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This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
Oats added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsBlood Test Result Statistics - Place A Vote, Make A Difference!So many people are wondering how common false negative blood tests for celiac disease are - or to be precise - what the chances are of having celiac disease or non-celiac gluten sensitivity if your doctor tell you that you can go ahead and eat gluten.
If you know you are gluten sensitive - PLEASE VOTE, whether your blood tests straight forward told you you were POSITIVE for Celiac, or they falsely showed up NEGATIVE, and you had find out for yourself that gluten was the culprit. It could make a great difference for someone suffering like you probably have suffered - perhaps for several years!
Off course - this poll will still overlook all the unknowing celiacs out there, mislead by blood tests - who probably stand for the greatest percentage of false negatives.
To make it simple, I only added two alternatives. This is to clearly show the proportions between positives and false negatives.
Thank you for your vote!
- 15 replies
- 1,937 views
Oats added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsAm I Celiac? Negative Blood TestI am 18 years old, female, normal range BMI, no great weight gain/loss lately (or ever...?) and no diagnosed celiacs in my family as far as I know.
However, on my mother's side, there are many cases of digestive trouble (My grandmother had stomach cancer (stomach problems all her life + weak bones), uncle a terrible stomach, mother a lot of stomach trouble too)
For a while, I have had a bunch of symptoms (I'll list these later on!)
My mom suggested I might be celiac, because I tend to get my worst stomach aches after eating a lot of bread or cake. I bought a home test (it said it tested for anti-transglutaminase antibodies) It turned out negative.
Two months later or so, my symptoms got worse. I went to the doctor, and he immediately suggested celiac. I got tested, but once again - negative. They didn't tell me exactly what they tested for (which antibodies and so on), or exactly what the results were - only that I did not have celiac disease.
And the doctor just gave me an information sheet on - off course - IBS... Is it just me, or does IBS just mean that the doctors cannot find a cause?
However, I've read several places that the blood tests are not very accurate - especially in early stages of the disease. I have had my symptoms for about two years, so I think that would be considered an early stage, right?
Here are my symptoms:
Loss of period (two years - minus half a year of taking hormonal prevention. Once I stopped, so did my period)
joint aches - very sensitive wrist joints, knee problems, shoulder pain, random ankle pain
a lot of headaches
Mental issues - like crying for no reason, mood swings, feeling anxious/sad every other day all though I am generally very happy with my life
Stomach ache - upper middle stomach (between ribcages), very lower stomach (bladder area maybe?), down the hips/groin area on the sides - feels like lymph nodes
very bad tearing stomach ache if I get too hungry
Discomfort connected to bladder
difficulty emptying the bladder
reappearing tonsil stones
white mucus on tongue - a lot of it! Also, a couple of barely visible circles (like small coins) on the surface of the tongue
small pink lumps on the back of the throat, spreading to the inside of the cheek area by the tonsils, around the molar area
I have cancer sores more often than anyone I know
also, there's always traces of blood in the mucus whenever I blow my nose, and my eyes are often red. They also easily hurt in dry air etc.
Digestion: WARNING! Quite disgusting descriptions!
Periods of frothy stool, almost diarrhea-like.
lately: constipation, dark/lumpy, glossy (fatty perhaps?)
a lot of undigested food (for example after eating nuts! Ew!)
all the while:
Orange/yellow/light brown colored, slimy mucus. :/ Sometimes a lot!
Also... Sometimes passing clear liquid...?
In August I had a two week influenza-like disease which caused very light/yellowish colored jelly-like diarrhea, and I've had mucus ever since...
What do you think? What other diseases might I consider? Should I try staying off of gluten for a while, see if I get better, then eat gluten again and see if the symptoms come back?
- 27 replies
- 11,144 views