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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About squirmingitch

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  • Gender Female
  • Interests Gardening, birds, bees, butterflies and nature in general. Nature is a genius!
    "If there are no dogs in Heaven, then when I die I want to go where they went." ~~~ Will Rogers
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  1. I agree with all cyclinglady has said. Here's a link to the Newbie 101 where you can learn how to keep yourself safely eating gluten free. Follow the links contained in the thread. Note this thread is rules for the US & Canada has some different rules on some things but the "guts" of the thread is applicable for anywhere. You've been through hell & your doctors have their heads up their behinds. How blind are they that they can not see you have celiac disease???? The tests are right in front of their faces! Like cyclinglady said, how can you gain weight when your guts are damaged & you're suffering from malabsorption? They are stuck on the fact that you had anorexia & they can't see anything beyond that. They have labeled you & that's all there is to it. It's awful!!!!!! (((((((((((((((((HUGS)))))))))))))))))))))
  2. OOPS! I posted the above to the wrong thread. Sorry. It's still useful info. though so I will leave it where it is.
  3. Here's a link to the Newbie 101. It will help teach you how to keep yourself safe. Follow all the links contained in the thread.
  4. Well you can go gluten free now at least. Kudos for sticking with it for 6 weeks; I know it wasn't easy. They usually can't see the damage with the scope; that's why biopsies are necessary. Let us know how they turn out please.
  5. New

    IMHO the best way to handle this is for you to only eat gluten when you're away from home. Brush your teeth very well before kissing her after you've eaten any gluten or any of her allergens. It's wonderful that you are supporting her so!  Read the Newbie 101 in the Coping section & that will give you a lot of tips. Be sure to follow & read the links contained in that.
  6. Greetings from St Petersburg Florida!

    Hello MissL from a fellow Floridian. I'm in north central FL. Yes, you can enjoy pizza again! Your local Publix carries Against The Grain gluten-free pizza & it's delicious! Sometimes you have to look hard for it. In my Publix it is on the top shelf in the freezer & instead of standing up, the boxes are laying down which makes them easily missed if you don't know exactly where to look and how. Here's a link so you know what it is: Scroll down to the pizzas. Being in St. Pete, your stores may have/probably have a greater selection of Against The Grain products. One tip on the pizza --- get yourself a perforated pizza pan, you can pick them up for around $8. it will make all the difference in the crust. And the only gluten-free beer my Publix only carries is New Grist. it's decent but I was never a fan of beer --- gee, I wonder why? Please be sure to read the Newbie 101 in the coping section. Welcome to the club. As stated by Darrin, you will adjust and be fine. In fact, you'll be better than fine because you will be WELL. Cheers!
  7. I'm sorry, there are no other options to being diagnosed. You will have to do a gluten challenge.
  8. I thankfully don't have any problem with dairy but I do have friends who have big problems with it. As soon as I read the article in the link Gemini provided, I sent the link to my friends. One already answered back. I knew her husband, whom I used to work for, couldn't drink milk or eat ice cream but I didn't know he can, however, have cheese, sour cream, cream cheese, which I think is odd. Nobody has explained that either. So there are mysteries we still don't know the answers to. I can understand him being able to eat sour cream and some cheeses but I don't understand the cream cheese.
  9. This is amazingly interesting. Yes, thanks for bringing this subject up Dandelion!
  10. Please help, tests results are not good

    I really don't know much about the technicalities of Lupus either but my hubs & I have a very dear friend - she's like a sister to us both - who has had Lupus for at least 20 years now -- probably more like 25 years, possibly more. She is now 68 or 69 and she has managed it very well. She's had a few bumps in the road but she really has done quite well. She's managed so well by doing her research and diet & exercise. She does her Wii exercise every single morning. She drinks very little and eats a super proper diet rich in seafood & shellfish. Lupus has not done much to slow her down. In the last several years she's been on Cruises, regularly goes to the FL Keys & snorkels, goes to the Bahamas, travels many places in the US, and went to Costa Rica where she flipped a 4 wheeler & cracked 3 ribs as well as collapsed 1 lung. That did more than the Lupus has to her --well almost I guess. She has had platelet problems twice which she was hospitalized for and while not a picnic to go through, she recovered well & has carried on with her active lifestyle. I know from watching her that Lupus CAN be managed and you can live a very good life despite it.
  12. Gosh Karen, I'm so sorry this is happening to you. It sounds like you read in the dh section. I'm going to repeat some things so please have patience. Just trying to get to the bottom of things for you.  Have you checked? Shampoo, lotions, any topical product that can get on your hands & in your mouth or lesions or mucus membranes. How about cutting the gluten-free pasta? Maybe you're just that sensitive. it sounds like that's the only thing you eat that is not personally made by yourself.    As to the sewing room. Soap & water. That's all I can say, wash everything with soap & water. Wash the upholstery with soap & water.     
  13. I am concerned that she has a wheat allergy & that takes precedence over doing a challenge for an endoscopy for celiac. If she does test out to have a wheat allergy then there is no point in her risking eating gluten for an endoscopy as it would be rather moot at that point as the end will be the same --- NO WHEAT which basically boils down to eat gluten free for the rest of her life. I'm betting she has celiac being as the family history is there, she has the genes, and she has the symptoms. If she is dx'd with wheat allergy there is no need for an official celiac dx in addition. It's not worth the risk of having an anaphylactic reaction.
  14. New here

    I would also add regarding the Diet Pepsi..... even though that's "diet" Pepsi; isn't that still bad for diabetics?
  15. You certainly have celiac disease symptoms. Yes, you will have to eat gluten every day for 2 weeks before the endoscopy. But the throat thing worries me, that you feel like you're choking & the ulcer on your throat. That sounds more like allergy. I worry that this could develop into anaphylaxis even the next time you have wheat. You DO need to get tested for a wheat allergy. It IS possible to have both celiac disease and a wheat allergy concurrently. If you are allergic to wheat then you will not be able to do a gluten challenge AND will need an epi pen to carry with you at all times.  There are others on here who are much more versed in allergy signs & symptoms than I. I imagine they will be on as they get time to give you more advice.