Dyverg replied to Dyverg's topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsWould you believe I have a dermatologist appointment this morning that was scheduled over three months ago!? Hope the blisters are as far along or not so far along, that there is a conclusive result. I have two separate patches going at present. And I hope that if I am given any resistance regarding the test, I'm strong enough to insist. Here goes nothin'!
Dyverg posted a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsI'm 44 and have suffered from random blistering on my back side since I was at least 19. It was diagnosed as shingles, but I could never understand why I got it so often and why it would manifest on different sides at different times. I have gone to the doctor for constant aching and always being so tired, but no one ever really listened. I always have headaches and just counted myself as one of the lucky ones. And then there were the tummy issues. If I wasn't experiencing one end of the spectrum, I was totally on the other end. I didn't realize until recently how the stomach issues had gotten so predictable till my new husband noted my time limit on how long I could stay out after having gone out to breakfast. I generally have 30-45 minutes after the first bite. That's when I realized just how Ill i was getting, consistently and at times, predictably. I have had stomach issues for so long that I just took it for granted that it was how my stomach did things and if I would only pay more attention to how much water I drank or didn't drink, or the grease that was ingested, or the amount of fiber I took in. I figured I was just lazy at figuring out what I was doing that others didn't. Last year I made a huge effort and lost 43 pounds. I thought since I was losing weight I must be doing my body right, feeding it good healthy things (i've never been a junk eater or fast food, but I have worked in a bakery and I do love the sweets!) . Since I still felt miserable all the time I again figured it must be just the way I am. Then, 2 days ago, I was coming down with a cold. I was in bed and realized i was feeling the itch of yet another bout of blisters. Frustrated, I searched "random blistering on back" and came up with all this information regarding gluten intolerance. The next day, I made a bowl of tabbouleh for lunch and ate it all while reading the new found information. I spent the next 7 hours thinking I was dying. First the bloating, then aching, and then the world came unglued. I lost 3.5 pounds that day alone. This morning my stomach still hurts but I can live with that. The problem now is I'm terrified to eat anything! All of the celiac disease symptoms are me! I went to the grocery and focused on fresh veggies, got some gluten-free marked frozen dinners and some gluten-free rice cakes. The forums seem to say get tested, but doing that will take time and may not even be conclusive from what I read. Seems easier to just attempt the diet since I CAN'T go through again what I did yesterday! I don't know what to do! Then, once I get past this, what about gaining weight? all the gluten-free products seem awfully high in fat and carbs. I'm confused, scared and too uneducated to figure out which direction to go next. Help?