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alcie

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About alcie

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  1. I was tested a few years ago for Celiac and came back negative. My GI told me I might be a little gluten sensitive but he didn't think it was a big problem for me long term. My 6 year old daughter has also had GI issues for years and after trying dairy free and various medicines hoping she would "grow out of it" we recently had her tested for Celiac. She and I both came back negative on everything but IgG and I don't carry either gene (hers were not tested). Her ped GI told us we could get an endoscopy or wait to see what happens. We didn't want to schedule her for an endoscopy so I requested a copy of my old medical records to see how my biopsy results came out. We also put her on a gluten free diet and within days she started saying her stomach feels better (it used to hurt almost all the time based on what she would tell us) and her appetite has also improved somewhat. I'm pretty sure we're both NCGI but when looking at my old lab reports it looks like there was damage and from what I've read NCGI does not cause damage? Can anyone help me interpret these? Elevated IgG at 45.1 (ref <10), all other values normal (he ran a full celiac panel) DQ2, DQ8 negative The notes from the procedure read: Granular mucosa, folds slightly flattened and/or irregular to scalloped. Lab results from biopsies: Normal mucosa. Normal IEL's. The numbers of mast cells were tested and came back high in multiple biopsies.
  2. No, he didn't test her total IgG, just the total IgA. I had blood tests run a few years ago and my AGA IgG levels were also high, I had damage visible during my endoscopy but he never told me how bad it was. My GI just said I was reacting to something but my IgA levels were fine and I didn't have the genetic markers so it wasn't Celiac. My daughter's symptoms are pretty similar to mine (I just have more of them) and both of us have IgA in the normal range but IgG is high.
  3. Here are her numbers, I'm not sure if her IGA numbers are low or just within the normal range. 2014: Demediated Anti-Giladin IGG: 33 strong positive (20-30 is a weak positive, 31+ is a strong positive) Demediated Anti-Giladin IGA: 1 negative (normal is 0-19) TTG IGA: less than 2 (negative is 0-3) Total IGA: 42 (normal is 44-89) 2015: Demediated Anti-Giladin IGG: 33 strong positive (high is greater than 20) Demediated Anti-Giladin IGA: 2 (high is greater than 20) TTG IGG: 2 (high is greater than 6) Quantitative IGA: 52 (normal range is 33-235) As a side note I was also tested in 2009 and came back with similar results. My GI said I had damage based upon the scope but that it was not Celiac. I don't know what damage he saw but he said he could see it without the biopsy results. I do not have either genetic marker. AGA IGG: 45.1 (high was greater than 10) AGA IGA: 1.5 (high was greater than 5) TTG IGA: 1.2 (high was greater than 4) Total IGA: 155 (range 44-441)
  4. We're currently trying to figure out of my daughter is celiac or just gluten sensitive (she has high dgp IGG numbers but is IGA negative) and I think I'm gluten sensitive. It looks like there are a lot of research articles on long term effects of untreated celiac but not non-celiac gluten sensitivity. Does anyone know if there are long term health effects (besides current gluten reactions) to not eating a gluten-free diet if gluten sensitive?
  5. My 6 year old has had cronic C and heartburn since she was an infant. Sometimes it goes away but she's constipated most of the time even with Miralax or other stool softeners and the heartburn is pretty regular. We had blood tests run in Feb of last year and the ped GI said to either scope or wait and retest every year or so. We took her off of dairy for a couple of weeks last year but it made no difference so we went back to her regular diet. I took her back to the ped GI last week because she was complaining of hearburn more frequently and he ran another set of bloodwork. His recomendations are the same, scope now or retest the bloodwork every year. We have not had the genetic tests done but I was tested a few years ago and was negative for both. We're not comfortable with putting her through an endoscope at this point because she's a very happy child and beyond the issues mentioned above she seems healthy. Since her other numbers are fine there's no chance she has celiac right? 2014: Demediated Anti-Giladin IGG: 33 strong positive (20-30 is a weak positive, 31+ is a strong positive) Demediated Anti-Giladin IGA: 1 negative (normal is 0-19) TTG IGA: less than 2 (negative is 0-3) Total IGA: 42 (normal is 44-89) 2015: Demediated Anti-Giladin IGG: 33 strong positive (high is greater than 20) Demediated Anti-Giladin IGA: 2 (high is greater than 20) TTG IGG: 2 (high is greater than 6) Quantitative IGA: 52 (normal range is 33-235)
  6. My 5 year old daughter had a blood test for celiac by her pediatric GI due to cronic constipation and heart burn. Both her IGA and TTG are normal but her total IGA was below normal and her IGG came back as a strong positive. Her doctor gave us a couple of choices, 1) we can get an endoscope to look for damage from celiac and if there is none he's fine waiting 2 years for another blood test, or 2) we can wait and get another blood test every 6 months or so. He did recomend trying a dairy free diet while we decided what path to take for the celiac testing. Can anyone tell me what the numbers below might mean for someone this young? Anti-Giladin IGG: 33 strong positive (20-30 is a weak positive, 31+ is a strong positive) Anti-Giladin IGA: 1 negative (normal is 0-19) TTG IGA: less than 2 (negative is 0-3) Total IGA: 42 (normal is 44-89)
  7. So if you're gluten sensitive you're also gliadin sensitive right? From everything I've read it sounds like they go together and often times gliadin is the main culprit. Is this correct? Maybe my results came back with gluten marked as a moderate reaction simply due to having a leaky gut? Or could it be that I'm sensitive to wheat and not gluten?
  8. I had both genetic and biopsy testing done doe Celiac and both came back negative, I don't even have one of the Celiac genes. I was still having digestive troubles though and since my GI doc noticed I had a leaky gut when he was doing the biopsy he suggested an (Company Name Removed - They Spammed This Forum and are Banned) test. This test showed that I had a moderate reaction to Gluten and no reaction to Gliadin. So now I'm confused, could I be Gluten Sensitive or does it sound like my symptoms might be coming from another allergy?