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Babs83

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About Babs83

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  • Birthday 10/02/1956

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  • Gender
    Female
  • Location
    Kansas
  1. Happy birthday and may God bless you today!

  2. Rice Chex are now gluten free. They use molasses instead of barley malt extract.
  3. My sister went to a different Doctor, and yesterday had a endoscopy and a colonostopy. They were thinking that she is bleeding in her colon b/c her blood count is 8.5 and her platelets are around 45,000. I went with her and the doctor said that she didn't look like she had celiac (this doctor was pretty sure that she had celiac) to the eye but he did take a biopsy and they were sending it off. Her colon was fine. He said that some people just go on the diet and feel better. I wasn't diagnoised but had migraines bad, I just went on the diet and feel so much better that I will neve intentionally eat wheat or gluten again . I just need to covince her to give it a try. She goes back to the doctor for the results in 2 weeks.
  4. My sister got in to see another doctor and he is going to do the endoscopy on Monday, July 2nd. He said that Celiac is very hereditary . And that most of her symptoms are associated with celiac!! I'm so glad she finally listened to me. I about 100 percent positive that she has celiac. I never got the biopsy, because no doctor would believe me when I told them I thought my Migraines were from celiac disease. So, I just stopped eating wheat & gluten and I feel soooo much better. I don't need a piece of paper for that.
  5. My sister went to a gastronalogist (sp) yesterday. She had blood tests about a year ago and they came back negative. She is suppose to have a colonostopy and he scheduled it for July 25th (I think), anyway I finally convinced her to ask him about celiac and that she wanted to be tested for it. He told her that the blood tests were about 99 percent accurate and that celiac is not hereditary !! He said he would go ahead with the biopsy since we was going to be doing other tests and that way she wouldn't have to did it later. She was not impressed with him at all; he said something about people doing self diagnoising!! She has so many health problems, anemia, fatty liver, diabetes, low blood platlets, obesity, fatigue the list goes on!! She is very anemic (8.something) he said she didn't have a low iron count, but he would do the blood work; that he thought her bone marrow wasn't making enough blood? She had her bone marrow tested recently; and she was referred to him by a cancer doctor!! I really hate some doctors!! Thanks for listening Barb
  6. Yes, I am gluten free. Have been for about 6 months. My sister went to a gastronalogist (sp) yesterday. She had blood tests about a year ago and they came back negative. She is suppose to have a colonostopy and he scheduled it for July 25th (I think), anyway I finally convinced her to ask him about celiac and that she wanted to be tested for it. He told her that the blood tests were about 99 percent accurate and that celiac is not hereditary!! He said he would go ahead with the biopsy since we was going to be doing other tests and that way she wouldn't have to did it later. She was not impressed with him at all; he said something about people doing self diagnoising!! She has so many health problems, anemia, fatty liver, diabetes, low blood platlets, obesity, fatigue the list goes on!! She is very anemic (8.something) he said she didn't have a low iron count, but he would do the blood work; that he thought her bone marrow wasn't making enough blood? She had her bone marrow tested recently; and she was referred to him by a cancer doctor!! I really hate some doctors!! Thanks for listening Barb
  7. My sister almost passed out at work yesterday, her Iron count went down over a whole point in one week. She is in the hospital today getting 2 units of blood!! Why are some people so thick headed, I told her anemia is the biggest symptom. She has too much faith in doctors.
  8. I'm not sure what her counts are right now, they have been as low as 16,000. She has been to a hemotalist (sp) now she is going to a cancer specialist. Next week she is having a colonostomy. She has had a bone marrow done and they found nothing there. I'm afraid she will start bleeding internally!! Thanks for all your suggestions, she doesn't want to have celiac. She said she might suggest it to the doctor! MIGHT!! I don't think the diet is that bad, I have never been a big pasta and bread eater. I do miss pizza hut pizza!! Do you know of anything that will bring down your LDL? Mine is 158!! I tried some statins and they made my legs hurt, Niacin made me sick to my stomach and my stomach hurt.
  9. My brother was diagnosed about twenty years ago with Celiac. At the time they thought he had AIDS. They didn't tell him that if he has it, that there is an 80% chance that his siblings have it. Of course, they think it is rare!! Well, I started getting bad migraines after the birth of my last child 14 years ago. They weren't very often at first but eventually I was getting them every other week if not weekly and they would last for days. I went everywhere, they told it was stress and put me on anti depressants and of course I still got them. I finally got them to do the blood tests for Celiac and of course it came back negative; so I just eliminated the wheat and gluten from my diet. I get an occasional migraine now and again. I don't need a piece of paper to tell me that I have Celiac. But, what I am actually writing this for is my sister has numerous thing wrong with her. She is diabetic (which runs in my family), has VERY LOW platelets, is anemic, has a fatty liver, they put her on prednisone to get her platelets up which it did at first. But now they are dropping, she has some kind of mump virus now. She is waiting for the results of the mump test (she had mumps when she was little). I told her I think she has Celiac; they did blood test and they came back negitive. I've begged her to have them do the biopsy. She has put too much faith in the doctors, I think she is slowly dying and I can't help her!! Has anyone else had the low blood platelets? Thanks, Barb
  10. I work one day a week at our hospital emergency room. The cafeteria doesn't know what you are talking about when you ask if they have any gluten free items. My brother who goes into shock and can't breathe when he eats gluten was in the hospital about a year ago and his wife had to read all the labels on the things they wanted to feed him. He finally ate mashed potatoes, eggs and some juices. I usually have to take my food.
  11. I tried this recipe last night and mine came out flat also! I was very disappointed, but we ate the dough. That's the best part.
  12. My brother was dianosed about 15 years ago, his doctor is in Leavenworth, KS. His name is Dr. Diallo; I think I have celiac. I had negative blood tests, I don't need the piece of paper that actually says I have it. Have been on gluten free diet for a couple of months and Headaches have all but disappeared, brain fog is gone. I think my daughter has celiac, she also had negative blood tests but she doesn't want to do the scope yet. When she does I will take her to Dr. Diallo, his wife also is a gastronolotist in with him. (Our pediatrician suggested her but she goes by her maiden name and I can't remember it). Good luck.
  13. My mom uses mashed potato flakes to hold it together. It's really quite good
  14. My brother has been glutin free for years, whenever he eats anything with gluten in it his body goes into shock. His chest become real tight and he has trouble breathing, has to go to the emergency room for a shot. Now he carries an epi-pen.
  15. Hello, I've been reading the board for quite sometime, but have never really posted before. My brother was dianosed with celiac about 18 years ago. At that time they thought he had AIDS, he was losing weight and really bad diarreia. They didn't say anything about getting siblings tested. About 13 years ago after I had my last baby I started getting headaches. I get them now monthly, sometimes weekly. I did the blood tests and they came back negitive so I just went on the diet and I'm beginning to feel really good. My problem now is my two daughters, one is 16 and the other 13. They have been getting headaches. I had the 16 year old's pediatrician do the blood tests and they came back yesterday - negative. I really want to know for sure if she has celiac, because without the diagnosis people think you are nuts! Should I have the biopsy done? Thanks Barb