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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity

    Celiac Maniac

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    1. Celiac Maniac added a post in a topic Am I Being Shoehorned / Misdiagnosed?   

      Schar pasta is the best. It's available at most Walmarts in the gluten-free section. Has the same texture as regular.

      I am reminded of a comedian I saw on Comedy Central a few weeks ago who was Dx with celiac and told he must go gluten-free. When he described gluten-free pasta, he started chewing on the microphone cord!

      Some are like that (I'm looking at you: corn pasta) but the Schar is really very good.

      TK Kenyon
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    2. Celiac Maniac added a post in a topic Too Old For A Diagnosis?   

      Wow, I was 33 when I was Dx 10 years ago. I thought I was a late-bloomer!

      Yup, absolutely: you're never too old to start feeling better. That's so true.

      Here's to your health! (A toast for those of us who are definitely old enough to drink!)

      TK Kenyon
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    3. Celiac Maniac added a post in a topic Traveling And Need Help   

      Hey Waking Up:

      Email me via my profile with your email address.

      I'm just finishing writing an ebook with info on what to eat gluten-free at 60 chain restaurants and other local ones. I can email you a free e-copy so you know what to eat while you're traveling.

      I travel a lot for business, and I noticed that I had a bunch of lists of stuff I could eat at various chain restaurants, so I compiled and added to it to make an ebook. It's not published yet, but I can run it thru the Meatgrinder to send you whatever file format you can use. If you have a kindle or a nook, I can send you that. If you have a smartphone, you can download an app for kindle or If you have a laptop, I have a PDF.

      Yes, the baked potatoes at Wendy's should be gluten-free. I've eaten a lot of potatoes there. The chili is gluten-free, too. Some good salads, too.

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    4. Celiac Maniac added a post in a topic Horses   

      Don't have horses right now, but I used to team rope when I was a kid.

      Don't eat the horses' oats! Might be contaminated with gluten-containing grains!

      (Ok, that was lame, but it was the only link I could think of.)

      TK Kenyon
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    5. Celiac Maniac added a post in a topic Any One From Ct?   

      Will definitely look it up!

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    6. Celiac Maniac added a post in a topic Was Diagnosed With Doctor Suspecting Ms, But I Wonder If It Could Be Celiac   

      Yep, you need a celiac panel.

      Here's the good news: it may be celiac, and your symptoms may improve or resolve with the gluten-free diet.

      Here's the so-so news: gluten intolerance is associated with some forms of MS, and you may have both. Again, your symptoms for both may improve or resolve with the gluten-free diet.

      The lesions worry me. Where are you located? You aren't in the UK or Europe, are you?

      I encourage you to get the bloodwork for the celiac panel done ASAP and see a good gastroenterologist. Whether your symptoms are related to MS or not, the GI symptoms also need to be looked at.

      I hope the best for you,
      TK Kenyon
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    7. Celiac Maniac added a post in a topic Did Your Partner Support You ..........   

      Personally, for me, it was easy.

      I do most of the cooking and, since my DH is from Southern India, I just told him that we'd need to eat a lot more South Indian (rice-based) food, like pilafs, and dosas, and uttappam. He thought it was a great idea.

      Yes, the commercial gluten-free foods are darned expensive. We eat a lot of rice, potatoes, corn tortillas, and cornbread for carbs. Proteins and fruit and veg are the same as they ever were.

      As a matter of course, we avoid the commercial gluten-free foods. A lot of them are based either on white rice flour or one of the starches (tapioca, potato, etc.) That's just like spooning white sugar into your body.

      A rice cooker is an excellent investment. Cooks brown rice beautifully.

      TK Kenyon
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    8. Celiac Maniac added a post in a topic Long-Term Risk of GI Cancers Not Elevated in Celiac Patients - Family Practice News Digital Network   


      (And I say this as I'm having an alien abduction episode next week. Makes me a little calmer.)

      TK Kenyon
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    9. Celiac Maniac added a post in a topic Restaurant Waitress   

      Ew. Clueless and lazy.

      And nasty. I've had several bad experiences.

      I'm sorry. Hope things get better.

      TK Kenyon
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    10. Celiac Maniac added a post in a topic Am I Being Shoehorned / Misdiagnosed?   

      Hi Justin,

      The biopsy results sound inconclusive and non-specific.

      You can go gluten-free if you want to. It certainly won't hurt you. However, if your blood test comes back negative, you're not a celiac. Congratulations.

      BTW, you may not lose weight on a gluten-free diet. I gained a couple pounds when I went gluten-free because my body suddenly started absorbing nutrients, but I lost 2 dress sizes because all that bloating when away.

      I hope the best for you.

      TK Kenyon
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    11. Celiac Maniac added a post in a topic Any One From Ct?   

      I'm in the SE corner. There are some real good gluten-free restaurants around here.

      AJ's Restaurant in Ledyard/Groton
      S&P Oyster House in Mystic
      Bruna's Table in Westerly, RI

      TK Kenyon
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    12. Celiac Maniac added a post in a topic Just Long Of Eating gluten-free Until I Feel Better?   

      I was symptomatic for 10 years, at least, before diagnosis.

      I started feeling better within a few days. Much better in 2 weeks.

      Gluten is like smacking yourself in the head with a ball peen hammer: it feels so good when you stop.

      TK Kenyon
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    13. Celiac Maniac added a post in a topic Pregnancy Reverse Celiac?   

      I had my son 7.5 years ago, and I assure you, it didn't cure me.

      If you wanted to take a risk, and it is a serious risk, you could eat gluten-y (at least = 2 slices of bread per day) for a month, then have the blood test again. If your antibody titer goes up, you're still having a significant antibody reaction and should not continue.

      If it doesn't, well, I've never heard of anyone being "cured" of celiac disease before, but it could happen.

      Good luck.

      TK Kenyon
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