This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
Well, I have a sibling with MS, diagnosed before age 30, and I have had some strange speech stuff, lack of balance, etc. Also, I have suffered with depression, OCD, anxiety on and off for years. I also have a lot of other symptoms like malabsorption. And I have one autistic daughter and now a son being tested for neuromuscular issues. Both of my kids have DQ1, obviously, soooo.
Yeah, I think it's all related, and I'm better off of gluten. I have the baby off of it too for now.
Negative for DQ2 and DQ8. Celiac blood tests have all been negative. Haven't gotten an endoscopy yet, but I am going to try to over the next month or so. At this point, not sure I need one. The results and the journal articles I'm reading about Double DQ1 and my family history convince me to stay away from it for good.
I finally bit the bullet and did the Enterolab buccal swab. Here are my results:
HLA-DQB1 Molecular analysis, Allele 1 0501
HLA-DQB1 Molecular analysis, Allele 2 0602
Serologic equivalent: HLA-DQ 1,1 (Subtype 5,6)
So, I have two copies of DQ 1. That supposedly can make immunologic responses stronger and can lead to gluten ataxia. Anyone have experience with this? I am pretty sure I have a response to gluten, and my bloodwork looked better off of it. Any other double DQ1s out there? What are your gluten responses? I have struggled with total fatigue, repeated UTIs and kidney problems, depression, huge weight gain, etc.
I would love some feedback/opinions. I am thinking this means enough for me to avoid gluten totally?
Yes, I have lost weight. I used to be normal weight/moving toward pudgy but realize I was at least gluten intolerant (if not celiac) from age 5. I had a terrible wheat craving and a bunch of other symptoms even as a child. Binging and compulsive overeating haunted me most of my life. Now, one of my big theories is that gluten intolerance and/or celiac cause many eating disorders in people.
So in July 2010, I went gluten free after an IgE test (yeah, I know not really a good test for this) showed I was sensitive to wheat and rye. I dropped about 18 pounds in 6 months with no other changes. At that point, I had been obese and NOTHING I did budged the weight. I had a big, bloated belly and always felt awful.
Then I got lax about things and the weight went up a bit. Fast forward to Dec. 10th of last year. I went gluten-free for good (and am not limiting dairy though I still eat some). In total now from my high weight in July 2010, I've lost about 26 pounds, and again, that's without trying. My doc was amazed at my five pound loss over the holidays and shocked that it was all gluten free that did it.
I find that the burning/nagging/terrible hunger I had when eating gluten disappears when I take out the gluten. If I get glutened, it comes back.