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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

squirmingitch

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  1. This is a link that will explain sreun panels for infants under 2 years of age. http://www.thepatientceliac.com/2013/04/18/update-on-celiac-disease-screening-in-infants-and-toddlers/ The author of that is a doctor, has celiac herself, and is a member of celiac.com. Here is a link that tells you about her: http://www.thepatientceliac.com/about-me/   This link will also give you information: http://www.beyondceliac.org/living-with-celiac-disease/info-for-parents/testing/ Quoting from it in part: Celiac Disease Testing in Children Under 3 Blood tests are not always accurate in very young children. If your child is less than 3 years old, you may be advised to see a gastroenterologist instead of relying on blood tests results.
  2. That was not a full celiac blood panel that was done. Plus, as I understand it, at that age the DGP is more likely to be high rather than the others. Here is the full celiac blood panel: Anti-Gliadin (AGA) IgA Anti-Gliadin (AGA) IgG Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase (tTG) IgA Deamidated Gliadin Peptide (DGP) IgA and IgG Total Serum IgA    Also can be termed this way: Endomysial Antibody IgA Tissue Transglutaminase IgA  GLIADIN IgG GLIADIN IgA Total Serum IgA  Deamidated Gliadin Peptide (DGP) IgA and IgG  
  3. Intestinal Adhesions

