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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About jeanzdyn

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  • Gender Female
  • Interests books, movies, Farscape
  • Location Northern Illinois
  1. I have noticed more skin tags since my diagnosis of Celiac Disease and going gluten free.  A doctor has asked me if anyone in my family is diabetic, because "diabetics have skin tags and dark patches"..... my mother had the same --dark patches and skin tags but NO diabetes in the family.  I find the mention of insulin resistance and skin tags very interesting.  In addition I have started to crave sugar.... not sure what that means.....
  2. I do not take meds for depression and I do not want to, or need to.  I have these downward spirals periodically, but not regularly enough to call for meds.  I know the reasons for the downward spiral, and there is not a whole lot I can do about it, except to let it come and this too shall pass. I am all alone in the world.  No one cares about me.  My worst problem lately is the amount of travel for work and the huge difficulty of having a pleasing meal, that is warm food, and having that meal also be gluten free.  At home I have no problem, out on the road,... I am tired of eating flavorless crap,... it is very difficult to bring anything that requires refrigeration, because we check out of hotels and move every day,... there is no way to keep things cold enough all day long in a hot car.  I am not made of money.  Small towns don't have gluten free options.  I am over 50 and there are NO job options available to me --- no one wants to hire an old lady who they think will leave in a few years.  (I am going nowhere---I am flat broke, not a nickel to my name, where would I be going?)   In a nutshell it is a fact that: life is a bitch and then you die. 
  3. Increased Hair Growth

    in addition to celiac disease I am now in menopause, so everything is totally out of whack.  currently my hair growth is not that great,.... it's even less on legs and under arms.  The hair on my head had been getting healthier - stronger, but due to a current relapse of symptoms it has become weak and unhealthy again as well.
  4. A few nights ago I had a shocking episode of diarrhea,....  It was like passing gas, but I knew that it was more.  By the time I got to the toilet I had a small mess to dispose of....   that got me to think about all of the myriad symptoms I have had lately.  Symptoms that seem to be getting worse.  Is this more than Celiac disease?  what is happening..... It is sending me down that spiral to depression.  All of the worst of my symptoms are returning,.... severe and extreme fatigue, acid stomach nausea, a shaky feeling, achy all over, headaches, flaking skin in specific areas (nose and eyebrows)..... I cannot tell if my stomach is asking for food or not.  I am on the verge of breaking down in tears.  Top all of that off with new nonsense from my workplace.... I have been told that, during a specific week, our department is "forbidden" from making any kind of medical appointment, as that will be viewed as avoiding a specific job.  I am in the beginning stages of worsening symptoms, and have a doctor appointment next week which was to be the start of figuring out what my body is trying to tell me. I am so upset, I don't know if I should eat something, or sleep, I don't know what to do.....  My job involves a great deal of travel, and maintaining a gluten free diet is very difficult --- too often there is nothing I can eat that is nutritious and that tastes good to me. I am really struggling to deal with everything.  I manage to do laundry and pay my bills, and somehow I work on the weekdays --I don't know how I do that, because I spend the weekends doing as little as possible due to exhaustion.  How I get through a work week is a mystery to me.... I must be on autopilot.  That can't be good. Thank you for giving me a place to vent my frustration. I wish that I could find a doctor who cared about figuring this out and actually helping me.
  5. I was lethargic and spent my weekends sleeping --up to 18 hours of sleep a day, both Saturday and Sunday.  After being gluten free for over 18 months I finally noticed that I was sleeping much less.  Sorry to say, but some things just take longer than others, and we are all different,.... you have to stick with the diet and give your body time to realize that it can stop fighting everything all the time.   You are not stupid! You came here and asked your questions and laid out relevant explanations.... nothing stupid there....   I have found that taking a vitamin B12 supplement helps clear that brain fog.  In fact, when I first started the B12 it was like someone lifted a curtain! No more brain fog!       Also, by the way, thank you!! For helping me to understand that I am NOT alone in this "laziness" --but IN FACT it may be part of the healing process of being gluten free (after being sick for my entire life until recently because I never knew I had celiac disease.).
  6. Bloating - Help? :(

      I think that there are other food intolerances that are "hidden" by the Celiac or the gluten intolerance.  Like your body is working so hard to combat itself, in the case of Celiac disease, that it kind of fails to alert you to other problems.  For example, I never had an issues with citrus, then suddenly, after a year of being gluten free I was (and am) allergic to citrus!  I cannot have any citrus at all because the symptoms are like torture --burning, itching --no rash or eruptions, just terrible, terrible burning itching!    I am starting to have sensitivities to other things now (2 years gluten free).....  I really cannot help believing that my body, fighting the celiac symptoms, was "masking" other intolerances, allergies, and issues.   And:  A food diary is an excellent idea!!  I kept a food diary for 7 years and it helped me to figure out a lot of things!!
