This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
It's been quite some time since I've posted here, but I'm needing a little bit of help. I'm getting married and therefore need a gluten free wedding cake. The problem is I'm getting married in a city (Kansas City) I have never lived in, so I'm not sure where to start hunting for a gluten free cake. Any suggestions would be very, very much appreciated. Also, it need not be in Kansas City. My fiance has family coming from all over Kansas, and my brother lives on the Missouri side, so we could work something out.
The disease and the diet can definitely make you feel like a 'freak' sometimes. Especially in the beginning when you still are feeling crummy most of the time and getting used to the diet. It all seems so overwhelming, that the additional struggle of trying to fit in and give an explanation for yourself can be burdensome. I found out only a few months before moving to a new state to go to grad school; I was still pretty sick and skinny (making me look a little sickly, too). I was sure everyone would view me as 'that sick girl,' but I think the problem for me was this is how I viewed myself. I was nervous about being 'too much trouble' or seeming whinny. I think as my view of my self from a sick person to someone who sometimes gets sick (which sounds like everyone I know) really caused me to be more comfortable with explaining myself. I think it takes time, and I do relapse and feel a bit sorry for myself (usually around a really severe glutening). I think it also helped me be more adventurous in my food choices (not risky, just trying new dishes that are naturally gluten free). I eat a lot of Thai and Indian food now, so my friends at work are alway jealous of my meals when they look at their boring sandwiches. Today I even believe that there can be good things about Celiac disease...I mean the diet cuts out most of the bad food people eat! It keeps my health on my mind, so I'm good about working out and staying healthy.
As for dating and meeting new people, I've found what others have said to be true- the more comfortable and confident you are with yourself, the more accepting new people will be. I actually tend to think that my friends I've made since being diagnosed are way more supportive than the ones that new me before because Celiac's has become just part of who I am to them and no big deal. When I'm at a restaurant and don't ask enough questions because I'm embarrassed, they'll jump in and make sure the waiter is accurately informed. As for friends you've had, if they saw you sick and then see you improving on the new diet and still can't accept it, then they are crazy. Anyone who has ever seen how sick I get from being glutened are sometimes more vigilant than even I am.
Good luck, and it will get easier and less tedious.
I'm so happy I found this thread!! I switched back to being a vegetarian last summer and have been taking supplements. I thought I was feeling crappy because my stomach wasn't used to them or something. No...glutamine peptide is the culprit. Thanks for the tips on the muscle milk and EAS...I'm switching over.
I like to simplify it by saying gluten is a protein in some grains that my immune system recognizes as poison. Once that response is triggered, my body can't tell the difference between the grain it meant to attack and my healthy cells, so I pretty much self distruct. That covers everything in my opinion without getting too gross about the details.
I defintely think the big C makes me a huge grump. I was just going to add that as long as I stay off of gluten, magnesium oxide is the best cure in the world. It won't cause the misery that other 'solutions' will. I swear by it.
Hello there, I'm 25 and in school, too. The gluten-free diet can be a little expensive and inconveinent for the college budget, but it is a good bit healthier than the average college-age cuisine. Those Thai Kitchen rice noodle soups are cheap and a gluten-free form (and tastier, too IMHO) of ramien. So, you can be cooking your $1 noodles with everyone else.
When it come to going to parties and such, I got myself a flask that I carry to pretty much every party where there will be boozing. It keeps me gluten-free, limits how much I can drink, and best of all earns me toughness points with my buddies. It's a real image booster when you're a smallish girl.
The pizza thing is really annoying and sort of hard to get around. But I've found that my friends use me as an excuse to get different food. I live in a pretty multi-cultural area, so we like to go for Indian, thai and sushi a lot. I've also found that alot of the friends I've made in school since going gluten free are better about watching out for me because they never knew me before I had to be gluten-free.
The items I always have in my workspace at school are peanut butter and caramel rice cakes, Thai kitchen soup packs, fresh & dried fruit, Amy's organic soups which you can find in most groceries, popcorn, fritos, nuts, rice crackers & humus.
I definitely do recommend a flask though. It will be the conversation piece rather than why you can't drink beer
I have to echo what almost everyone else has said. My period went from wacky (a.k.a non existent) to normal or me. It's pretty much hit around the 25 day mark....until yesterday. It came back after only a week. It's spotty now, but still I'm a little concerned. I was glutened about a week and a half ago, could this have something to do with it or should I get my hormone levels checked? Or could they just be messed up because of the gluten? Just when I thought I was getting back to normal
You're not too far from me! I go to Cranbrook Art Academy, so I'm over here in Bloomfield Hills. There's actually another girl here who has Celiac's, too. The food fair is from 10:00 AM to 2:00 PM at The First Presbyterian Church of Farmington (26165 Farmington Road, Farmington Hills). I hope you can make it.
