Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Aprildncr

Advanced Members
  • Content count

    8
  • Joined

  • Last visited

Community Reputation

0 Neutral

About Aprildncr

  • Rank
    New Community Member
  • Birthday 04/14/1987

Contact Methods

  • AIM
    Aprildncr@aol.com
  • Website URL
    http://
  • ICQ
    0

Profile Information

  • Interests
    Dance. swimming, lifeguarding, beach, hanging with my friends
  1. Happy birthday and may God bless you today!

  2. My brother and I both have celiac's disease and because of that both of my parents were tested and tested negative...my dad however did have sarcoidosis...he had sarcoidosis of the heart...he developed this at the age of 35 and ended up needing a heart transplant almost 9 years ago...the doctors still dont know what caused it but we feel as though it relates to mine and my brother's celiac somehow.
  3. I am a freshman at DeSales University in Center Valley PA. Its near Lehigh and Bethlehem. Its a small school but they have a lot of very good academic programs and have been great with my celiac. We contacted them ahead of time and they met with us and I let them know what I could and could not have. They have all the recipies on file and if i have any questions about the food they'll look it up in the books and tell be if I can have it. Also they went out and bought gluten free bread and pasta and cake mixes, and pancake mixes, etc. for me. If I want something that usually contains gluten I just notify them and they make me a special gluten free version of it. I had mac 'n cheese one night, chicken noodle soup another, every week they let me know they bought me a new item. They have been amazing. I don't know how bigger schools will be but it has been nice at DeSales because all the cooks know me and let me know if I cant have something and it is a first name basis with the kitchen staff with helps when dealing with trying to decide what to eat. I was afraid about eating just chicken and veggies too but I've only had that maybe once a week since I went and that was by pure choice.
  4. I had problems with my doctors too. Sometimes they want to be right all the time so they force your symptoms to fit their initial diagnosis. I did end up changing doctors after the one kept instisting on it being ibs or crohns and all these tests that came back negative for both. After the fifth test I was like i dont have either it has to be something else and he finally said then go get a second opinion. I did and the second doctor diagnosised me with celiac disease. im glad i changed. As far as the colonoscopy I had an upper endoscopy. That is where they put you to sleep and put a camera down your throat. It got good pictures and biopsy of my small intesting and was probably a lot more comfortable and a better procedure for the condition. Hope this helps Steph
  5. The Grainless Baker in Lake Ariel PA is amazing too!! They have a large selection to choose from. My favorites are the woopie pies, chocolate chip cookies, and peanut butter cookies. I have only tried the dessert items but I'm sure the other items are great too.
  6. I went to a nutritionist right after I was diagnosed. She was a little helpful because her son has a wheat allergy so she brought up points like having my own jar of peanut butter that we would not even have thought of. My parents found all that information helpful. But she did talk a lot about her son's wheat allergy and did not seem to realize that I have more than a wheat allergy. As I was leaving she said so watch out for wheat and I guess a lot of other stuff too. I'm now realizing that there is a lot of other stuff she really didnt talk about. I think it was a good idea to go to the nutritionist once but some people I know go on a regular basis and that to me would do no good and be a compete waste of time and money.
  7. My family and I are going on vacation to San Francisco and Lake Tahoe. I was wondering what most people do about breakfasts when they are on vacation. I know I can have eggs and fresh fruit but that gets old after awhile and I don't know if I can tolerate eggs for a week without getting sick.
  8. I'm going on vacation with my family to San Francisco and Lake Tahoe in a few weeks and was wondering if anyone knew of any good restaurants that are gluten-free friendly. I am waiting from responses from the hotels on what accomodations they can make but I would also like to know of places outside of the hotel that are good. Steph
  9. I recently went to the doctor to check my vitamin levels and my antibody levels. The doctor said my vitamins were much better and that my antibodies were almost gone which is good but he also said that my white blood cell count is low. He told me not to worry about the first two because in a few months they should be back to normal but made me go back two weeks later to check the white blood cells. They were even lower. The dr. said it might be from celiac does anyone else have this problem? Steph