This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
It can feel overwhelming at first with the lifestyle change...with time it becomes second nature, so hang in there. I was diagnosed Celiac 2 years ago...it really does get easier. I am married with 4 kids...one of my children also has Celiac Disease, but the rest of the family doesn't. Here are a couple great tips people gave me that helped...
1. Buy a "Gluten-Free Shopping Guide"...I bought mine on Amazon. This helped tremendously when I grocery shopped but was unsure about reading labels. I was able to take most of my regular recipes that I cooked for my family and make them Gluten-Free simplyby altering ingredients.
2. Keep your own butter dish in a cupboard so kids don't accidently use...now I label my own mayo, pbutter, etc with big gluten-free on the lids & my kids know not to "double dip"...however, when they do forget, we laugh it off(and I grab a new jar for myself next time I am at grocery store)...this change was new to the entire family
3. Make sure you have your own toaster...I bought a cheap one in a different color from our "regular" toaster...
4. You will eventually find flour mixes that you love...trial and error...I will say, my favorite is "Pamela's Pancake & Baking Mix"...it makes fabulous muffins, pancakes, cookies, etc.
5. You mentioned dairy...I also had to stay away from dairy for a while until my gut healed some...each person is different, but I do know that is pretty common
6. I love the advice above to "be careful, not paranoid".
Hi again...The I.V. treatments were for dehydration. For about a 5 week period of time, I was dehydrating even though I was drinking fluids...I know that logically doesn't make sense, but it is what happened to my body. Both of my doctors recognized that & had me come into the office & would give me bags of fluid. It would perk me up so much...I had them a couple times a week for those weeks.
The other "staple" in my diet during those first awful months were bananas, scramled eggs & chicken soup. I still make that chicken soup when I go through a period of upset tummy( I keep it in freezer baggies in my freezer). It is simple to make...boil a chicken for a few hours in a big pot of water(you can add spices if you like...most McCormick spices are g.f). Take the chicken out & pull off the meat & bones...use the broth from the chicken as a soup base. Add cooked rice & carrots(or any other frozen veggie that you like)....very easy, healthy & soothing for the gut.
Remember that you are in that beginning stage of "healing" your gut. Even though "technically" you should be able to eat anything g.f., your gut may not be ready. Also, other foods may bother you...for example, it is very common not to tolerate dairy...I'm hoping your doctor talked to you about some of that.
It can be overwhelming at first...especially when you are sick on top of trying to figure this all out. Soon it will all be second nature to you & hopefully soon things will turn around for you.
Hi...you are in a great place for encouragement on this forum!
You are pretty new into your Celiac journey of healing right now & it takes time...especially if you are a little older. I'm saying that to encourage you not discourage you. I was 40 when diagnosed....in Fall of 2011. I had lost 22 lbs in a few weeks & struggled with malnourishment for months...I had to get IV treatments. Thankfully between this forum & actually knowing a woman that struggled with Celiac after being diagnosed later in life, I was reassured that I needed to be patient(not that I felt patient with how miserable I felt!)
I don't think I put any weight on for almost a year...I am now almost 2 years in to my journey & I still struggle to keep the weight on(haha...never thought I would complain about that in my life). But, I am also so much stronger & better than when I was first diagnosed. I will be honest that my body is not what it used to be...I keep telling my husband that part of this journey is "learning to live in this new body".
I don't know what to say to help with your work situation...that's tough. Have you found a local Celiac support group? That can be encouraging. I struggled to eat because it hurt & I had no appetite...probably the best thing I did was make fruit smoothies out of bananas, frozen blueberries, frozen peaches or strawberries, vanilla yogurt & PROTEIN powder...it is difficult to get enough protein at the stage you are at.
Hang in there...get as much rest as you can...be patient with the time that it takes...hope things turn around at work!
Hi...I read posts on here regularly, but I haven't been writing on here in a while because I have been doing really great after such a long struggle. I was diagnosed Celiac by biopsy in Fall of 2011...really sick. Well, I have been spending the past almost 2 years healing...ups & downs...but so thankful to be heading up more than down.
