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AlexandraN added a topic in Celiac Disease - Teenagers & Young Adults OnlyHelp....Hi everyone!
I've been gluten free for roughly a year and a half. In middle school, I had periodic, extremely painful, stomachaches. During my sophomore year of high school, I suffered from daily severe migraines. My best friend, who is also gluten-free, suggested I try going gluten free. Within 2 weeks, my headaches were gone. Now when I eat gluten, I get a stomach ache+GI stuff/sinus clogging/headache that lasts 2-3 days.
I also went off of most dairy. I can tolerate high fat stuff like butter and heavy cream. I'm also allergic to soy (traditional allergic reaction to tofu, soy flour, soy protein, etc), which has been diagnosed. My allergist at the local children's specialty hospital does not believe I am truly celiac, because I don't present traditional symptoms. She ran a blood test on me, but I had not been eating gluten intentionally for a year and a half by that point, so I wasn't surprised at all when the test turned up negative.
I have not been diagnosed with celiac/gluten intolerance. I'm seeking the best and most efficient way to get a diagnosis of some kind. As I'm going off to college next year, it'll be easier to confront their dining services with a concrete diagnosis (or if that fails, doctor's notes or something) so that I can have a reasonable chance of eating next year. What would you guys recommend? Should I get tested for other allergies? (the same allergist refused to do a food prick test).
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