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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About kate12345

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  1. I cannot figure out how this place keeps getting recommended by people with Celiac.  People that I know are super careful will eat there.  I was in line one day and I watched them make the food.  They would touch the spoon that was in everything they added to the burritos  that people were getting and sticking it back in there.  I walked out and figured there is just no way that place is safe.  It is such a shame though as it would be a healthy, low risk place to eat if it were not for that.  I was so disappointed when I saw them do that. Jennifer
  2. My child kept complaining and the doctor had me give her Lacaid everytime she had diary.  That worked wonders.  We did not have to eliminate it and she no longer has to take it.  She probably took it for 6 months.   Jennifer
  3. My son had wheat allergies show up on his blood work when he was young.  We started testing due to severe stomach pain and oil in the toliet.  The dr only recommended we avoid wheat and see if it got better.  We avoided wheat, not cross containmation.  He continued to have mild symptoms.  He was never checked for celiac.  When his sister got really sick, we found out she had celiac through biopsy.  Both children are on a strict gluten free diet.  We did the genetic testing on him and he has DQ2.5, putting him in the high risk category.  My question is, do pediatric drs ever diagnosed based on symptoms and genetics?  There  is no way he can eat gluten to do a biopsy.  If it comes to that, he will just not have a formal diagnosis.  Thanks, Jennifer
  4. Thanks for the replies. She is not getting it from other kids or school. It has to be from products or it is something else. They are currently testing her for other things such as allergies and vitamin deficiencies. I hope they figure it out. I was thinking it might be paper cups we were using, but those turned out to be ok. Thanks again.
  5. I think my child is getting gluten from some source, which I cannot figure out. If a product is labeled gluten free such as certain Tostitos corn chips or certain Orieda fries, is it for sure safe? If a product has a gluten free label, does it mean that it could not have gotten cross contaminated in manufacturing?? My animals are on grain free diets, our house is gluten free, but she is exhibiting some of the same symptoms as she did pre-diagnosis. Are there any great websites for figuring out what it could be? Thanks, Jennifer
  6. Celiac With Throat Squeezing

    She was having this symptom in Nov when she had the scope done. Would they have seen this or would they have had to look for it? Are you better off with a food allergist specialist or GI? How is the best way to bring up the 'idea it could be this' to the dr? Thank you.
  7. I have a 5 year old with Celiac diagnosed by biopsy 6 months ago. She was completely symptom free but started back up with one symptom she had before diagnosis. It is, what she describes, as her throat squeezing. It is almost like she has spasms in her throat, at least that is what it seems to me. She will sometimes say if feels like food is coming back up or the neck area is sliding. The reg dr does not think it is reflux. I do not either as the meds (Xantac and Prevacid) are not making a difference. The reg dr and GI dr have no idea as to what it is. She is on Prevacid once again. Food allergies are limited to wheat on the allergy testing. I feel confident she is 100% gluten free. Even the animals are gluten free. If anyone recognizes this symptom, please let me know. She was tested for reflux during the endo, but that was neg. Thanks.
  8. Just letting you know that I found Kirkland-Costco- Multisymptom cold medicine for children labelled gluten free. It is the only one I found labelled gluten free and I looked long and hard. I dread it when they need antibiotics as it is so hard to find out if things contain gluten. Jennifer
  9. Does anyone know of a gluten free over the counter medicine cold medicine for kids? Mucinex Mini Melts has been my favorite, but there seems to be some question about it. I wonder if the liquid is the same way. Thanks
  10. Just Diagnosed Celiac With Pain

    So is yours small bowel and transient? Also, is there not anything you can do about it?
  11. Just Diagnosed Celiac With Pain

    I keep wondering if that transient small intestine intussception could be causing pain, too. But the dr has me told me it would not cause pain. I may need to get a second opinion on that. Her dr is a pediatric GI, so I would hope he would know. I have not eliminated dairy yet, but will start today. I have not read the report, but I know they said she has the blunting of the villi typical with celiac. I am going to try the bland diet thing again and see if that helps. It does not seem to appear to be acidic foods most of the time but everything. It is hard to eliminate dairy and gluten at the same time, but I am to the point where I have to do something and do not have a choice. Her next appt is not til Jan, and they say that is the earliest they have available. Whatever, do they really expect children to remain in pain this long? Most days are tolerable but yesterday was difficult for her as it kept hurting and I had given her everything I could medicine wise. Thanks for the ideas.
  12. I am trying to figure out what to do with my 5 year old. The biopsy came back and she does have celiac. I have had her on gluten free for 11 days. As soon as she starts to eat, she says her stomach hurts. She is on Prevacid, Maalox and Tylenol as it hurts her so much. I only give her Maalox and Tylenol as needed, which is still everyday. Did any of you experience this? She will say her stomach hurts as soon as she starts eating most times. She points to her belly button area. Can you feel the damage from the small intestine--it that what hurts when she starts eating? I would expect her to be better by now. She does not have significant heartburn, her esophagus looked normal and stomach as well according to GI. I am not sure if I should keep waiting out, or pursue other things it could be, which I have no idea what it could be. I am going to try eliminating dairy now, but not really sure it is the issue. Thanks, Jennifer
  13. Is the playdough ok as long as she washes her hands after she plays with it?
  14. Great. That helps. We just found out today that the biopsy confirmed Celiac. I have a lot of mixed feelings but really glad that I may have found someway to keep her stomach from hurting. Thanks, Jennifer
  15. My 5 year old has been on a gluten free diet probably 10 days now. Only one mistake that I know of happened. She is better but still complaining of stomach pain. It starts as soon as she swallows a bite for most foods. She especially has not liked fruits when all this started. We do not have the results of the biopsy yet. We should get them anytime. When she was a baby, she had blood in her stool, which was eliminated with no dairy products. The dr said that they outgrow that and it is not the problem. I do not know if I should just go to the pediatrician and ask for food allergy testing or ask for an allergist specialist or what. I do not know if 10 days gluten free is enough to determine if gluten is the cause of pain or not. She had a positive DGP IgG, which led to the biopsy. Ideas? Thanks, Jennifer