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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About squirmingitch

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  • Gender Female
  • Interests Gardening, birds, bees, butterflies and nature in general. Nature is a genius!
    "If there are no dogs in Heaven, then when I die I want to go where they went." ~~~ Will Rogers
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  1. I'm sorry, there are no other options to being diagnosed. You will have to do a gluten challenge.
  2. I thankfully don't have any problem with dairy but I do have friends who have big problems with it. As soon as I read the article in the link Gemini provided, I sent the link to my friends. One already answered back. I knew her husband, whom I used to work for, couldn't drink milk or eat ice cream but I didn't know he can, however, have cheese, sour cream, cream cheese, which I think is odd. Nobody has explained that either. So there are mysteries we still don't know the answers to. I can understand him being able to eat sour cream and some cheeses but I don't understand the cream cheese.
  3. This is amazingly interesting. Yes, thanks for bringing this subject up Dandelion!
  4. Please help, tests results are not good

    I really don't know much about the technicalities of Lupus either but my hubs & I have a very dear friend - she's like a sister to us both - who has had Lupus for at least 20 years now -- probably more like 25 years, possibly more. She is now 68 or 69 and she has managed it very well. She's had a few bumps in the road but she really has done quite well. She's managed so well by doing her research and diet & exercise. She does her Wii exercise every single morning. She drinks very little and eats a super proper diet rich in seafood & shellfish. Lupus has not done much to slow her down. In the last several years she's been on Cruises, regularly goes to the FL Keys & snorkels, goes to the Bahamas, travels many places in the US, and went to Costa Rica where she flipped a 4 wheeler & cracked 3 ribs as well as collapsed 1 lung. That did more than the Lupus has to her --well almost I guess. She has had platelet problems twice which she was hospitalized for and while not a picnic to go through, she recovered well & has carried on with her active lifestyle. I know from watching her that Lupus CAN be managed and you can live a very good life despite it.
  6. Gosh Karen, I'm so sorry this is happening to you. It sounds like you read in the dh section. I'm going to repeat some things so please have patience. Just trying to get to the bottom of things for you.  Have you checked? Shampoo, lotions, any topical product that can get on your hands & in your mouth or lesions or mucus membranes. How about cutting the gluten-free pasta? Maybe you're just that sensitive. it sounds like that's the only thing you eat that is not personally made by yourself.    As to the sewing room. Soap & water. That's all I can say, wash everything with soap & water. Wash the upholstery with soap & water.     
  7. I am concerned that she has a wheat allergy & that takes precedence over doing a challenge for an endoscopy for celiac. If she does test out to have a wheat allergy then there is no point in her risking eating gluten for an endoscopy as it would be rather moot at that point as the end will be the same --- NO WHEAT which basically boils down to eat gluten free for the rest of her life. I'm betting she has celiac being as the family history is there, she has the genes, and she has the symptoms. If she is dx'd with wheat allergy there is no need for an official celiac dx in addition. It's not worth the risk of having an anaphylactic reaction.
  8. New here

    I would also add regarding the Diet Pepsi..... even though that's "diet" Pepsi; isn't that still bad for diabetics?
  9. You certainly have celiac disease symptoms. Yes, you will have to eat gluten every day for 2 weeks before the endoscopy. But the throat thing worries me, that you feel like you're choking & the ulcer on your throat. That sounds more like allergy. I worry that this could develop into anaphylaxis even the next time you have wheat. You DO need to get tested for a wheat allergy. It IS possible to have both celiac disease and a wheat allergy concurrently. If you are allergic to wheat then you will not be able to do a gluten challenge AND will need an epi pen to carry with you at all times.  There are others on here who are much more versed in allergy signs & symptoms than I. I imagine they will be on as they get time to give you more advice.
  10. DH and negative blood panel - how to progress?