I finally felt well enough to start looking for part time work(my hubby works & we have 4 school age kiddos). Our medical bills are so crazy from the period of time I was so sick, & I want/need to help out financially.
I took a wonderful job a couple weeks ago that I begin tomorrow & my symptoms have absolutely returned. I am so frustrated. In my head, I'm sure this is completely anxiety kicking in...something I havent dealt much with but seems to be magnified in this new Celiac body of mine. I've lost 7lbs in the past week, I get sick every time I eat, mornings are now my worst time, & I think I am panicking because I don't want to end up in the hospital again.
I just need some encouragement & advice from some of you that have lived with Celiac Disease longer than me. Is there anything you take to calm down your insides? Is anxiety another angle of Celiac Disease that I have to get a grip on...if so, how do you deal?
Sometimes I feel like I have conquered living with Celiac Disease...other times I feel like the disease is kicking my butt!
You have already gotten quite a few great responses. I'm just going to add a quick response too since we have had several weddings in the past year & I have had the same issue.
Usually the wedding invitation states who is catering...I have had good success calling the cateror or restaurant myself & just asking if they are familiar with g.free & if they can offer a g.free alternative. I can tell pretty quickly if they know what they are talking about or if I need to eat beforehand & make sure I have a purse full of food with me. I get really sick too if I get glutened.
Since I LOVE chocolate, I do bring a piece of chocolate of some sort in my purse...otherwise I feel sorry for myself not getting that wedding cake...ha!
Welcome to this forum. No question is ever stupid, and this is a great place to get answers from experienced people. It is overwhelming to figure this g.free thing out at first, but just like some others posted, it will become second nature with time.
When I was first diagnosed with Celiac in the Fall of 2011, I remember having that fear of constant cross contamination...especially when you live in a household of gluten eaters too.(I have a hubby & 4 kids...only one child has to eat g.free). I had to figure this out without driving myself & my family crazy. It has actually turned out to be a great learning experience for all of us...it just takes time.
Make sure you have your own toaster, own butter dish(I keep my butter in a seperate cupboard), & own foods that are jar dipped(like p.butter, mayo, etc). I use all the same dishes & utensils for eating. I bake with the same cake pans, muffin tins, frying pans, etc...I just make sure everything is washed well. I found, with time, that most of my baking is g.free anyways just because I don't want to make 2 different meals or treats. I like the advice about the colander & teflon vs. stainless steel pans...I hadn't thought of that.
Anyways, good luck...you will get this down, just relax & give yourself time.
I'm glad you brought this question up. I find that sometimes it is difficult to know if symptoms I deal with are related to Celiac Disease, aging, peri-menopause, "normal" woman issues...it's crazy to sift through!
Have you been in to see your gyno just to make sure everything is ok?
I have had some issues with ovulation & my periods also...I am 41 yrs old & was dianosed Celiac in Fall of 2011...not sure how many years undiagnosed. What is crazy with me, is my G.I. issues get worse during ovulation & my period. My paps are normal & I've had my ovaries ultrasounded.
Thank you, Steph, for that link to the webinar about perimenopause. I've talked to my G.I. dr about my issues with my period. The main response I get is that inflammation during those times of the month can affect our whole system, but to make sure I am seeing my gyno. also.
Anyways, sorry you are dealing with this...keep us posted on how things are going.
It sounds like you are on the right track. Healing can be different for each person, so try to be patient with your body...especially on those "off" days.
I was diagnosed with Celiac the Fall of 2011, so I am almost one year ahead of you. I also had lots of GI issues & pain. I was really sick & didn't have much of an appetite...had lost 22lbs in a few weeks from malabsoption...undiagnosed Celiac had affected many things in my body. The first year was a rollercoaster of learning, adjusting, dr. apts, & healing.
