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nomorethanfour added a post in a topic Do You Give Anything To Help Ease Pain When Glutened?
nomorethanfour added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms7 Year Old Going Through Testing/ Some ResultsHi everyone! We have a 7 year old daughter that has been vomitting for 2.5 years at night off and on. Treated for reflux, cyclic vomitting syndrome, checked for brain tumors, EEG, EKG, and FINALLY some bloodwork. DH is in the military and we live in Germany right now...so we have several hands in the care of Sadie, some American docs, and some German. The bloodwork that HAS come back so far from the celiac panel are the
TT Ab IgA 3.52 reference range (0 - 15) Normal
TT Ab IgG 152 reference range (0- 15) High
The IgG number has me freaked out! That is crazy high...or at least it seems crazy high. What are some of the numbers you have had?We go back to the German doc on Friday and I'm curious as to what the next step might be? Is it normal to do a biopsy to confirm? I like to prepare Sadie for what to expect. I guess I'm just looking for some reassurance. This has been a very long road and it looks like we may finally have some answers.
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nomorethanfour added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsNew Here With Some QuestionsHi, My name is Jen (38 years old) and I am just desperate for somewhere to turn for some answers. I'm waiting for my celiac blood screening panel to get back and in the meantime I'm just miserable! My history is pretty simple - I never had any gi issues growing up. The first episode I ever had was four years ago when I was pregnant and one evening I had these sulfer burps and bloating that were so horrible- they lasted for hours - followed by horrible diarrhea - then vomitting. It was the strangest "illness" I ever had and somehow I knew it wasn't just a 24 hour bug (noone in the house caught it). I never had it again until 2 months ago and the moment the sulfer burps started, I knew what was coming. I went to the doctor the next day and he sent me to a GI doctor (we are in Germany - DH is in the Army) and they did a colonoscopy and scope looking for a blockage and everything was fine. He told me to eat more fiber and I'd be ok. Well, in the past two months I've had 12 episodes of the same nature and I'm almost positive that it's gluten. One of the things I've read is that people with Celiac have recurrent miscarriages - well, I've had 10 of them and another infant death due to a premature birth at 24 weeks. I'm also wondering about my daugter - she is almost four years old - she doesn't have GI issues, but she has horrible excema that she has battled since she was born. Thanks in advance for any advice you might have!
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