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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store.


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About i3oogieDown

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  1. I had good luck at Denny's the other day... I really miss greasy spoon diner food sometimes, but this was a decent substitute.  The eggs/omelets and hash browns were fine.  They have a pdf allegergen list on their website, and I spoke with the server before taking the plunge.  I'll admit I was scared because of the cross-contamination potential, but that was a couple of days ago... I'm feeling good.
  2. Thank you all so much for your input!  What's the deal with the genetic test?  Is that a way to positively identify celiac disease without the need for a gluten challenge?  Is it something that is usually covered by insurance?   I'm currently feeling better than I have in a very, very long time.  I'm eating mostly vegetarian with some occasional seafood and seem to be doing great.  I have more energy than I've had in recent memory, and my concentration is good even without caffeine.  I can't imagine going back to eating that stuff...
  3. Anyone Else Sensitive To Caffeine?

      Ha... sorry, I'm a noob!  This seemed like the thread with the most relevant information regarding the caffeine thing, so that's where I replied. 
  4. You both have some points that I hadn't considered. Motivation to stick to the diet really hasn't been much of a problem lately - long-term pain and suffering is a great deterrent. I've found that I'm starting to lose my taste for many of those things (beer, bread, etc.) since I have such a strong reaction to them. My main problem seems to be accidental exposure, thinking something is gluten free when in fact it is not, and then finding out the hard way 2-days later. :/ Perhaps I'll talk to my doctor again about the testing situation... maybe it's worth a shot.  Hadn't thought about the nutrient levels either.  Thank you both so much.
  5. Good afternoon everyone:   Over the last 7-8 years or so I started to experienced intense food cravings and compulsive overeating of pasta and bread,and later severe GI problems that caused hemmoroids, bleeding, and long periods of bloating/constipation/discomfort.  I approached my doctor about it approx. 3 years ago, and she suggested that it was a common fiber/water intake issue.  However, despite changing my diet and taking supplements, the problems continued to worsen.  I'm 33 years old right now.   Back in March 2013 I did a "colon cleanse," which changed everything for me.  The 5-day juice/fiber fast completely eliminated my food cravings/overeating issues and really helped me to more clearly identify how different foods affected me.  After talking to a girlfriend who has celiac's (she wasn't diagnosed until age 26!), I went gluten-free for a month, and then tried re-introducing beer.  OUCH!  After another cleanse and some more trial and error (both on purpose and by accident), I have become MUCH more sensitive to gluten.  I have been extremely careful, reading labels and asking questions, but my last slip-ups involved eel sauce on sushi, and more recently, tofu that was deep-fried in shared oil (oops).  I have become quite familiar with the increasingly severe GI effects of being "glutened," which usually hit starting two days after an exposure, and are very intense for least a week. I don't seem to be back to normal for at least 3 weeks, however.  It has now been almost 3 weeks since my last slip-up (I think)... I was starting to feel better, but I've noticed that hard-to-digest foods (such as dairy, even caffeine) seem to "bring back" the gluten gut symptoms at times.  I had caffeine over the weekend, and I've really been hurting the past few days.   I've been vegetarian since a fairly young age (meat never tasted good to me) and probably ate entirely too much pasta and bread over the years (particularly in college).  I am also lactose intolerant, but the symptoms are usually just stomach pain/bloating, not anything intestinal.  I have not officially been tested or diagnosed with celiac's, but I have consulted with my doctor.  She said that my symptoms sounded like a celiac-type reaction, and suggested that if it makes me feel better, I should just avoid gluten-containing foods (which I have done).     I am scared to death of going back to eating gluten so that I could be tested. So really, what is to be gained from testing, other than a confirmation of what I already know? Could celiac affect me if I were to become pregnant? Are there other long-term health complications that only testing/diagnosis could identify?  What are the alternatives to the blood tests that could provide some information?  Is a colonoscopy worth it?  What would you do if you were in my situation, and why?   Thank you in advance!!    <3  Sarah
  6. Can I Change My Username?

      All fixed - I've got my new identity.  Thank you!
  7. Can I Change My Username?

     Haha!  That's awesome.  Will do - thank you very much! 
  8. Hi all:   I originally joined this forum because I was concerned about my (now ex) boyfriend's health issues... but he's out of the picture and I'm having problems with gluten!  Is there a way to change my username?  Or do I have to delete my account and start over to use my email address to register?   Thank you,   Sarah
  9. Anyone Else Sensitive To Caffeine?

    I found this thread today while researching the celiac/caffeine sensitivity relationship.  I have not been "officially" tested/diagnosed celiac, but have consulted with my doctor and have been eating gluten-free for several months, after discovering that it seemed to be causing the long-term digestive issues I was experiencing.  I have become quite familiar with the increasingly severe GI effects of being "glutened," which usually hit the hardest starting two days after an exposure, lasting for at least a week.  It has been almost 3 weeks since my last slip-up with a food containing gluten. I am mostly feeling better, but hard-to-digest foods (such as dairy, I'm moderately lactose intolerant) seem to "bring back" the gluten gut symptoms at times, especially if it hasn't been very long since my last exposure.    I have consumed very, very little caffeine since I've gone gluten-free as part of an overall lifestyle/diet change.  I have noticed for years that I am sensitive to caffeine (sleeplessness, jitters, heartburn, etc.), but could usually tolerate it. This weekend my sleep was disturbed and I had a lot to do, so I decided to try a little DD coffee on Saturday afternoon.  Starting Sunday evening into Monday (today) I have been VERY uncomfortable despite drinking tons of water and following a gluten-free diet as carefully as possible.  It doesn't feel quite the same as the gluten-gut bloat, but I am experiencing a lot of intestinal pain and constipation (which is also causing other physical ailments), and was having a very difficult time sleeping last night.  We'll see how long this lasts... I had more DD coffee this morning (probably not wise)... but for now it really sucks.  :/  Maybe it's a result of the diuretic effect of coffee + the residual gluten damage?  Does this sound similar to what anyone else is experiencing?