need a full celiac blood panel and an ENDOSCOPY taking 4-6 biopsies AND you must have been eating a normal gluten diet throughout as well as for a long time beforehand.
  15. More than 50% of dx'd celaics presented with NO GI symptoms. So to answer your question carle, you may have had intestinal damage for years & years.