Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

lil'chefy

Advanced Members
  • Content count

    77
  • Joined

  • Last visited

Community Reputation

2 Neutral

About lil'chefy

  • Rank
    Advanced Community Member
  • Birthday
  1. I actually do a whole foods diet and little to no dairy, it hurts my stomach
  2. I should mention that I was deficient in Vit D, and ave been taking 5,000 IU's a day for 5 months now. I take a B-12 folate supplement, in addition to a MV. I have had my cortisol levels checked and they are dangerously low, I have been told. I can not however get any Drs. to take it seriously, that is what I am hoping for with the endocrinologist. As for the thyroid hormones, I had them tested, and they are on the low side of normal, so I am taking Thyrofem, I take Adren-all for my low cortisaol levels.
  3. Shouldn't I have started to feel better on the Gluten-Free diet. I did it religiously for 13 mos. No change:-(
  4. So, I posted this post on someone else's topic, and I want it to get more attention than that, as my reply doesn't have its own title, and I could use some advice, suggestions. So I am sorry about the repeat, but here goes.... I have "had" celiac, via DH diagnosis for 23 years. I have taken Dapsone for 20 years (100mg.). I stopped the Dapsone maybe 1-2 years ago. I was on a gluten free diet for about a year, after discontinuing the dapsone. I am eating a clean regular gluten included diet right now, but considering going gluten free again. To date, I have not had a DH breakout in many years. I had a skin biopsy confirming DH done 3 or 4 times (years ago). Right now, I am struggling with the idea of going gluten-free again. I hate eating food that is in no way comparable. There really is nothing as delicious a a steaming loaf of homemade gluten derived bread, ya know? The fact that I have not broken out makes it very difficult for me to go on such a strict regimine. Now I will move on to my current symptoms, and maybe someone could help me understand why I am not breaking out, or what the relationship is for me. First, you should know, I have had the celiac panel--- It says I don't have celiac disease. I have had a blood test done for food allergies---It says I don't have any, accept for sesame, which I eat all the time, and have never had a reaction to. I have little faith in the blood allergy test. I have had an endoscopy done, no sign of celiac disease there either. When I was pregnant with my now 5 year old, she was not growing inside of me, not matter how much food I ate. I was gaining, but she wasn't. She was diagnosed with intrauterine growth restriction. I was eating gluten at the time. I did not make enough breast milk to nourish her. My next pregnancy, with my now 3 year old, was fine for him, but almost ruined my vascular system, which has never been the same since. I also did not produce enough breast milk to sustain my son. Now I will list the health problems that I have been struggling with for a couple to a few years now (since my 3 year old was born). First off, I have stopped making ALL hormones, at 36 years old:-(. I am currently on bioidentical hormone therapy, but so far, that has yet to help me feel better. I have had saliva testing done and blood work done for my hormones. Both show that I am not even in menapause, I am not making ANY HORMONES. I have extreme adrenal fatigue. I have always had ADHD symptoms. I have pervasive, relatively new joint pain. Literally all of the sudden, my skin is ridiculously dry, and my skin is aging VERY rapidly. I am having massive female problems, but still cycling. I have been passing out, only twice, but still, I have a 5 year old and a 3 year old! Tests show that I am flirting with hypothyroidism, I test on the low side of normal. I have been having severe anxiety/ mood swings for a few years. I CANNOT lose weight, no matter what I do. I count calories, and run for exercise. I don't lose any weight, I just make my bones hurt and make my exhaustion profound. My feet hurt so badly, that I don't feel like I can walk correctly sometimes. I am in school and I nod off sometimes! That is so not like me. My blood pressure is so low, sometimes at the doctor's office, they don't want me to drive home. I take immaculate care of my teeth and my mouth, but to no avail (they are decaying at a rapid rate of speed, and my gums are so sore). I should also mention that I got crazy, they won't stop, nose bleeds when I was little, but was always only on the brink of being anemic. All these reasons and many others are why I decided to go gluten free once and for all November of last year. And so I did....... I got absolutely NO relief from any symptoms what so ever. It was very depressing for me. I thought I had finally nailed it...that silver bullet that so many doctors miss. They have run a lupus panel. I don't have that. I am SO tired of feeling like crap. If anyone has any info for me, it would be invaluable for me. I have an appointment with an endocrinologist later this month, but I am pretty pessimistic about the outcome.
  5. This is so scary for me to read!!!!!! My mother had THE exact same stuff! Baretts and all. Have you had an EGD? My Mom developed malignant neuro endocrine tumors. It turns out they were treating her for severe GERD b/c of reflux symptoms, but in a last ditch effort, they found out she was making NO stomach acid, and in fact was making WAY too much gastrin, which provides a perfect environment for cancerous tumprs to grow! Ask your doctor immediately to test your gastrin levels. Run don't walk to the Dr.! People die from barrett's and it is supposed to be a drinker and a smoker's disease. If that doesn't explain you, then be very wary! Also, if the anacids aren't doing the job, then stop taking them! Get you AA checked and your gastrin levels checked! Hurry!
