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lakb706 added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsTold you don't have celiac, but do?Anyone been told they dont have celiac and really did? my daughter has all the symptoms but has been told she doesnt have it. after upper and lower gi"s , barium, colonoscopys, blood tests, she has no diagnosis but still has very loose stools with so much pain it causes her to pass out. originally it was diagnosed ibs but that medicine did nothing. she is lactose intolerant. she doesnt eat dairy or if she has a little she takes lactaid pills. her stomach is bloated most of the time. we took her off wheat or so we thought..we had no idea how much stuff it is in. we are trying to do better but lack the information on all the names of gluten. i have been doing research and eliminating more foods. anyone have any suggestions? she is embarrassed by this and is afraid to go places incase she passes out while on the toilet.
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