This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
Thanks. To confuse matters, I also asked to be tested for pernicious anemia (symptoms are similar to hypo thyroid), but she only put B12 and CBC to check for that... Although from what I understand you have to look for antibodies (PA is another autoimmune condition). We'll see what comes back. The bloodwork I had done a year ago showed my B12 at 167 (normal range 198-615), and she failed to even mention it. That could also explain my crazy fatigue, heart palpitations, etc. I just want answers so I can start feeling well! I'm sure you all can relate. I'm a single mom to 3 small children and I don't feel like I am giving them my best because I am so darned tired and foggy.
So I had my bloodwork done today. Not sure how long it takes to get results back but I would like to be prepared when they do come back. What if she tells me I do indeed have antibodies but my TSH is "normal" so I don't require treatment?
Also, I requested Free t3 and free t4 but what she wrote down was t3 and t4. Is this the same thing? I also asked for TSI (for Graves) but she didn't put that. I do suspect my symptoms are hypo rather than hyper but I seem to have symptoms of both.
I realize this is an old thread, but this is EXACTLY what my arms look like! If I knew how to upload pics, I would. The funny thing is, my rash never appeared until AFTER I was dx'd with Celiac and had been gluten-free for many months! It is just now starting to calm down after 4 months of flare-up.
Thank you Gemini. I have read lots of anecdotal stories about people going gluten-free and their thyroid antibodies plummeting. I just want to be sure that if the tests come back negative that it means I do not have Hashimoto's. Not that I have just stopped producing antibodies because going gluten-free has calmed my immune system. Some people are saying this can happen in as little as 3-6 months of being gluten free.
The more I read, the more I realize I have many symptoms of both hypo and hyper (or Graves??) - including Mitral Valve Prolapse, which I was diagnosed with last year. I've read some studies that say as many as 40-50% of those with autoimmune thyroid disease have this! I have written down all of my symptoms and rush factors, along with what tests I should ask for, to show my GP. Any advice or suggestions would be welcome.
Thanks, squirmingitch. He has had minor flare-ups, but nothing major. I, on the other hand, had a major outbreak that lasted about 3 months (and is just settling down now). It was by far the worst I've ever had. At least I assume that was what it was. Whatever it was it was horrible, and the itching would actually wake me up in the night.
Thank you. I have gotten very good at stomping my foot. I was the one who demanded Celiac testing and my daughter and I both came back positive. I have been right on a few other self-diagnoses as well (ie - my daughter's asperger's), so I think my doc has learned to listen to my instincts. Thank goodness!!
Oh and I ALWAYS ask for test results, especially since my sister had her whole family tested for Celiac after I was dx'd and she was told her results were "fine". One year later her daughter had a SEVERE DH breakout, went back to the doc. He pulled up their bloodwork result and oops, 2 do the kids were actually positive.
I was diagnosed with Celiac just over a year ago. I have adopted a strict gluten-free (and grain-free) diet. I eat very clean, no processed foods, no soy, no dairy etc. yet I am still not feeling better. Very fatigued all the time. I am starting to suspect my thyroid. They checked my TSH when I was diagnosed and it was fine, but in my research I see that TSH is a poor test for Hashimoto's, and what they should be looking for is antibodies. My question is this: since Hashimoto's has a clear link to gluten sensitivity/Celiac, if I get tested for it now, will it come up negative since I have been gluten-free for a year? This week I took my cousin for Celiac testing, as she has many symptoms of Celiac. Come to find out she was diagnosed with Hashimoto's and Graves Disease as a child. So there is a family history. I have booked a doctor's appointment but would like to know what the odds are of a false negative.