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mtdewpeg

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About mtdewpeg

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  1. I am pretty new to this gluten free diet. My GI Dr. just said to avoid gluten. He never told me what not to eat. He did set me up with a nutritionist, which I see this Friday. I can drink milk and eat all dairy products without any problems, so I am hoping I won't have to give them up. I hope the nutritionist works with me to find a diet that will work for me. I am on disability and don't have much money to buy all of those special foods.
  2. After my inr went to 5.8 my GP took me off of the warafarin for 3 days.My blood was retested and it was all the way down to 1.5. Thick again. My GP put me on 10mg warafarin. I get it rechecked this thursday. My Dr. had sent me to a blood dr., but all he seems to care about is the iron problem. after the 3 ferritin infusions it was much better. he said to come back in 3 months. I hate it when doctors don't want to listen to everything we have to say. I live 24x7 worrying about getting another clot. Next time could be alot worst. having been diagnosed celiac on top of this is pretty much more than i can handle. My husband has ALS (Lou Gehriggs disease) and i don't know how much longer i will have him. sorry about whining like this, but how much can a person take?
  3. After my inr went to 5.8 my GP took me off of the warafarin for 3 days.My blood was retested and it was all the way down to 1.5. Thick again. My GP put me on 10mg warafarin. I get it rechecked this thursday. My Dr. had sent me to a blood dr., but all he seems to care about is the iron problem. after the 3 ferritin infusions it was much better. he said to come back in 3 months. I hate it when doctors don't want to listen to everything we have to say. I live 24x7 worrying about getting another clot. Next time could be alot worst. having been diagnosed celiac on top of this is pretty much more than i can handle. My husband has ALS (Lou Gehriggs disease) and i don't know how much longer i will have him. sorry about whining like this, but how much can a person take?
  4. My bloodtests showed i was very irondeficient. My GP didn't know why, but did set me up for ferrintin infusions. i went 3 days in a row. It made me feel alot better. Within a couple weeks I saw a GI and had a biopsy, which confirmed the celiac diagnosis. They did more blood tests. I am still a little anemic, but much better. they will recheck in 3 months unless I get feeling weak, dizzy sooner. the dr said it should start increasing. I feel reaLLy good right now and not weak at all. the infusions really help fast.
  5. krogers original baked beans are gluten free. it even says gluten free on the label. they taste ok.
  6. I sleep good all night long now. I have been gluten free about 3 weeks. When I wake up around 9-930 am I am starving! It takes several small meals up into about 100 to feel like I am not starving.For several months before going gluten free i would lay awake for hours or for the entire night. I had my left knee replacement Aug. 8th. after the surgery i started having absorption issues and losing weight. I slept terrible for over 4 months until i was diagnosed with celiac and have tried very hard to avoid gluten.it does feel good to be able to sleep again.
  7. How do you know if you are a super sensitive celiac or super sensitive to gluten? I can eat almost anything and not feel sick. I went to the GI because of the diarehha,weight lost, iron anemia. HE DID a endoscopy and the biopsy said most likely celiac. i had a celiac panel and other celiac related blood test done after being gluten free for a couple weeks. it came back saying i have celiac sprue. after the biopsy i was thinking it was something else, but since the celiac panel and other test were positive for celiac i am actually a little releived. I KNOW THIS IS LIFE CHANGING. I will try my best to stay gluten free and pray for the best. I do have like eczema or some type of rash all over my legs and some on my arms. i was wondering if this could be related?
  8. I heard from my GI office this afternoon. I was thinking all of my counts would be low. I have been ill since my knee replacement in August. I found out i had iron deficienct anemia and got 3 ferrin infusions in Dec. I was hospitalized in Nov. my nutrition count was low and i felt so weak. 3 weeks ago i was diagnosed with celiac. I had lots of bloodwork done friday. I juststarted the gluten free diet a week ago. i don't have anemia anymore. my total iron is 46. my hemoglobin is 13.8 my calcium,B12,folate was all normal. Only a couple things were a little low, but dr. said that was to be expected.He feels things are already looking up. i see the GI Dr. in a week. I guess my blood being so thin could make me feel weak.He said it sounds like my absorption issue is looking up.
  9. I had my blood drawn today to to if my blood is thin enough. as mentioned above the warafin doesn't seem to be absorbing. I got a call from my dR. office this afternoon. they wanted to know if I am having any symptoms of bleeding? I said no and asked why. she said my blood is too thin now. my count went from 1.5 to 5.8 in two weeks. in over 4 months we couldn't hardly get the count to go up. now after being gluten free for only 1 week it really thinned out. i have to stay off of the warafin and get it rechecked friday morning.the dr will let me know friday afternoon what mg of warafin i need to be on.i deffinately think this disorder is related to celiac.
  10. I was told at the ER about 11/2 years ago that i had a blood clot somewhere in my body after a special blood test result came back. they did a ct scan of my chest and it wasn't there. i was discharged. This was way before being diagnosed with celiac. I had left knee replacement in aug of 2011. A couple weeks later I was so sick I went to the ER.They found a small blood clot in my lung. They said it came from the surgery, but I DO NOT think so. I have been on warafin ever since. They can't get my tpinr ? in the theraputic level. my dr keeps upping my dose. he keeps asking if I am skipping my med? I AM NOT !!!! I have had absorption problems with pills for several years and now I realize it is from the celiac. I was just diagnosed about 3 weeks ago. It scares me to death that I will get another blood clot since I am not absorbing well. I deffinately think blood clots are related to celiac.
  11. I called Krogers on Friday to check on condiments. The lady looked them up and said their storebrand of catsup,regular whipped salad dressing,mayo,mustard and tartar sauce is gluten free. I am new too and trying to learn what I can and can't use.
  12. do any of you know if otc pain medicine is gluten free? I cannot take iboprofen as i am on warafin for a blood clot in my lung. It was found shortly after my knee replacement. I have a absorption problem and would probably do better on a liquid pain medicine. I have to keep getting a higher dose of warafin because I am not absorbing all of it. my levels are not in the thereputic range. this is so aggravating. Thanks for any help.
  13. How do you know if you have problems with lactose? I am new here, just diagnosed with celiac a couple weeks ago. The practioner at GI office told me i could have milk, yogurt,cottage cheese. I eat these things and they don't seem to bother my stomach. I don't know how much damage I have. I haven't seen the Dr since the EGD. After the EGD he said it looked unremarkable to him. I will see him jAN. 9TH.
  14. I just started the gluten free diet Wed afternoon. I woke up starving Thursday morning. I ate some corn chex for breakfast, then hormel chili for lunch. Then I felt real good. I had some salad for supper. I had a appt early Friday morning at GI for breath test to check for bacteria overgrowth.(turned out negative)I wasn't allowed to eat after 10pm Thursday. I was worried I would be starving Friday morning and be miserable taking the test. I actually wasn't hungry all day long Friday. I finally ate something at dinner time.
  15. I was just diagnosed with celiac. I have been gluten free only 3 days. I have malabsorption issues. I had lots of blood drawn yesterday. I know alot of things are out of wack by the way I feel.MY GP had me get 3 iron infusions in early Dec. My GI Dr. will be handling my celiac treatment. Has any of your dr's ever ordered other types of infusions to help you feel better? I don't absorb pills well. Any suggestions? THANKS