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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About jumpingjuniper

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  1. I saw my GI today and he was not helpful. He didn't even really listen. He's a nice guy, really, which is a plus, but he's not going to be figuring out any mysteries for me. I did ask for the lactulose test and he basically said yes to appease me (it will be negative but you can have it if you want to see). Anyway, I'm glad I'll get that. I feel like I'm in a repeat of the nightmare of having undiagnosed celiac. Except this time it's almost worse because I know just how wrong the doctors can be. My symptoms are less severe, thank goodness. Can anyone recommend doctors who will do the MCAS test? It doesn't matter where they are.
  2. Does Dairy Affect Your Mood And Mind?

    I do keep a diary. I'm curious to hear about the experiences of others as I know it's something that happens to other people.
  3. I've seen some people say that eating dairy gives them symptoms like depression. If that happens to you, how quickly does it kick in? And does it happen every time you eat dairy and with every kind of dairy? I'm trying to figure out if dairy is affecting me or if it's just coincidence, or a coming together of triggers! Thanks!
  4. Yes, I know, I read her blog Thanks. It's not a quack illness but it's not widely tested for either and there's a decent risk of the tests being done wrong, so if I want them I should probably seek out a doctor who knows more about it than mine.
  5. Thank you for your replies. I've seen my doctor twice since I last posted and I don't think she's taking me seriously at all. She's chalking it up to psychological stress and has referred me to a psychiatrist. I spoke with her about histamine intolerance for a long time and she didn't want to do the tests. Having read about the tests myself, I didn't want to push for them because I'm not convinced they'd do them right. I should maybe find a doctor who would. I'm in Europe. I see my GI next week. I'm going to ask for tests for dysbiosis or whatever else is relevant. I feel like I'm going crazy. My physical symptoms are real but the response I've been receiving from health care professionals is getting to me and I keep thinking, what if they are all caused by stress? But I'll persist because that's what it took to get the celiac dx in the first place.
  6. Sorry to hear about your multiple broken bones!   I would recommend trying another GI, or else getting very proactive with yours by bringing in your own research. But it sounds a bit like he doesn't want to expand his knowledge on the subject. Is there a local celiac meet up? Maybe they have ideas for a GI.   Wishing you the best of luck!
  7. Hi Dee, thank you for your kind message and suggestions. No real updates here but hopefully I'll get it figured out eventually
  8. This won't solve all of your problems, but I do find that taking my vitamins before bed helps with avoiding the nauseous post-vitamin feeling - perhaps it could help with some of the other issues as well. I hear you, though, I need iron and I can't figure out a way to take it without killing my gut. Good luck, and great news that vitamins do actually help.
  9. Hello all,   I'll give a short version here and then details below! The short version is that I eat totally gluten free and have for a long time, and I still feel sick. I'm seeing my doc on Thursday and I was hoping that some of you could help me think of things to ask her, tests to suggest/request, etc.   Okay, now the details:   I was diagnosed in 2002 after about 15 years of symptoms. It took me a long time to feel better, but after about 3-5 years I felt generally good, though never awesome.   In 2011 I moved overseas and despite being very careful, had about a year's worth of cross-contamination exposure - so frustrating - and got very sick.   Again, it took a while but I'm generally healthier than I was then, but still not so great. I had a repeat biopsy in 2013 and the results were great. The GI said I had some of the most beautiful villi he'd ever seen, gotta love those doctors who are passionate about their chosen field!   Here and there, and particularly for the last two months, I've been feeling poorly. It seems to come in flares. Here are my main symptoms:    - bloated/distended stomach - digestive distress (both main kinds...) - intermittent nausea - reflux and heartburn (these are constant, they don't come only with flares) - muscle pain - joint pain - stiffness - feeling woozy/unwell after cardio exercise - purple/black under my eyes - pale complexion - hair falling out more - excema flares on my scalp (this is something that I get with active celiac, but this time it isn't going away. Also, every derm has a different opinion about what it actually is - excema, psoriasis, etc.) - noise sensitivity - touch sensitivity - this is both superficial and deep. E.g. burning/itchy/needles on the surface, and what feels like deep nerve pain when touched. Sometimes I cannot stand wearing clothing, being touched, being rubbed is torture, and even rubbing my own two fingers together hurts. - pain at the tips of my finger tips - some tingling in my hands and my feet   More recently, I've been having more and more of what I can only characterize as histamine reactions (I know this raises a flag for histamine sensitivity) - swelling, angry itchy skin, red and watery eyes, etc. I'm allergic to dust and mould and my reactions to both seem to be stronger than they used to be. Last April I was in another country camping and had a seasonal allergy-style reaction to a plant. I presumably got scratched by that plant hiking and ended up with a swollen face and then several days of a bad rash. I had been the same place the year before, albeit a month or so later, with no problems. Just last Friday night, I was at my desk and went and ate dinner. I sat back down at my desk - same clothes, same room, etc. - and started feeling itchy and then my eyes got red and watery, I swelled up, and then I spent the rest of the weekend somewhat swollen and with unbelievably senstive and painful skin. So something new is happening with me allergically.   Another important point is that my blood labs usually come back normal.   If you've made it this far, thank you!   I know that a lot of people on here are great detectives and know a lot about celiac and associated diseases. I try to stay on top of things but must admit that my emotions are starting to get the best of me...I'm overwhelmed and worried.   What would you recommend I try to pursue with my doctor?   I'd like to make the best use of this upcoming doc visit. My doctor is generally kind and open-minded.   Thank you!!
  10. Hi all,   I read through an old post on this topic but it got a little off-topic by the end so I thought I'd start a new thread (I'm newish around here, so please let me know if it's better to just revive the old thread!).   In any case, I wanted to share what I've learned about pelvic pain and Celiac Disease, as I think it is under-discussed and really important. It's also a common issue in general and again, under-discussed and mis-diagnosed.   I was struggling a lot with pelvic pain, manifested especially in a constant urge to urinate and pain when doing so. Long story short, I saw a pelvic physical therapist for a while and had a massive improvement in symptoms. I later learned that having a disgestive disease can affect your pelvic health, due to muscle straining and cramping, and even the leaking of toxins into your gut.   So, if you're having pelvic pain, urge incontinence (aka you can't hold your pee when you need to go), stress incontinence (e.g. leaking when you sneeze), burning when you pee, etc., etc., I highly highly recommend seeking out a pelvic PT.   Here are some excellent resources on the topic:   Blogs by Pelvic PTs:   A writer's personal essay in a mainstream magazine:   And this book is an excellent book for understanding the origins of pelvic problems and it has an at-home program that you can follow:   Cheers!
  11. Yes I do. You can contact me for details.

