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It seems to me that MS is commonly misdiagnosed when in fact celiac is the cause.
I am going to get another MRI in a little over 5 months to see how that looks. I local physician said that he had a patient and her brain was "full of plaque" and it cleared up after going gluten-free.
I have recovered greatly but I am dealing with the double vision after I cough, clear my throat, yawn, or sneeze. I still don't know the cause of that. On top of that, I have come down with a head cold which makes me sneeze that much more.
Other than that, my brain fog and other primary symptoms have gotten much better as well as my stomach.
I just wanted to give an update to my tests and current condition. I am still gluten free and have not had near (or any, for that matter) stomach upset. The blood work, as expected, returned negative for celiac. I requested the results for the blood tests and am awaiting them. I was told that the B12 was "within range" but I don't have the numerical values, yet. I am going to get that. I was told that vitamin D was low and was actually prescribed vitamin D in 50,000 IU once a week for four weeks.
I have a new neurological symptom that has come up. As of last Thursday, I am getting double vision for just a few seconds when I change positions, almost like my blood pressure is dropping, but that doesn't seem to be what it is as I can't get a low reading. It happens when I am driving, laying in bed, etc. Before I get the double vision, I get a tingling feeling in my tongue a few seconds before. Then the double vision sets in for about 10 -15 seconds, and goes away. Shortly after that, the tingling goes away in my tongue. I am not sure what is the cause of that yet.
Yes - that's exactly what it is like. Like the muscles in my neck are very tight. I typically don't get headaches like this so I attribute it to going without gluten for a few days. I do get headaches, and many times in the neck, but this one feels worse and feels tighter.
Luckily the eye pain subsided and it is mainly in the neck now. So some improvement.
I did not eat gluten on Sunday or Monday, so two days. I felt so bad and had to miss so much work as a result of being sick I wanted to try something. So far my stomach has done much better as I have not had to go to the restroom right after eating.
It really sounds promising that this was my problem. I sure hope so!
I mentioned it to the doctor and also said that there were many false negatives with the test, and that two days in his opinion would not affect the outcome. We shall see!
I went to my PCP today to follow up - the first time I have been since I came down with this illness. I was happy that Celiac was not considered initially, nor were vitamin levels. I had these blood tests run today, and should know something within a week. Very hopeful these test reveal something. I do know that I don't feel like I have to go to the rest room after I eat if I avoid gluten. So that is very positive right there!
The more I read about celiac, the more it fits what I have been dealing with. On routine blood tests, one of the three liver enzymes have always come back elevated. The other two never had been. The doctor has always said this could be to have a few extra pounds and is probably nothing to worry about. But now after reading it seems like celiac can cause this too!
It's interesting how many people have had neurological symptoms with Celiac. My biggest issue right now is cognitive. I hope being gluten-free will help things heal. The MRI I had revealed a 2cm lesion which at the time said is causing my problems. I do feel fortunate to be able to get around now - I hope I am able to return to work very soon.
Takala - what symptoms did you deal with for them to suspect MS?