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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About squirmingitch

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    squirmingitch's Activity

    1. squirmingitch added a post in a topic Not getting enough food, malnourished?   

      You will have to be eating gluten to get tested. Here are the rules:
      I don't care if the doc says you don't have to follow those rules because the doc will be wrong & you will get a negative result. 
      Also, for when you go full on gluten free you will need to know these rules to prevent cross contamination. Read this thread & follow all the links in it. It would be good for your mom to read it too so she knows.

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    2. squirmingitch added a post in a topic Pizza pan for Against the Grain Pizza   

      Thanks Barty. I will try that. Beats the heck out of having to clean everything up.
      I was researching last night & ran into all kinds of stumbling blocks. Lots of holey pans said you couldn't expose them to heat over 400 degrees & some said 450 degrees. Against The Grain requires 500 degrees. I found some similar statements with pizza stones AND also found with the stones that some said DO NOT place a frozen pizza on a hot stone or it will crack the stone and of course stones have to be heated before putting the pizza on them soooo.... Well, Against The Grain is frozen & meant to stay that way until you shove it in the oven. All of this was getting complicated so I gave up research for the evening. I didn't check every pan or every stone yet but I am not going to spend $50 for a pizza stone -- it will have to be a cheap one or none at all. If we ate pizza once a week it might be a different story but we don't & I can't see having a big, bulky, expensive stone that has to be stored somewhere for something we have 4 or 5 times a year.
      Cyclinglady, I can't guarantee it but I don't think Against the Grain has onions or garlic. They certainly aren't listed in the ingredients and I don't taste either in the pizza. We DO add onions & green peppers to it as that's how we like pizza.
      Check them out here:
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    3. squirmingitch added a post in a topic Pizza pan for Against the Grain Pizza   

      You never can tell. 
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    4. squirmingitch added a post in a topic Pizza pan for Against the Grain Pizza   

      Yeh, no brick oven is going to be put in this backyard. 
      Thanks Scott, I will check out pizza stones.
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    5. squirmingitch added a topic in Gluten-Free Recipes - Baking & Cooking Tips   

      Pizza pan for Against the Grain Pizza
      We adore Against The Grain gluten-free pizza!! We had not gotten a pizza pan but now that we have had Against The Grain gluten-free pizza a few times & know we love it; it's time to get a pizza pan so the entire bottom of the crust cooks correctly & is not doughy in the center.
      The box says use a pizza stone or a pizza pan with holes in it but I'm wondering if the USA pizza pan would be excellent. Here's what I'm talking aobut:
      I LOVE all my other USA pans so I'm wondering if their pizza pan would work as well or better than a pizza pan with holes.
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    6. squirmingitch added a post in a topic Top Bar Not Working Correctly   

      They are fixed for me!
      Thank you so much Scott!
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    7. squirmingitch added a post in a topic Navigating Diagnostic Process--GI Doc Troubles   

      I don't know what her problem is but she is so wrong on so many fronts. Patients with celiac DO completely heal. AND her statement of "that she would be able to tell even without me reintroducing gluten" is incorrect. This leads me to believe she didn't even do ANY biopsies. They can't see the damage with the naked eye -- there have to be biopsies examined under a microscope to see the damage & rate it.
      Personally, I would not pursue it any further but you're talking to a 58 yr. old who has no children. You do have a child & perhaps will have more children. The only thing about you having a dyed in the wool dx is that it will be soooo much easier to get your child/children tested as they should be every 2 years or sooner if symptoms present. 
      I wouldn't bother calling the GI's office to ask about the biopsies. I would get a copy of all your medical records form her including all the info. on the endoscopy. You will be able to tell from that if she did biopsies or not.
      I would say to do that & then go to your PC doc & if there were no biopsies done, show that to her. Then have a talk with her about the possibility of her dx'ing you celiac based on the blood and response to the gluten-free diet. 
      I do think the GI could very well be biased because of your weight which is one more thing showing that she doesn't have a clue what she's talking about.
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    8. squirmingitch added a post in a topic Navigating Diagnostic Process--GI Doc Troubles   

      Sarah, I have not had this experience but I am SO sorry you did. Even though I haven't had this experience, I have read hundreds of stories like yours. It happens more often than not and that is a very, very sad thing. Appalling really.
      I wonder if the GI even took biopsies much less the 6 she should have taken to check for celiac disease. Her mindset is against celiac & she's not listening to anyone or anything & that makes her a BAD doctor!
      I agree with your primary care doc. Go strict gluten free & never look back.
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    9. squirmingitch added a post in a topic Trazodone And/or Essential Oils   

      I took Trazodone but only briefly. It upset my tummy & made me nauseous but that was very early on in my gluten-free life & I know my gut was in poor shape so I imagine that was why the Trazodone made me nauseous. At any rate, I did not have any bad reaction to it in any other way. 
      At least you now know what's going on. You might have to resort to warm milk & meditation to sleep.
      Wishing you the very best but don't forget to get tested around every 2 years or sooner if symptoms present.
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    10. squirmingitch added a post in a topic Does This Look Like Dh To You?   

      60% of celiacs presenting with dh test negative on the celiac blood panel. A biopsy is taken ADJACENT to a fresh lesion NOT ON one.
      I'm sorry about the Trazodone & Ambien. Unfortunately celiacs tend to develop allergies & that can be to drugs or foods or environment. 
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    11. squirmingitch added a post in a topic The next acceptance battle   

      Truer words were never spoken. 
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    12. squirmingitch added a post in a topic Positive ttg help   

      Well, let's just hope the GI is as savvy as your Ped is. Hooray for your ped catching this however, I would really rather have seen him do the complete celiac panel -- not that his positive tTG-IgA isn't enough but sometimes people test high on one & not the other so they can easily be missed when the doc only runs one of the tests in the celiac panel.
      If the GI isn't savvy then you might have problems with your hubs on this.
      Well, you are armed with a lot of information now so make your list of questions for the GI & grill him/her good & don't let them get off with hemming & hawing. I think you've caught this really early with your son & that's great!
      Please let us know how it goes.
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    13. squirmingitch added a post in a topic Positive ttg help   

      You can give your hubs some reading material. Here is one to show him celiac symptoms aren't all GI symptoms:
      And here's one on why so many doctors don't know what they're talking about when it comes to celiac disease:
      And here's one about who should get tested for celiac disease:
      And here's one about associated AI disorders:
      And here's the biggie - he can read to his hearts content & learn a lot:
      And these next 2 are about what happens when celiac disease goes untreated:    --- this 1 has a lot more info. than just that
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    14. squirmingitch added a post in a topic The next acceptance battle   

      Well that particular friend certainly has a good attitude. Made me laugh too.  One needs friends that make us laugh. 
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    15. squirmingitch added a post in a topic Hla-Dq2 & Hla-Dq8 Blood Tests Positive For Celiac Is This Definative?   

      I agree with Bartful. Don't even bother to explain all the dx's & mis dx's to people -- just tell them you have been dx'd celiac by 2 separate doctors & that's the end of that. 
      Now on to a new life for you & it will be much improved. It does take time to heal so be patient.
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