  12. Finally!

    Congratulations, that's wonderful news.
  13. For me, the issue with the recommendation to eat "whole foods" as a way to avoid labelling issues, is that even a whole foods diet usually requires some products that may or may not contain gluten, depending on manufacturing processes. Short of growing your own rice, quinoa, legumes, etc., you're probably going to be buying some processed foods at the store. Rigorous gluten-free labelling isn't only about having access to highly processed foods, it's also about knowing that the grains and seasonings that you eat are gluten-free.
  14. Does anybody have experience doing ELISA tests on their foods at home? I strongly suspect that I'm getting glutened by something, and I can't figure it out. I've emailed manufacturers, etc., for details about their manufacturing, but am getting increasingly curious about testing things at home too. If you've done this, what was your experience? And could you recommend a product to use for the testing? I live overseas and will be in N. America over the holidays, and would love to pick up some sort of test kit while I'm over there. Thank you!
  15. First Time On Plane Celiac

    Hi, Thanks for your reply! The Schar Fette Croccanti crackers are amazing. My non-gluten-free husband loves them too. They're just a snack, but they're great. Their little cracker snack packs are good too. The croissants au chocolat are okay but not awesome, but it's nice if you're missing that kind of thing. You've got to warm them up. The mini baguettes are good toasted (they crumble completely untoasted) and I've found them fantastic for travel. When we have guests and are touring around with them, I make myself a sandwich in a baguette in the morning and it's always quite tasty at lunch and saves me the worry of finding somewhere to eat. They have another product, I can't remember the name, that is a sweet breakfast bread. Petit Pain, maybe? Or Pain Matin? Anyway, it's delicious and you don't even need to toast it. Quite sweet, but very good. Definitely a treat. Their penne and fusili are good. Where I live we also have a DS-Schar brand that makes a few frozen things - I did not like the lasagne, I do like the tortellini, ravioli, and pizza. They are definitely frozen-food calibre, but within that category I think they're quite good. They also carry a millefoglie pastry crust which would probably be really useful for baking, though I've never tried it. Bon Appetit!