Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

  • Announcements

    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


Advanced Members
  • Content count

  • Joined

  • Last visited

Community Reputation

1 Neutral

About haylez

  • Rank
    New Community Member
  1. I'm sorry to hear you've experienced this, that is awful. A similar thing happened to a friend of mine when she had cancer, some of her lifelong friends completely dropped off the map. I think it has something to do with them feeling uncomfortable, not knowing what to say or how to act or just deciding that it's "too difficult" for them to deal with. You don't need those kinds of friends. Have you tried joining a local support group -perhaps you could meet new people that way? I'm glad you have a supportive partner, hang in there!
  2. It is quite frightening how often these doctors get it wrong, I had one tell me I could try re-introducing gluten after awhile because I would build a tolerance back up! Unbelievable!! I would definitely try and educate this doc if you can. My muscle and joint pain is one of my worst symptoms and the only one that hasn't really improved at all yet (though it is very early days for me still). Also I just received some information from the Australian Coeliac Society (who list bone and joint pain as a symptom btw) that recommends that newly diagnosed patients get a bone density test done. Do many people do this? It seems like a good idea though not surprisingly none of my doctors have suggested this...
  3. I'm in my second week of going gluten-free, it's hard to say what is still a lingering symptom of celiac, gluten withdrawal or just your body adjusting. I had a terrible splitting headache yesterday, find I am extremely tired in the afternoon (with joint and muscle pain worsening around this time and then hanging around all night) and my GI symptoms seem to be doing a one day off one day on type of thing. I'm trying not to analyse it too much and hope for small improvements over time. Most of the posters on here seem to suggest that it will take a good 3 months before you really improve. I hope you feel better soon!
  4. Starting today! Wow I've got a big kitchen clean up to do..... Thanks for the advice everyone x
  5. So had my biopsy today...Didn't get to see the doc before I went under so never got the chance to ask about how many samples he was taking. In recovery he told me that he believed I do have coeliacs, and that I should start the diet, talk to dieticians etc etc. I didn't think he could tell without looking at the biopsies though so I was a little surprised to hear that. I also have some inflammation of something (I was too groggy to remember) and he has given me some antibiotics to clear it up. Has anyone ever heard of a doc confirming coeliacs just from what he saw with the endoscope? I mean they will still go by the biopsy I imagine but I will not get the results for a week or so yet.
  6. Thanks for the replies, it's good to have a bit of certainty about what I'm dealing with! And I think I finally understand what each test result means I will have to be sure to remember to ask the doctor about how many biopsy samples he is taking. I'm going to start looking into the diet now, seems quite overwhelming at the moment, though I'm definitely looking forward to feeling better!
  7. Hi! I have been scouring these forums for weeks so thought it was about time I signed up and said hello! I have had gastrointestinal issues for years and just recently had a coeliac (I'm in Australia btw) test done that came back positive; Deamidated Gliadin IgA (EIA) 45 units Normal (<20) Transglutaminase IgA Ab (EIA) >100 units Normal (<20) Total IgA 2.30 g/L (0.85-3.50) I've been trying to figure out what all this means and it's difficult as there are so many different tests, terms and measurement units used around the world. Doctors and specialists won't tell me much other than "wait and see what the biopsy shows". It's so frustrating as from what I can gather these results are pretty strong indicators of celiac disease. Other symptoms I have (only just discovering they could have something to do with celiac disease!) are chronic sinusitus, very dry and very itchy skin, muscle and joint pain, heartburn/indigestion, tiredness, and I have suffered quite serious depression over the years. I am also quite overweight, (the specialist said he was surprised at my test results because I don't look skinny enough to have celiac disease!) and have been gaining weight over the last few years. I had to push to get the blood test done, I can't believe how much of a problem this seems to be around the world! I am actually hoping that the biopsy comes back positive so I can start to go gluten-free and get on with my life!