  6. This is so scary for me to read!!!!!! My mother had THE exact same stuff! Baretts and all. Have you had an EGD? My Mom developed malignant neuro endocrine tumors. It turns out they were treating her for severe GERD b/c of reflux symptoms, but in a last ditch effort, they found out she was making NO stomach acid, and in fact was making WAY too much gastrin, which provides a perfect environment for cancerous tumprs to grow! Ask your doctor immediately to test your gastrin levels. Run don't walk to the Dr.! People die from barrett's and it is supposed to be a drinker and a smoker's disease. If that doesn't explain you, then be very wary! Also, if the anacids aren't doing the job, then stop taking them! Get you AA checked and your gastrin levels checked! Hurry!
  7. I was strict with the diet for 1 year and one month, then I just started feeling like I was being restricted for no reason. I was showing NO signs of feeling better.
  8. Did you find one? A doctor? I so need a good knowledgable one, and I am in Dayton, OH.
  9. Wow, this happens to me to! Do you think it is celiac related? Or a hypothyroid issue? What is your blood pressure like?
  10. I have "had" celiac, via DH diagnosis for 23 years. I have taken Dapsone for 20 years (100mg.). I stopped the Dapsone maybe 1-2 years ago. I was on a gluten free diet for about a year of that time (strict), after going off of the dapsone. I am eating a clean regular gluten included diet right now, but considering going gluten free again. To date, I have not had a DH breakout in many years. I had a skin biopsy confirming DH done 3 or 4 times. Right now, I am struggling with the idea of going gluten-free again. I hate eating food that is in no way comparable. There relly is nothing as delicious a a steaming loaf of homemade gluten derived bread, ya know? The fact that I have not broken out makes it very difficult for me to go on such a strict regimin. Now I will move on to my current symptoms, and maybe someone could help me understand why I am not breaking out, or what the relationship is for me. First, you should know, I have had the celiac panel--- It says I don't have celiac disease. I have had a blood test done for food allergies---It says I don't have any, accept for sesame, which I eat all the time, and have never had a reaction to. I have had an endoscopy done, no sign of celiac disease there either. Now I will list the health problems that I have been struggling with for a couple to a few years now. First off, I have stopped making ALL hormones, at 36 years old:-(. I am currently on bioidentical hormone therapy, but so far, that has yet to help me feel better. I have had saliva testing done and blood work done for my hormones. Both show that I am not even in menapause, I am not making any HORMONES. I have extreme adrenal fatigue. I have always had ADHD symptoms. I have pervasive, relatively new joint pain. Literally all of the sudden, my skin is ridiculously dry, and my skin is aging VERY rapidly. I am having massive female problems, but still mensing. I have been passing out, only twice, but still, I have a 5 year old and a 3 year old! Tests show that I am flirting with hypothyroidism, I test on the low side of normal. I have been having severe anxiety/ mood swings for a few years. I CANNOT lose weight, no matter what I do. I count calories, and run for exercise. I don't lose any weight, I just make my bones hurt and make my exhaustion profound. My feet hurt so badly, that I don't feel like I can walk correctly sometimes. I am in school and I nod off sometimes! That is so not like me. My blood pressure is so low, sometimes at the doctor's office, they don't want me to drive home. I take immaculate care of my teeth and my mouth, but to no avail (they are decaying at a rapid speed, and my gums are so sore). I should also mention that I got crazy, they won't stop nose bleeds when I was little, but was always only on the brink of being anemic. All these reasons and many others are why I decided to go gluten free once and for all November of last year. And so I did....... I got absolutely NO relief from any symptoms what so ever. It was very depressing for me. I thought I had finally nailed it...that silver bullet that so many doctors miss. They have run a lupus panel. I don't have that. I am SO tired of feeling like crap. If anyone has any info for me, it would be invaluable for me. I have an appointment with an endocrinologist later this month, but I am pretty pessimistic about the outcome.
  11. pancakes instead of running!

  12. So, my little dude wants a Dora doll for his birthday. I think his Daddy will be horrified, but its Wyatt's birthday, right? Plus its a potty Dora that he wants. Maybe he and Dora can potty together and get inspiration from eachother?!

  13. Same thing has been going on with me. You should have a saliva test done of your hormones (testosterone, estrogen, progesterone, and DHEA) I just had mine checked and they were really way off. Eating gluten for years, when you shouldn't throws off your body's chemistry. I am on compounded bio-identical hormone therapy now; we will see if it helps. By the way, is your weight gain primarily around your middle? If so, you can almost be certain that it is hormonal!
  14. Possibility of neuro endocrine tumor having anything to do with celiac or gluten intolerance (or for that matter, manyfood intolerances)?
  15. I have celiac disease (dermatitis herpetiformus)and often when I have gotten a blood test, I have all the markers for lupus, but when they do the lupus panel, I don't have it. I googled "lupus and celiac" and tons of articles popped up.