wonder29 replied to wonder29's topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)Thank you so much to both of you for the wonderful advice. It helps me feel not so clueless about all of this. I really appreciate it!
wonder29 posted a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)Hi Everyone, I am somewhat new to this site but have been lurking the forums lately in hopes of finding some answers. I will try to keep this short... I am in college and have been dealing with stomach issues for as long as I can remember. About a year and a half ago I was putting two and two together and realizing that I was experiencing just about every celiac symptom in the book. I thought that maybe this was all in my head but my mom took me to get the blood test to see if we could get some answers. Later that week I got a phone call saying that I had elevated antibodies (I'm not really sure which one(s) because the nurse and doctor I saw were not very clear) and that an endoscopy was highly recommended. When I had the endoscopy done, however, the gastroenterologist said that I did not have celiac because there was no visible damage to the villi. I got the feeling that he didn't really take me seriously and he said to just attribute my symptoms to IBS (which he did not define or give me suggestions to alleviate the symptoms). I know from avoiding gluten that I feel so much better both mentally and physically. It's not that I'm desperate for an "official" diagnosis, but I am just kind of frustrated that I never got a clear answer for what is wrong. I guess there are a couple of questions that have been on my mind lately as I continue to try to figure things out: 1. Is it true that I do not have celiac if my blood test was positive but my endoscopy was negative? 2. Even if I am just sensitive to gluten, is there still a possibility that eating gluten will lead to more serious consequences down the road? Having the mindset that I'm not celiac but just sensitive to gluten causes me to not be as careful about slip-ups here and there (although I always feel the effects of eating gluten afterwards) and I am just wondering if I should be more careful (if there are consequences more serious than just being uncomfortable). Thank you SO much for any advice/help you are able to give. I REALLY appreciate it. :-)