The one meal I lived on for months until I could handle more food was homeade chicken soup. So simple...I boiled down a whole chicken on the stove for about 2-3 hours(cover the chicken with water in a big pot), took the meat off, added cooked brown rice & frozen veggies. I froze the soup in ziplock baggies so I would have an easy lunch/supper. I also ate fresh or frozen fruit...bananas, blueberries,etc. Chicken breasts, grilled salmon...all easy to digest. I stayed away from citric, tomato based, & dairy...you may find you have other food intollerances. I found that I had a tough time with raw veggies, so I bought a juicer & started juicing anti-inflammatory veggies.
So, here I am almost 1 1/2 years later & I am doing soooo much better! Before diagnosis, I didn't know much about Celiac Disease. Now, this lifestyle of g.free living is 2nd nature. I am learning to be patient with my body. I still have an "off" day now & then, but not nearly as bad as an "off" day a year ago(where I would be in bed for the day). Our bodies are made to heal from MOST things (I know, not everything) with time.
The other thing I would encourage is "move" your body...walk, walk, walk...or whatever you can handle without overdoing it. Find a local support group or connect locally with people that eat g.free when you are ready...it can be fun exchanging recipe ideas, laughing at horrible products you waste money on, etc.
Keep us posted on how you are doing
Give your body time to heal...it can takehow long you were Celiac without knowing it & how much damage you have.
Thanks for the recipe & the various links! I haven't been on here for a few days...it's that busy time of year. I love this forum...no one understands some of the challenges of Celiac Disease (& gluten sensitivity) & the lifestyle change it involves better than people on this forum. I am excited to try a few new baked treats for the holidays.
Would you share your cinnamon roll recipe? Not sure if we should e-mail...this is the only "forum" I have ever gone on? My "specialty" before g.free with my family was caramel rolls...I've tried making them g.free but cannot seem to get that fluffy texture. I use Jules Flour for a lot of my baking, but I have quite a few other g.free flours sitting around.
I've always baked quite a bit...family of 6. I kind of lost my motivation this past year with how sick & worn out I was...I look forward to some new motivation this coming year!
Thanks all for the great ideas & encouraging respones!! That's what I need...motivation to keep moving forward with this life change. I am anxious to try the green goddess veggie dip & look for that cookbook. My daughter (in 8th grade also) eats g.free & is always up for new recipes...we had all 4 of our kids tested for Celiac when I was diagnosed.
I know I will get more motivated as I get back to full health...just have had a few issues tagging along with Celiac that have slowed me down. Yes, I would love to share recipe ideas, CeliacMom2008...how long have you been doing the g.free lifestyle?
I am a little over a year post-diagnosis. Last year at this time I was too sick to care about the holidays. The tempting food wasn't remotely tempting...I wasn't attending parties...I was surviving on scrambled eggs, bananas & homeade chicken soup.
This year I am trying to keep a thankful heart because I AM so thankful to be feeling better...not back to 100%, but better. However, I go through these periods of feeling overwhelmed by the fact that this is FOREVER!! I am reminded of that every time I go to a bridal shower, holiday gathering, out for dinner, etc. When I listen to everyone ooh & ahh over the food (that I can't eat),I have to check my own attitude. Somebody tell me it gets easier to have a good attitude!
So, some of you that have lived with Celiac or gluten-intolerance, could you give some ideas on handling holiday & party issues. What are some things you do when you are staying with relatives? Any fun ideas to make Christmas parties fun even though you can't eat 90% of what is served. I always offer to bring g.free goodies to share, but just wondering what some of you do to keep a positive attitude in the midst of such a lifestyle change?
I know this journey can be frustrating & exhausting!
One other thought...have you ever tried juicing? It's just one more idea...you can read about the benefits of juicing online. I bought a juicer about a month and half ago...I also have had ongoing issues...I am a year post-diagnosis. I read an article from a gentleman with Celiac that started juicing & it really helped him...so, I thought I would give it a try. I feel like my energy has increased some, but it is really too early to tell. I juice about 28 ounces a day of carrots, cucumber, celery, apple, spinach, beets...or whatever else I want to throw in.