  7. This past November I was ill.  I had digestive system discomfort with severe nausea and I had dizzy spells.  I finally tracked down the one thing I had consumed that I did not use for many years prior to this event.....  chewing gum containing ASPARTAME.   Aspartame is nasty stuff!!  I was so sick for so many days, accompanied with the dizzy spells, which become more severe as the days passed!! I chewed gum on 3 separate occasions, and I spit it out after only an hour or so, but that was all it took!!  I was sick for the next 3 weeks.   I feel that many of these sensitivities and symptoms and issues may be heightened by being gluten free.  If you are gluten free your body can stop attacking itself because of the gluten and now it's attention becomes riveted to other things!!  Kind of like an unending nightmare.....   Anyway, BEWARE OF ARTIFICIAL SWEETENERS!!!
  8. itching again..... winter, so predictable....  this time I think it has to do with perhaps one of the following: sugar corn products dairy (I sure hope not) tea? caffiene?   this morning I have had my supplements, things I have taken daily for year and years with no symptoms that I am aware of. I have had water.  I was hungry, so I ate some sweet potato "pancakes" with butter and brown sugar.     It appears that the itching is dissipating after 72 hours of suffering.....  so now I am not sure how to proceed.....  I will drink more water throughout the day, and see if the itching continues to go away.....   My current plan is to probably have some ground sirloin and rice for dinner, maybe with some cheese....   Please, God, please let the itching go away. please.
  9. At last! I am NOT ALONE.  I have these exact symptoms you describe, tonalynn.  Drives me insane!!  no one understands or believes me.   I was diagnosed with Celiac Disease in November 2011.  I have been 99% gluten free for 2 years.  1 year ago I had the itching, but it turned out that I now have a citrus allergy, so eliminating citrus made the itching go away.  But now the itching is back and it's making me crazy.   I don't know whether to call a doctor, or which doctor to call!!!  Allergist? Gastroenterologist? GP?  will one doc refer me back to one of the others...... is it worth even trying to call a doctor in the first place!  What else am I allergic to now!  they are slowly taking all foods I love away from me,.....   I worry that I may have liver disease, but there is no problem detected with standard blood work.   It's so bad that I want to just go outside in the cold (it's about 4 degrees Fahrenheit here) because it feels like the cold would make the itching stop, but the cold hurts so much too......   Today I have not eaten anything so far.  I did take my morning supplements, which I have taken for years and all are gluten free.  I am pondering not eating anything today, but my stomach is growling, and I have no will power when it comes to sitting around and not eating.....      Questions in my mind today:  is it sugar?  I consumed very little sugar yesterday and still itch.   Caffiene? maybe. I had coffee yesterday.  Now I am afraid to even drink tea.  I have had no citrus, that is for sure!     I sympathize with you!  I understand completely, what you have described!  YOU ARE NOT ALONE!!  and you are not crazy.   crazy, burning and itching, won't go away, no matter what, and there is not any kind of skin eruption or rash or anything to see..... not anemic, liver panel fine, no other blood work reveals anything wrong,........ this has been my life in the winter for so many years.
  10. How do I find out about ADA workplace guidelines for exposure other than food.... like a flour mill or bakery

  11. Well, I finally saw the allergist. After I told him what I like to eat and what I had already known I was allergic to he tested me for things I like to eat. And he also tested me for the things I already knew I was allergic to. (I wonder what that will cost me...) Apparently I have sensitivity to eggs and nuts. Two things that never seem to have bothered me --ever, at all. So I am more unhappy now that I know this! Here I was, happy that I could at least eat eggs and nuts. Now I have to avoid them, at least for a few weeks. When I see the allergist again I am going to ask about this. The sensitivity to eggs and nuts was at the 'low' end of their scale for sensitivity, so I want more information! I have always (ALWAYS) gotten a flu shot, every year since I was 18 and now I am suddenly sensitive to eggs! what is up with that! Meanwhile, I still itch, but there are not any breakouts, no hives, nothing to see. Just some burning itching.... of course it is worse because I had to stop taking the antihistamine because I have a bad head cold and I really need drainage to happen. So, I am stuck between a rock and a hard place, rubbing instead of scratching, and trying not to lose my mind... trapped indoors all winter long.....