    Robb you have responded to a post that is from 2008. I haven't seen yolo posting in years. I doubt you wil receive a reply.
  4. Absolutely! Our Motto: READ EVERY LABEL EVERY TIME
  5. Churpy, I think I know where you got that bit about after X number of years you can reintroduce gluten but it wasn't five years. Over 50 years ago they used to think that children who had celiac disease could be gluten free for TEN years & then they could eat gluten again. WRONG on all counts!!!!! Celiacs never become NON celiac; not even if they lived to be 120 and didn't eat gluten for the last 115 years.
  6. Yes, the DGP IGA should drop also. If the gastro said that then he must be willing to dx based on positive results from being gluten-free. GOOD DEAL! Just to be sure, go through every food item in your kitchen again. Take a magic marker & write gluten-free on each box, bottle or carton. Why? Because when I went gluten-free, I thought I had already checked an item but I didn't use the magic marker method & a month went by then I got hit, I had missed ONE item. So use that magic marker so you don't miss something okay? Learn from my mistake. 
  7. FDA proposed rule on gluten-free labeling of fermented or hydrolyzed foods: If you haven’t already, please take the time to comment on the rule. The comment period closes February 16. But this is truly a CALL TO ACTION.  Your input is needed. You have a voice, you are an advocate for the gluten-free community. Now is the time to stand up and be heard.  Your voice, your words, can help all of us stay safe when purchasing food labeled gluten-free.  Johnna’s Kitchen posted a sample letter you may find helpful http://injohnnaskitchen.com/2016/01/call-to-action-your-input-is-requested-by-the-fda-on-gluten-free-issues/ It takes almost no time at all to copy & paste Johnna's letter into the FDA comment site & it will help us all.
  8. Here's another good link: http://www.beyondceliac.org/celiac-disease/get-tested/
  9. Okay, first off, we don't know if your PCP did the full celiac panel on you. You said, "She told me today that it was "positive for serological markers for celiac" and something about GPDs, and referred me to a GI specialist.  " I'm thinking she said DGP's not GPD's & IF she said that then you most likely got the full panel but we just don't know that. If you had a copy of your tests then posted it here along with the ref. ranges we could tell you if you them all or not & we have people who are really good at interpreting the tests.  BTW, this is the full panel: Anti-Gliadin (AGA) IgA Anti-Gliadin (AGA) IgG Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase (tTG) IgA Deamidated Gliadin Peptide (DGP) IgA and IgG Total Serum IgA  Also can be termed this way: Endomysial Antibody IgA Tissue Transglutaminase IgA  GLIADIN IgG GLIADIN IgA Total Serum IgA  Deamidated Gliadin Peptide (DGP) IgA and IgG This link explains the biopsy procedure: http://www.cureceliacdisease.org/archives/faq/what-is-an-endoscopic-biopsy You MUST be eating gluten up until the time of the endoscopic biopsy. See also: https://celiac.org/celiac-disease/diagnosing-celiac-disease/diagnosis/
  10. Oh, I forgot another biggie.... 3) If you are officially dx'd then all your first degree relatives should be tested (again back to the every 2 years if not sooner if symptoms present). This means your siblings as well as your parents. I can't tell you how many people we've had on here who don't have an official dx & their 1st degree relatives refuse to get tested because THEY don't take the self diagnosis seriously & think the person is either wrong or "over reacting" thinking they have celiac disease. This can cause no end of grief as some people are certain their mom or dad or a sibling has celiac but the relative is sloughing it off as hysteria. PLUS if they go to get tested then having a 1st degree relative with an official dx will make the doctors take them seriously.
  11. Here are the reasons: 1) You are 24 yrs. old. I'm assuming you might want/have kids sometime in your life. You could pass the celiac gene on to them. They could present with celiac at some time in their life. If YOU are dx'd then it is sooooooooooo much easier to get testing for your kid(s) who should be tested every 2 years unless they present symptoms & then they should be tested right away. Otherwise you can play hell getting them tested. 2) If you have an official dx, then you will be taken much more seriously by not only people but by the medical profession. This means you can get testing for vitamin deficiencies as well as other auto immune diseases associated with celiac disease. Otherwise you can play hell getting those tests.  
  12. VERY good point cyclinglady, very good point!!!!
  13. It's okay if you have more than 1 cracker a day; the challenge is saying you must have at least 1 cracker a day so if you want to have more that's absolutely fine. In fact, if you want to gorge on all your favorite gluten goodies from now until the endoscopy then have at it because it looks like you'll be saying goodbye to it all after the endoscopy. You say it's about a month till you see the GI doc..... it will be longer until an endoscopy because the GI will have to order it & it will have to get scheduled.
  14. I just went back & checked the ingredients in those gluten-free MRE's. It says modified food starch & doesn't specify from what so if I were you I would certainly check with the company & have them clarify that to your satisfaction.
  15. This is not going to be easy for you. You're going to have to change the foods in the pack out from time to time rather than just packing it & leaving it for years. I'm thinking weight is a factor too. I have a few suggestions..... http://www.walmart.com/ip/13398018?wmlspartner=wlpa&adid=22222222227010019313&wl0=&wl1=g&wl2=c&wl3=40886859272&wl4=&wl5=pla&wl6=78817797152&veh=sem      Tuna in pouches. Powdered milk https://jet.com/product/detail/cbb5f52fcf294bd3b66d8a77b268c584?jcmp=pla:ggl:loser_jd_food_beverages_tobacco_a3:food_items_cooking_baking_ingredients_canned_dry_milk_a3_other:na:na:na:na:na:2&code=PLA15&k_clickid=00396dda-02b2-63e9-5200-000028bca9be&abkId=403-1014808&gclid=CjwKEAiArdG1BRCLvs_q-IObwxMSJACXbLtzFTLkAO24ayN9WARBR06XXmQZEMdF8eZC4EZoCsSgfBoC8Gzw_wcB Nuts & dried fruits Instant oatmeal https://jet.com/product/detail/34cb04f4695e4978899c8b60b7b1aed8?jcmp=pla:ggl:jd_food_beverages_tobacco_a3:food_items_grains,_rice_cereal_oats,_grits_hot_cereal_a3_other:na:na:na:na:na:2&code=PLA15&k_clickid=00396dda-02b2-63e9-5200-000028bca9be&abkId=403-171581&gclid=CjwKEAiArdG1BRCLvs_q-IObwxMSJACXbLtzyw9QEXipSuCld5x1nxjMxV9PL-PM3ISAGik8XU2LphoCRuLw_wcB   I did find a company that does gluten free MRE's: http://www.preparewise.com/food-storage/gluten-free-food-storage.html