PS. If you're ever in this neck of the woods, there's a great little cafe that's 100% gluten free and they have pizza!! It's called Belcibo, in Clawson.
I'm a college student in MI, too. It's a big adjustment going gluten free, and it definitely is something that a lot of other people will find strange. However, I've found that my friends at school are really supportive. If you're going to school in Southeast MI anwhere, there is a gluten free food fair in one of the suburbs just west of Detroit. I'll be there because I live right around here. Let me know if you want to meet up.
I LOVE, LOVE, LOVE my boyfriend and his entire family. Without them and their support, I don't know what I would do. My boyfriend is the most patient, level-headed, generous guy around, and his family has more or less taken me in and made me one of them. Even though I am in grad school and live 800 miles away now, his mom, brother, and grandmother all stay in regular contact with me (they are in Georgia, bf in Memphis, me in Detroit). It's soooo good to be on someone else's love list!!
I LOVE those little moments when my boyfriend and I are alone and so goofy, but perfectly right for each other. No one could understand us but each other.
I LOVE that there is a 100% gluten free pizza place within 15 minutes of my house now. (www.belcibo.com, if you live in greater Detroit area).
I LOVE that my friends at school (who met me after dx) often get the facts on whether something is gluten free or if I can safely eat in a restaraunt before I even have the chance to open my mouth.
I LOVE my dog.
I LOVE that I have the opportunity to pursue something I really love. Being in school is such a priviledge.
I LOVE that by working in the library, I have a whole set of friends that love the same sort of nerdy things I do.
I LOVE, LOVE that I am almost back to normal, that I feel human again, that this diet can be controlled more or less as long as I am careful. What is inconvenience in the light of being healthy again. (the brain fog is finally lifting!!!!)
I love a lot more things, but I it's late and I just finished my first year reviews today(which I also love being through that), so it's time to go to one of the places I love...my cozy bed!!!
I'm finally feeling pretty good again, so I can take most of these things with a grain of salt, but it doesn't hurt to vent a litlle here:
I hate when my department head tells me he understands my restricted diet because he's a vegetarian and I can't bless him out because he's my department head.
I hate that immediately after this he tells me we're ordering pizza for a departmental dinner.
I hate being reduced to eating a salad so often when eating out.
I hate being so skinny and feeling guilty for hating that I am so skinny because all my other friends are trying to lose weight. I really hate that I have a friend who is trying to lose a substantial amount of weight and we often go to the gym together, and I just have that feeling that I make her feel bad.
I hate that my 'disease' becomes the topic of conversation at nearly dinner/party/bar when I meet someone new. That whole Now why can't you eat grains -what a freakish body you have-tell me more syndrome. Particularly when my other friends could probably recite my lines for me.
I hate the stinking inconvenience of a gluten free diet.
I hate most of all that my mother almost assuredly have Celiac but won't get tested. It worries me all the time.
I hate nausea. Really. I hate it. Three straight years of it constantly, and somehow I think that should be exempt from ever vomiting again.
Well, I guess now that I've purged myself here, I should count my blessings on the love,love,love page...
I lived in Florence for about a year, that was before my dx, so I can't speak to how friendly or educated the italians are about Celiac Disease. If you're going to be there for 3 months, my guess is you're not going to want to be eating out all the time. There is an incredible two story market where you can get any fresh food you want from fruits and veggies to meat and cheese. (Beware of unidentifiable sausages, etc of course). It is near the train station. If you follow Via Sant'Antinino past the Medici Chapel, you will see the large two story building on you're right. It's surrounded by a bunch of street vendors, so you can't miss it. You'll want to make sure to go before noon though while all the vendors are still selling.
There is also a supermarket of sorts where you can get foreign and speciality items. Again, I can't remember the name of it, but it is on a side street off of the Duomo in the direction of the Arno. I know this makes no sense now, but Florence is a very small city, if you wander around, you will almost assuredly find it. Plus, if you don't speak italian, 90% of the people who live in Florence speak some English (kills the foreign experience but helps when you're looking for something). If you're interested, I could give you more specifics, you can message me, and I'll dig out my maps and notes and such and let you know a few more places even, or if you have any other questions; I love Italy, and Florence is a wonderful city.
Could you post that information maybe or send it to me, too. There's another girl here at school who is Celiac, so I'm sure she and I both would want to go. I had no idea there was a food fair so close either!!