  12. In years past I have had horrible itching primarily on my legs. There was never anything to see, no rash, nothing. The doctors were always kind of puzzled. They would say "dry skin" --but upon examination it was not dry skin either. There never seemed to be an answer. I did a lot of hunting for reasons, looked up a lot of things on the Internet, looking for clues or hints of what to do. Once I found out that itching is one of many symptoms that can be related to hypo-glycemia. That led to me learning that I was ingesting an awful lot of sugar from many sources in my diet. I immediately cut back on anything with sugar listed as an ingredient. I did not use much sugar other than whatever sugar was an ingredient in some food item. Initially cutting back on sugar really did help with the itching. I got through an entire winter with less itching as a result. However this did not carry on into the next winter --despite decreased sugar intake the itching was back. I struggled with the itching for a few more years and then decided that maybe it had something to do with wheat. I no longer recall what kind of article or website I read that led me to this decision. Anyway, what I did next was to try a 'rotation diet' --I cut out all breads and pastas for 3 or 4 days in a row --the itching went away after about 3 days. So, at that time I thought a rotation style diet was the answer and that worked for me for a couple of years. Then I had the colonoscopy (and endoscopy) and they took the biopsy. I got the call from the gastroenterologists office about 5 days later telling me that I had sprue and then that it meant celiac disease. It was what I was afraid of and at the same time I was not at all surprised --because of that rotation diet! Anyway, after over 20 years of rather obvious symptoms I had nearly diagnosed myself. All that time I was afraid of having something like celiac disease, but all that time I was gradually modifying my diet too. That I why I have said that going gluten-free was not so bad. It was not that difficult for me, because I had already eliminated so many things from my diet --things that made me not feel good. But I also look at the diagnosis as a kind of a "gift" because I had a lifelong love of pasta and now I can eat rice pasta and corn pasta, and I have eaten more pasta (both rice and corn) since going gluten free than I had eaten in the 4 or 5 years before being diagnosed. (I am gluten free since January 1, 2012, by the way.) So, that is one part of my story of my journey to the diagnosis and to a more gluten-free lifestyle and to feeling so much better. There's a lot more --other parts of the story for me, going back at least 33 years and maybe an entire lifetime. (I had the colonoscopy because I had reached that age when they recommend having it done -50).
  13. I would like to suggest that maybe you should not drink soda, or anything else, out of aluminum cans. While your problems may well stem from the soda pop ingredients, they might also be connected to that aluminum can. Long ago I found that I did not like the flavor of soda pop out of a can, but if it came out of a glass or plastic bottle the flavor seemed better to me. The same with symptoms, some symptoms that occur when drinking liquids from a can did not occur when drinking the same brands of liquid from a glass or plastic container.
  14. I was given a prescription of Mometasone Furoate Cream 0.1%. That helped a great deal. After 2 weeks the skin in the affected areas is still pinker than the surrounding skin, but no more itch after the second day's application. I was also advised to take an antihistamine, and have been doing that also. I have an appointment with a dermatologist, later in January. This started as severe itching on my stomach, above the belly button. Then it switched to the lower legs, not exactly 'symmetrical', but my lower legs are where the red 'rash' appeared and both legs are still very pink, but not itching at all at this time. The only medications I take are for asthma, I am not on any kind of cholesterol meds, no thyroid problems at all (ever), no diabetes, the only conditions I am aware of as of this writing are the asthma and the celiac disease.
  15. Okay, I saw the nurse practitioner, but by that time, with legs itching also, it was showing up as a serious rash and it is eczema.... but it had to manifest the rash-like red areas for that to be apparent. at first it was just a mild rash on my belly, but that cleared up as the legs (mostly below the knee on the back of the calf) began to itch. The only medications I take are asthma meds. I have no other conditions that require prescription medicine. I take a variety of vitamin supplements, all labelled as gluten-free. I have an appointment to see a dermatologist in a couple of weeks. The nurse practitioner prescribed (a corticosteroid) mometasone furoate cream, which (naturally) has a positively horrifying list of adverse reactions, not to mention ingredients that give me pause.... but I am giving it a try, having applied the second dose (one application a day). My legs still itch, but I have discovered that gently rubbing them makes them feel better for a few minutes at a time. But I am trying to not touch the affected area too much. I have found all of your replies interesting and somewhat helpful.... thank you all. I will return with more information as the condition changes.