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eborzecki added a topic in Celiac Disease - Coping WithMy Husband Doesn't Get ItMy husband doesn't understand why I don't want to go to parties, especially his family. Some of them know I have Celiac others don't he doesn't think I should go around telling everyone, and if I do say something he gets upset.
Its a loose/loose situation for me and I am so sick and tired about it. I have been diagnosed with Celiac 3 months ago, and it has been a rocky road. Especially since I lost 60% of my hair and just learned why going gluten free was not helping (who would have thought to buy gluten free shampoo).
His parents know I have Celiac, and we went to a party last weekend, I set by his dad and only took potatoes and a salad barbecue I knew everything else was unsafe, and in front of everyone his dad says that I should take some meat, that it wont hurt me, and that I can always rinse it out in water. I told him no thank you and went on eating, and then he brings me a beer and opens it up and gives up to me telling me that it won't hurt me, and of course the cake with him and others asking why I am not eating and that I should finally stop dieting (I was on a diet and lost 60lbs in 13 weeks last year, they think I am still trying to do it and am just covering it up with this)
I am sick and tired of going to parties and watching everyone eat, my husband doesn't think bringing my own food looks good, but I can't eat anything and if we are there for a while I do get hungry especially when I see everyone eat. Then of course is the fact that people look at me like I am an alien and unappreciative because I don't eat the food.
We have a party this weekend and I don't want to go, but he doesn't understand why. I am sick and tired of explaining this, he doesn't understand that I have to live with this for the rest of my life, and its not easy.
We have been together for 6 years, and have two kids, I love him but I am starting to think this marriage will never work, because of this. I can't keep on shedding tears over this and been depressed.
What is wrong with bringing my own food? Standing up for me? What is wrong with telling people that I have Celiac and can't eat what they are eating?
- 22 replies
- 2,667 views
eborzecki added a topic in Celiac Disease - Coping WithCosmeticsI never thought this would make a difference, but every since I started using gluten free hair products my hair not only look fuller, they are not falling out anymore. YAY!!! After loosing over 60% of my hair this is awesome.
I am having acne problems as well, and decided to switch my cosmetics to gluten free, I am looking for eye liners, mascara, and foundation and wanted to see if anyone know of any that are gluten free.
I have tried contacting companies but have learned that unless you provide them with a specific item they won't tell you much, and the ones I have can't be guaranteed gluten free.
I would really appreciate any insight on this.
- 4 replies
- 574 views
eborzecki added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)Diagnosing CeliacI would like to know how you were diagnosed, and if you don't mind what your tests results were. I am curious
- 1 reply
- 687 views
eborzecki added a topic in Celiac Disease - Coping WithFirst Christmas As A CeliacThis will be my first Christmas as a Celiac and I am still learning, although my sister has Celiac she is the kind of a Celiac that cheats on her diet so my whole family thinks that its okey to cheat sometimes
I am suppose to bring cake and I am hoping that you guys can give me some suggestions of cakes I can find that are gluten free that everyone can enjoy.
My mom said she will make some gluten free stuff for me and my sister but I insisted that I will bring my own, she isn't to happy about it but she will not let me make enough for everyone because she has to have the ones that contain gluten. Makes me said but oh well I will still make enough and I will be curious to see if people can tell the difference.
We are also going to my husbands family and not all of them know I have Celiac, I am from Poland and we have the tradition of breaking first communion wafers (in larger size) with each other and wishing each other well. How do I deal with this, as I can't eat it obviously? I don't want to look like an idiot or someone who doesn't appreciate the wish but I also don't want to step in the door and tell them I have Celiac I can't eat anything you made unless you tell me exactly whats in there. My in laws know but not all of the extended family.
Any tips on how to decline things and not hurt others feelings, how to deal with Christmas in general, and any good store bought cakes like from Whole foods or trader joes?
- 12 replies
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eborzecki added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)This Is Just Confusing (Iga, Ttg, Iga Deamidated)I just got written lab results and I am confused, I thought I had this all straighten out
Beginning of November
Gliadin antibody IGA 56 HIGH (cut off 18)
TTG antibody 111.6 Positive <20
I then went on a two week diet and doctor told me to repeat these tests in a different lab
End of November
Anti deamidated Gliadin Iga 258 HIGH (cut off 20)
TTG antibody 68 Positive <20
So I was all scared and really no explanation of why my TTG went down and my IGA went up, now I am more confused because I don't know what the difference is between these tests, and what does it mean when I have all three positive
- 4 replies
- 1,269 views
eborzecki added a topic in Celiac Disease - Friends and Loved Ones of CeliacsChristmas Dinner And My MomI was diagnosed with Celiac three weeks ago and since going gluten free my problems seemed to have gone away.
My sister has Celiac and she likes to cheat on her diet, I decided that this isn't for me and I want to be as healthy as possible. She is doing Christmas dinner and my mom is helping her. We are from Europe so a lot of dishes take time to find the right recipe to re-create. I recreated one of the soups and suggested to my mom that instead of making a regular gluten soup we can make this one and everyone can eat it and enjoy it the same because it tastes the same and takes the same amount of time. I even suggested I will make it.
The response I got from my sister was no problem, but my mom said I shouldn't make to much because she will make a regular one as well.
I asked her to make something for my birthday and put gluten free pasta in that I bought, instead she gave me everything prepared and made a separate gluten free pasta and a separate regular pasta.
My mom believes that I am overreacting because my sister cheats on her diet, and she thinks a little gluten won't hurt. I even stopped eating there. I am also considering bring my own food for Christmas.
My dad wants to get tested but she is talking him out of it and won't get tested either because she has no classic symptoms, when in fact she has many that could go with celiac and so does my dad.
I just don't understand why she would want me to get sick
Me and my husband talked about getting the kids on a gluten free trial as well but she watches our kids from time to time and she thinks I am crazy for even thinking to do this.
How do you deal with people like this especially when they are your close family?
I feel so sad and it just makes me want to cry, I just want her to understand and not lie to me, and its not like gluten free foods tastes any worst or that it will kill her.
- 9 replies
- 1,586 views
eborzecki added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsMy Doctor Just Called Regarding My Follow Up Blood TestSo at the beginning of November I had my TTG and IGA tests done
TTG 111.6 RANGE <20 POSITIVE
IGA 56 RANGE <18 HIGH
I was on a gluten free diet for about two weeks and repeated these tests in a different lab and here are the resutsl
TTG 68 RANGE <20 POSITIVE
IGA 268 RANGE <18 HIGH
Why is it that after going gluten free my IGA rose and my TTG dropped, my idiot doctor has no explanation and my GI told me to see him in 6 months
What is wrong with this?
- 1 reply
- 498 views
eborzecki added a topic in Gluten-Free Recipes - Baking & Cooking TipsWhat Can I Make With Gluten Free BreadI bought three different types of gluten free bread and they are disgusting, what can I make with them so that they don't go to waste? Two of them are rice and one is tapioca
- 9 replies
- 976 views
eborzecki added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)Ttg Drop Is This NormalMy original TTg antibody were 111.6 two weeks after going gluten free they are 68, <20 range.
Is a drop like this normal?
- 2 replies
- 427 views