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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About rrr22

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  1. Hello, I am celiac and extremely sensitive to starch -- I cannot tolerate even trace levels. I am currently taking NatureMade Super B Complex which lists 'No Starch'. However, I have traced my headaches/migraines directly back to this vitamin. I have purchased Now Foods b vitamins and Kirkman Lab b vitamins, however yet to try one of these. Can anyone recommend a 100% 'No Starch' vitamin? Thanks
  2. Thank you for the information. I will concentrate my efforts on getting stronger and avoiding gluten best that I can
  3. Hello, I am celiac and need help managing the fatigue I experience in the 1-2 weeks after being gluten'd. I know that I have been gluten'd b/c I begin to get lightheaded and have headaches after eating things I can normally digest. I increase my daily intake of Vitamin B, however it does not seem to be much help. I only eat things I can easily digest during this time, so I minimize any reactions after eating. I have tried taking otc sleeping pills & ambien, however I am sensitive to them and it just causes more problems. After I have been gluten'd, am I experiencing fatigue simply b/c my body cannot absorb nutrients well during this time? I am much better at managing my celiac, however I have not had any luck managing fatigue after being gluten'd -- any suggestions? Thanks.
  4. Thanks for your feedback. I may look into consulting an applied kinesiologist if things do not improve anytime soon. I had already ordered Kirkman Labs B-Complex and plan on trying that. I have not tried Country Life and will try those if I do not have much luck with Kirkman. Thanks again
  5. Hello - I am celiac, gluten free for about 8 months and am still extremely sensitive to everything I ingest. If I do not take a b vitamin, I suffer from chronic fatigue. I have tried many types of vitamins and I do the "best" on Nature Made Super B. I do well with the exception that it causes me to have headaches roughly 2-8 hrs each day. I have tried several Organic vitamins and sublinguals, however I have worse reactions to those and thus, they do not really help me. My question is -- what type of doctor should I consult to: a) Assess my level of vitamin (primarily b vitamin) deficiencies Suggest alternatives for getting the vitamins I need w/o suffering reactions? It is very frustrating not be able to get my body to accept nutritional sources of any kind. Thanks
  6. I have tried several types of Whole Food (Organic) vitamins, however they are difficult for me to digest & do not really have any impact. My assumption is that if I am not able to absorb B-vitamins from food, then Whole Food vitamins would not be very helpful -- however I could be wrong regarding that point
  7. Hello - I am celiac and have had a lot of trouble finding a vitamin that does not give me chronic headaches. When I attempt to go w/o any vitamin, I suffer from a chronic fatigue. I am on my 9th or 10th type of vitamin with no luck thus far. I am trying my 2nd or 3rd B-Vitamin at the moment. My chronic fatigue symptoms are resolved, however I still experience chronic headaches (constant pressure in my forehead area) after being on the vitamin for 3-4 days. Once I stop the vitamin, it takes about a week for me to get a clear head again - but then my fatigue returns. Has anyone had the same experience and have any recommendations? I was thinking about trying shots (B-12, etc) hoping that I might have better results going this route. Thanks for your help.
  8. Thanks to everyone for your feedback. I appreciate it. My initial test came back negative too. But I'd been easing off gluten to support my kids' new gluten-free lifestyle. I insisted the dr refer me to a GI for a deeper look. My dr then said I didn't fit the picture of celiac disease (I'm overweight). I then demanded the referral as I wasn't ALWAYS so fat (5 large-birth kids tends to add weight in some women!) and I'd experienced physical reactions to certain foods my entire life! The test came back 'inconclusive'. There was something going on but my GI refused to rule out celiac disease completely and immediately put me on a gluten-free diet. That was nearly 7 years ago. Last year, this same GI dr did another endo on me, looking at all parts of my insides to see why I was still having issues. On top of that, I had an allergy skin-poke test done, + allergy blood panel done. No allergies came through, but the new test showed a brand new condition which is somehow linked to celiac disease: mastocytic enterocolitis (I think I spelled it correctly here). The cause: an allergy to something I'm eating! BUT I have no clue what it is! and neither do they! There are other tests to do beyond the blood test. For one of my children, she had blood work, a stool sample, and an endo, all to verify that without a doubt she does have celiac disease. All were positive, but she did it at a time when she was on Very Gluten gluten diet for more than 1 month. Nothing was eliminated from her diet until AFTER all the tests were completed. My son has many symptoms but tested negative so far, however we did a gene test on him which means celiac disease has the potential of becoming active at any moment and must be tested every 3 years. Taking out/altering your diet can change the results even enough to come back negative. As uncomfortable as it is, stay on the strict gluten laden diet for as long as possible before a test(don't kill yourself over it though) and don't feel bad about requesting a retest. You are allowed to ask for a second opinion, or even a new dr as I did! And make sure you see a dr that truly specializes in celiac/gluten related illnesses as not all GI drs are, they just know enough to slap a label on ya and send ya out the door. Its your only body, and you know it better than anyone else! Don't stop pushing for proper care until you are satisfied with the results. If 3 drs have the same results, and there are truly no other specialists/options, then take out the gluten on your own and avoid things that make you uncomfortable, regardless of a negative test result. You don't have to have a disease or allergy or doctor's note to not like something. Living shouldn't hurt. I hope you can get things worked out soon!
  9. Hello. From doing my own research, my symptoms appear to mirror those of Celiac Disease. However, I have not gone through a Celiac diagnosis with a doctor to this point. I have only had a blood test which came back negative. I have been diagnosed as hypoglycemic. Shortly or sometimes hours after ingesting something that I suspect may contain gluten, I get a headache, nausea and often heart palps. That night, I will wake up with a hyperactive type feeling & anxiety - thus trouble sleeping. This often occurs several times throughout the night. The next morning, my resting blood sugar has dropped, I am fatigued throughout the day and experience eye irritation. During this post-gluten time period, my symptoms are at their worst after eating (gluten-free) meals. I get a heavy feeling in my stomach like I have eaten a very large meal (which I did not), I get headaches and a foggy/disoriented feeling. My main symptoms are headaches, fatigue and disorientation - However, I do not experience the severe stomach issues I have read related to Celiac. If I remain gluten free, the intensity of my symptoms decreases each day until eventually going away b/t 1-4 weeks (depending on the degree of apparent gluten contamination). I also sleep much better throughout the night. The intensity of my symptoms appears to directly correlate to the amount of gluten I believe I may have consumed. I appear very sensitive to gluten. Even several types of gluten free labeled products, such as different types vitamins, will bring about my symptoms. Does it appear I am Celiac? The degree to which I appear sensitive to gluten makes me think I may be celiac vs. simply gluten intolerant. Thoughts? Thanks.