    Hi jbrum. I take it you are either in GB or Canada?  When you say the "odd batch of IBS" --- please explain that statement. Do you mean it comes & goes? Infrequent? Do you associate it with anything you've eaten? Or do you figure that's just what happens sometimes as a matter of ordinary life? How many years have you had "the odd batch of IBS"?  I've been looking up SFN and it seems it can be due to or associated with diabetes, B12 deficiency, hypothyroidism, kidney disease, among others. I am getting that from this: That leads me to ask if you've recently had your B-12 levels checked? Has a full thyroid panel been run on you? Here is a list of symptoms associated with celiac disease:   The rash in your photos certainly could be dh but you already know there are rashes that look quite similar. What is telling is the way you describe the intensity of the itching as well as the places it presents. Echoing itself on opposing sides of the body.  When you say the dermatologist ran a basic blood panel..... do you mean a CBC? Or did she say she was running a celiac blood panel? If so, do you have a copy of that? Can you get one and then post the results along with the reference ranges for us please? I am betting the full current celiac panel was not run. Here is the complete panel: -Tissue Transglutaminase (tTG) IgA and (tTG) IgG -Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG -EMA IgA  -total serum IgA and IgG (control test) -AGA IGA and AGA IgG - older and less reliable tests largely replace by the DGP tests Having said that, 60% of celiacs with dh test false negative on the blood panel. We also tend to have no GI issues OR fewer, milder GI issues than celiacs without dh. That is not saying that one with dh never has the big, bad, full blown GI issues -- it's just that the majority of us dh'ers don't. And this is why I asked you about your assumed odd batch of IBS. Okay, so that leaves us with the question of how to get to the bottom of what's going on with you. Well, the best way to find out if it's dh is to get a dh biopsy. You must be eating a full gluten diet for 3 months for the biopsy - otherwise you can get a false negative just like with the blood work. The biopsy is taken ADJACENT to an active lesion NOT on one.  Dh can come & go at will whether you're eating gluten or not. If you quit eating gluten & are strict, very strict, then eventually the gluten antibodies under you skin will go away & you will no longer experience dh unless you get glutened. We are all different so it takes different amounts of time for us to get in the clear. If your rash is dh, then you have celiac disease and if you keep eating gluten then one day the rash will set in & not go away. In other words, it will not come & go like what you're experiencing now. Yes, there are those of us who have figured it out for ourselves and gone gluten free without a formal dx. The frustrations of getting a doc to do the proper tests properly frequently leave us no other choice.  For many with dh, iodine does cause flares -- it's sort of like pouring gas on a fire. This is medically known. For a low iodine diet see: It is not a good idea to live on a low iodine diet but it can be helpful in tamping down the dh to adopt the low iodine diet for a couple weeks. And lastly, what did you mean when you said "your systemic inflammation"? What other inflammations are you experiencing?  
  11. I don't know much about cats so I can't help you out on either food or his leg cramping but I do think a trip to the vet would be a good idea. I sure hope this thing with Patches isn't serious or causes him pain. I like the idea of a ramp to the bed, sofa, places he would have to jump up & down to or from.
  12. Thank you so much for posting the doctor & hospital in the Doctor section. One day that post is going to save some child (& parents) a whole lot of grief. 
  13. Corrie, I'm so glad you pursued & persisted!  You said it yourself that your guilt is irrational. Grant sounds like a super kid and he's going to do fantastic! Please, when you get a chance, will you post the ped GI's contact info. on the Doctor section? It would be great for parents looking for a celiac savvy GI in the Cincinnati area. It could save them going to doctor after doctor after doctor. Here's a link for the section:
  14. Sorry for giving you such long reading assignments LOL! Seriously, I had blepharitis that cleared up & disappeared after going gluten free. At the time, I had no idea it could be associated with celiac. Who knew? There's a trick when in public dining & they bring you a salad with croutons AFTER you told them not to. You bury a sugar packet underneath where it can't be seen. Then when they bring your salad back you check for the sugar packet - if it's there, they just picked the croutons off & brought you the same salad back. But there's actually an easier way than that -- you just dump dressing all over the salad & that way there's no way they can bring you the same salad back after picking croutons off. The same applies to meat or a steak when they've put bread on your plate -- put steak sauce or catsup all over it. That makes them have to give you a new steak (or whatever meat) on a clean plate rather than just removing the piece of bread & bringing your contaminated meal back to you. In short, you have to mess the contaminated food up so it doesn't get brought back to you. I'm not a fan of soy sauce so I've never paid attention to the gluten free soy sauces out there but just put it in the search box for the site & you'll come up with threads where you'll find the ones that are safe for celiacs.
  15. Oh you're so welcome! I agree with everything you said. We ate pretty healthy too, myself more so than the hubs (he likes his TV snacks). Whole food is good! I love it! It's the way I was raised.  Yes, if one has to have a disease, this one is preferable.  If you want, after you've been real strict with the diet for a year, then you can go get retested to see where your tTG IgA numbers are. They will go down & eventually not be positive at all. But then you said you would do anything to avoid a needle didn't you? I was only suggesting because you mentioned you really don't have symptoms other than the outbreak on your feet. You might find that you really do have symptoms you didn't know about once you've been strict for a while. Things you thought were normal or "just you" might just up & disappear. More than 50% of dx'd celiacs did not present with any GI symptoms. There are 300 symptoms associated with celiac disease. Here's a list: